{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T20:07:54Z","timestamp":1792786074085,"version":"4.5.0"},"reference-count":32,"publisher":"Oxford University Press (OUP)","issue":"5","license":[{"start":{"date-parts":[[2026,4,7]],"date-time":"2026-04-07T00:00:00Z","timestamp":1775520000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"funder":[{"name":"DCCC Brain Tumor Center, funded by the Danish Cancer Society","award":["R295-A16770"],"award-info":[{"award-number":["R295-A16770"]}],"id":[{"id":"https:\/\/ror.org\/03ytt7k16","id-type":"ROR","asserted-by":"crossref"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2026,10,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Glioblastomas are highly aggressive brain tumors and tumor recurrence is inevitable. At tumor recurrence, critical decisions about treatment and care have to be made, and in this process, patients and relatives require decision support. This study aimed to investigate how patients with glioblastoma and their relatives experienced the \u201cDecision Helper\u201d (DH) which is a paper-based decision aid designed to guide shared decision making in neurosurgical consultations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Semi-structured interviews were conducted with 14 patients and 15 close relatives immediately after the neurosurgical consultation. The interviews were analyzed using a reflexive thematic analysis approach.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The analysis generated three overlapping themes. Theme I, the DH\u2019s impact on decision certainty and decisional conflict, covered the participants\u2019 experiences of reduced uncertainty about the decision. Theme II, the DH\u2019s impact on information, encompassed the support the participants received regarding distinguishing between options and comprehending the clinicians\u2019 information. Theme III, the DH\u2019s impact on the consultation and relationship with the physician, focused on how the impact of the DH was realized through the structure of the consultation and increasing patient-centeredness. However, the impact of the DH depended on the physician\u2019s communication skills and their ability and willingness to use the DH during the consultation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Participants experienced that the DH enhanced their involvement and improved their understanding of the information provided by the neurosurgeons. It facilitated more precise comparisons among treatment options and made participants feel more confident in their decision. Clinicians need training in delivering decision support to patients and relatives.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/nop\/npag031","type":"journal-article","created":{"date-parts":[[2026,4,4]],"date-time":"2026-04-04T11:39:53Z","timestamp":1775302793000},"page":"890-899","source":"Crossref","is-referenced-by-count":1,"title":["Shared decision making in neurosurgical consultations: A qualitative study of patients\u2019 and relatives\u2019 experiences"],"prefix":"10.1093","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3033-7598","authenticated-orcid":false,"given":"Helle","family":"S\u00f8rensen von Essen","sequence":"first","affiliation":[{"name":"Department of Neurosurgery, Odense University Hospital , Odense,","place":["Denmark"]},{"name":"Clinical Institute, University of Southern Denmark , Odense,","place":["Denmark"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie","family":"Heintz Sparrebro","sequence":"additional","affiliation":[{"name":"Department of Urology, Odense University Hospital , Odense,","place":["Denmark"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katrine","family":"Damsgaard-S\u00f8rensen","sequence":"additional","affiliation":[{"name":"The Danish Brain Tumor Association , Lyngby,","place":["Denmark (K.D.S)"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3952-5301","authenticated-orcid":false,"given":"Lene Berit","family":"Bjerregaard","sequence":"additional","affiliation":[{"name":"Clinical Institute, University of Southern Denmark , Odense,","place":["Denmark"]},{"name":"Research Unit of Oto Rhino Laryngology, University of Southern Denmark ,","place":["Denmark (L.B.B.)"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2026,4,7]]},"reference":[{"key":"2026091601514443200_npag031-B1","doi-asserted-by":"publisher","first-page":"60","DOI":"10.1016\/j.clineuro.2016.01.010","article-title":"Second surgery for recurrent glioblastoma: a concise overview of the current literature","volume":"142","author":"Montemurro","year":"2016","journal-title":"Clin Neurol Neurosurg"},{"key":"2026091601514443200_npag031-B2","doi-asserted-by":"publisher","first-page":"407","DOI":"10.1016\/j.nec.2017.02.007","article-title":"Reoperation for recurrent glioblastoma multiforme","volume":"28","author":"Robin","year":"2017","journal-title":"Neurosurg Clin N Am"},{"key":"2026091601514443200_npag031-B3","doi-asserted-by":"publisher","first-page":"E11","DOI":"10.3171\/2014.12.FOCUS14726","article-title":"Aggressive repeat surgery for focally recurrent primary glioblastoma: outcomes and theoretical framework","volume":"38","author":"Sughrue","year":"2015","journal-title":"Neurosurg Focus"},{"key":"2026091601514443200_npag031-B4","doi-asserted-by":"publisher","first-page":"780","DOI":"10.1056\/NEJMp1109283","article-title":"Shared decision making--pinnacle of patient-centered care","volume":"366","author":"Barry","year":"2012","journal-title":"N Engl J Med"},{"key":"2026091601514443200_npag031-B5","doi-asserted-by":"publisher","first-page":"229","DOI":"10.1200\/JOP.18.00019","article-title":"Lessons in integrating shared decision-making into cancer care","volume":"14","author":"Steffensen","year":"2018","journal-title":"J Oncol Pract"},{"key":"2026091601514443200_npag031-B6","first-page":"Cd001431","article-title":"Decision aids for people facing health treatment or screening decisions","volume":"4","author":"Stacey","year":"2017","journal-title":"Cochrane Database Syst Rev"},{"key":"2026091601514443200_npag031-B7","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1200\/CCI.17.00148","article-title":"What is the effectiveness of patient decision aids for Cancer-Related decisions? 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