{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,12]],"date-time":"2025-10-12T11:16:00Z","timestamp":1760267760990,"version":"3.41.2"},"reference-count":30,"publisher":"Oxford University Press (OUP)","issue":"2","license":[{"start":{"date-parts":[[2021,4,23]],"date-time":"2021-04-23T00:00:00Z","timestamp":1619136000000},"content-version":"vor","delay-in-days":112,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"IPCA Laboratories Limited and Cipla Limited"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2021,5,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Objectives<\/jats:title>\n                  <jats:p>The aim was to determine the impact of the coronavirus disease 2019 (COVID-19) pandemic on access to health care among patients with scleroderma and to analyse the economic and psychosocial impacts and the infection prevention measures taken by them during the pandemic.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>A 25-item questionnaire designed to assess the components of the objectives was tele-administered between October 2020 and January 2021 to the patients enrolled in the Indian Progressive Systemic Sclerosis Registry.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Of the 428 patients in the registry, 336 took part in the study. A scheduled outpatient visit was missed by 310 (92.3%) patients, and 75 (22.3%) skipped prescription drugs. During the pandemic, 75 (22.3%) had a family member lose a job. Financial difficulties were reported by 155 (46.1%), with 116 (34.5%) patients having to spend an additional INR 4000 (2000\u201310 000) [USD 54.9 (27.0\u2013137.4)] to continue treatment. Although 35 patients (10.4%) had at least one symptom suggestive of COVID-19, infection was confirmed in only 4. None of them needed hospitalization or had adverse outcomes. Worsening of scleroderma was seen in 133 (39.6%) individuals, with 15 (4.5%) requiring hospitalization. Most (96%) of the patients were aware of infection prevention measures, and 91 (27.1%) had taken unproven prophylactic medications.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusion<\/jats:title>\n                  <jats:p>Individuals with scleroderma in India have been affected during the pandemic owing to closure of hospital services, lack of transport, loss of jobs and the additional financial burden. Health-care providers should continue to educate patients to stay on their medications and encourage them to be vaccinated for COVID-19.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1093\/rap\/rkab027","type":"journal-article","created":{"date-parts":[[2021,4,23]],"date-time":"2021-04-23T22:49:33Z","timestamp":1619218173000},"source":"Crossref","is-referenced-by-count":3,"title":["Clinical and psychosocioeconomic impact of COVID-19 pandemic on patients of the Indian Progressive Systemic Sclerosis Registry (IPSSR)"],"prefix":"10.1093","volume":"5","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3643-3989","authenticated-orcid":false,"given":"Chengappa","family":"Kavadichanda","sequence":"first","affiliation":[{"name":"Department of Clinical Immunology, Jawaharlal Institute of Postgraduate Medical Education and Research, Puducherry"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Vineeta","family":"Shobha","sequence":"additional","affiliation":[{"name":"Department of Clinical Immunology and Rheumatology, St. John\u2019s Medical College Hospital, Bengaluru, Karnataka"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Parasar","family":"Ghosh","sequence":"additional","affiliation":[{"name":"Department of Rheumatology and Clinical Immunology, Institute of Post-Graduate Medical Education & Research and S. 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Hospital, Kolkata, West Bengal"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anupam","family":"Wakhlu","sequence":"additional","affiliation":[{"name":"Department of Clinical Immunology and Rheumatology, RALC Campus, King George's Medical University, Lucknow, Uttar Pradesh"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Devender","family":"Bairwa","sequence":"additional","affiliation":[{"name":"Department of Clinical Immunology, Jawaharlal Institute of Postgraduate Medical Education and Research, Puducherry"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Manju","family":"Mohanan","sequence":"additional","affiliation":[{"name":"Centre for Arthritis and Rheumatism Excellence (CARE), Cochin, Kerala, India"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ramya","family":"Janardana","sequence":"additional","affiliation":[{"name":"Department of Clinical Immunology and Rheumatology, St. John\u2019s Medical College Hospital, Bengaluru, Karnataka"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8715-7726","authenticated-orcid":false,"given":"Geetabali","family":"Sircar","sequence":"additional","affiliation":[{"name":"Department of Rheumatology and Clinical Immunology, Institute of Post-Graduate Medical Education & Research and S. 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