{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,18]],"date-time":"2026-05-18T20:59:00Z","timestamp":1779137940378,"version":"3.51.4"},"reference-count":56,"publisher":"Oxford University Press (OUP)","issue":"7","license":[{"start":{"date-parts":[[2025,7,31]],"date-time":"2025-07-31T00:00:00Z","timestamp":1753920000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,11,29]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>Integrated research potentiates evidence-based knowledge, particularly for uncommon diseases such as Kawasaki disease (KD). The 14th International Kawasaki Disease Symposium focussed on \u201cFostering global collaborations to solve KD,\u201d circulated a 23-question survey highlighting existing collaborations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Information was collected from KD collaborative groups. One or more of the following characteristics defined a collaborative effort: recurrent clinical trials collaborations; international, national, or inter-state research; multi-institutional research; national, government-funded or government-appointed research; epidemiology group; focus group on KD practice and science or other health organization chapters.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Responses from 21 groups were limited to a single country (67%). The groups had formed between 1991 and 2022. The multi-institutional groups included a median of 1 to 20 countries composed of 2\u2013150 institutions. The groups included 10\u201320 active members (38%), 20\u201350 members (38%), 50\u2013100 (14%), or more than 100 members (10%). A majority (67%) of collaborations produced 2\u201311 peer-reviewed publications. Groups operated under a centralized governance structure (62%), with a steering committee (92%), bylaws (23%), membership fees (8%), or another structure (8%). Only 33% had a written mission statement. While 48% had no formal funding sources, the remainder were funded by granting agencies (29%), governmental funding (24%), private donations and fundraising drives (19%), industry support (10%), and other sources (5%).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The majority of polled collaborative KD groups are multicenter and national. Despite the lack of funding, most groups demonstrate successful collaborations that result in peer-reviewed publications. There is a need for advocacy to support funding for these important collaborative groups.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/pch\/pxaf047","type":"journal-article","created":{"date-parts":[[2025,5,21]],"date-time":"2025-05-21T09:02:12Z","timestamp":1747818132000},"page":"587-597","source":"Crossref","is-referenced-by-count":1,"title":["The landscape of inter-institutional and multinational collaborations in Kawasaki disease"],"prefix":"10.1093","volume":"30","author":[{"given":"Rocio","family":"Gutierrez Rojas","sequence":"first","affiliation":[{"name":"Division of Pediatric Cardiology, CHU Sainte-Justine, University of Montreal , Montreal, Quebec ,","place":["Canada"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fabiola","family":"Breault","sequence":"additional","affiliation":[{"name":"Division of Pediatric Cardiology, CHU Sainte-Justine, University of Montreal , Montreal, Quebec 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