{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T00:43:49Z","timestamp":1789605829909,"version":"build-2803163510"},"reference-count":25,"publisher":"Oxford University Press (OUP)","issue":"1","license":[{"start":{"date-parts":[[2026,1,28]],"date-time":"2026-01-28T00:00:00Z","timestamp":1769558400000},"content-version":"vor","delay-in-days":27,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Danish Rheumatism Association Foundation","award":["R228-A8328"],"award-info":[{"award-number":["R228-A8328"]}]},{"name":"Danish Rheumatism Association Foundation","award":["R218-A7984"],"award-info":[{"award-number":["R218-A7984"]}]},{"name":"Rigshospitalet Research","award":["E-23241\u201307"],"award-info":[{"award-number":["E-23241\u201307"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2026,1,2]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Cohabitating partners of people with inflammatory arthritis, such as rheumatoid arthritis, psoriatic arthritis and spondyloarthritis, require information on disease management to support people and navigate their roles. Partner participation in rheumatology consultations could potentially facilitate this, but this remains unexplored. This study investigated both people with arthritis and their partners\u2019 perspectives on partner participation in rheumatology consultations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>People with arthritis and their partners were recruited through patient organizations, social media and rheumatology departments. Interview guides were co-developed with five patient research partner couples. Data were collected via focus groups and individual interviews, and analyzed separately for people with arthritis and partners using reflexive thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Five focus groups and 15 individual interviews were conducted with 19 people with inflammatory arthritis and 11 partners. People with arthritis themes included: (1) partner participation as a matter of coincidence, (2) longing for more to be addressed, (3) ambivalence about support needs, and (4) need for organizational changes. Partner themes included: (1) being able to provide support is the main goal, (2) being burdened by the lack of support, and (3) creating a space for partners.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Partners are not systematically included in consultations, and partner participation is influenced by both people with inflammatory arthritis awareness and needs, and the level of facilitation by health professionals. Beyond knowledge, partners received little support during consultations. Both people with inflammatory arthritis and partners expressed a desire for consultations to enhance partners\u2019 ability to participate and for health professionals to address the broader impact of inflammatory arthritis.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/rap\/rkag010","type":"journal-article","created":{"date-parts":[[2026,1,26]],"date-time":"2026-01-26T10:15:42Z","timestamp":1769422542000},"source":"Crossref","is-referenced-by-count":1,"title":["A qualitative study of people with inflammatory arthritis and their partners\u2019 perspectives on partner participation in rheumatology consultations"],"prefix":"10.1093","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5228-5448","authenticated-orcid":false,"given":"Charlotte Werdal","family":"Hansen","sequence":"first","affiliation":[{"name":"Department of Rheumatology and Spine Diseases, Copenhagen Center for Arthritis Research (COPECARE), Centre of Head and Orthopaedics, Rigshospitalet , Glostrup,","place":["Denmark"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2381-2127","authenticated-orcid":false,"given":"Julie","family":"Midtgaard","sequence":"additional","affiliation":[{"name":"Mental Health Center Glostrup, Centre for Applied Research in Mental Health Care (CARMEN), Copenhagen University Hospital-Mental Health Services CPH , Copenhagen,","place":["Denmark"]},{"name":"Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen , Copenhagen,","place":["Denmark"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0103-4328","authenticated-orcid":false,"given":"Annette","family":"de Thurah","sequence":"additional","affiliation":[{"name":"Department of Rheumatology, Aarhus University Hospital , Aarhus,","place":["Denmark"]},{"name":"Department of Clinical Medicine, Aarhus University , Aarhus,","place":["Denmark"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0745-959X","authenticated-orcid":false,"given":"Pernille Fevejle","family":"Cromhout","sequence":"additional","affiliation":[{"name":"Novo Nordisk A\/S , S\u00f8borg,","place":["Denmark"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5331-8221","authenticated-orcid":false,"given":"Bente Appel","family":"Esbensen","sequence":"additional","affiliation":[{"name":"Department of Rheumatology and Spine Diseases, Copenhagen Center for Arthritis Research (COPECARE), Centre of Head and Orthopaedics, Rigshospitalet , Glostrup,","place":["Denmark"]},{"name":"Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen , Copenhagen,","place":["Denmark"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2026,1,28]]},"reference":[{"key":"2026021306011928700_rkag010-B1","first-page":"954","author":"Zangi","year":"2015"},{"key":"2026021306011928700_rkag010-B2","first-page":"487","volume-title":"Reumatologi","author":"Tarp","year":"2006","edition":"2nd"},{"key":"2026021306011928700_rkag010-B3","doi-asserted-by":"crossref","first-page":"1278","DOI":"10.1136\/annrheumdis-2021-220249","article-title":"EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis","volume":"80","author":"Nikiphorou","year":"2021","journal-title":"Ann Rheum Dis"},{"key":"2026021306011928700_rkag010-B4","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1177\/1742395309352254","article-title":"Emerging models for mobilizing family support for chronic disease management: a structured review","volume":"6","author":"Rosland","year":"2010","journal-title":"Chronic Illn"},{"key":"2026021306011928700_rkag010-B5","doi-asserted-by":"crossref","first-page":"556","DOI":"10.1002\/art.11207","article-title":"Group education for patients with rheumatoid arthritis and their partners","volume":"49","author":"Riemsma","year":"2003","journal-title":"Arthritis Care Res (Hoboken)"},{"key":"2026021306011928700_rkag010-B6","doi-asserted-by":"crossref","first-page":"46","DOI":"10.1002\/msc.165","article-title":"\u201cYour whole life, your whole world, it changes\u201d: partners\u2019 experiences of living with rheumatoid arthritis","volume":"8","author":"Matheson","year":"2010","journal-title":"Musculoskeletal Care"},{"key":"2026021306011928700_rkag010-B7","doi-asserted-by":"crossref","first-page":"1849","DOI":"10.1007\/s00296-024-05639-9","article-title":"Significant others in inflammatory arthritis: roles, influences, and challenges\u2014a scoping review","volume":"44","author":"Hansen","year":"2024","journal-title":"Rheumatol Int."},{"key":"2026021306011928700_rkag010-B8","first-page":"104","article-title":"Incorporating family members into chronic disease clinical care","author":"Rosland","year":"2009","journal-title":"J Gen Intern Med"},{"key":"2026021306011928700_rkag010-B9","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups","volume":"19","author":"Tong","year":"2007","journal-title":"Int J Quality in Health Care"},{"key":"2026021306011928700_rkag010-B10","first-page":"795","article-title":"Systematic text condensation: a strategy for qualitative analysis","author":"Malterud","year":"2012"},{"key":"2026021306011928700_rkag010-B11","first-page":"1","volume-title":"Focus groups: a practical guide for applied researcher","author":"Krueger","year":"2015","edition":"5th ed"},{"key":"2026021306011928700_rkag010-B12","first-page":"1576","article-title":"nterviewing separately or as couples? Considerations of authenticity of method","author":"Taylor","year":"2011"},{"key":"2026021306011928700_rkag010-B13","volume-title":"Thematic analysis\u2014a practical guide","author":"Braun","year":"2021","edition":"1st ed"},{"key":"2026021306011928700_rkag010-B14","doi-asserted-by":"publisher","first-page":"589","DOI":"10.1080\/2159676X.2019.1628806","article-title":"Reflecting on reflexive thematic analysis","author":"Braun","year":"2019"},{"key":"2026021306011928700_rkag010-B15","doi-asserted-by":"crossref","first-page":"722","DOI":"10.1136\/ard.2010.135129","article-title":"European league against rheumatism recommendations for the inclusion of patient representatives in scientific projects","volume":"70","author":"de Wit","year":"2011","journal-title":"Ann Rheum Dis"},{"key":"2026021306011928700_rkag010-B16","first-page":"j3453","article-title":"GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research","volume":"358","author":"Staniszewska","year":"2017","journal-title":"Res Involv Engagem"},{"key":"2026021306011928700_rkag010-B17","doi-asserted-by":"crossref","first-page":"1753","DOI":"10.1177\/1049732315617444","article-title":"Sample size in qualitative interview studies: guided by information power","volume":"26","author":"Malterud","year":"2016","journal-title":"Qual Health Res"},{"key":"2026021306011928700_rkag010-B18","author":"McCormack","year":"2 . -, 2016."},{"key":"2026021306011928700_rkag010-B19","first-page":"1179","article-title":"Moving from patient-centred to family-centred care? A systematic review of psycho-educational programs for people and partners affected by arthritis","volume":"38","author":"Lehman","year":"2011","journal-title":"J Rheumatol"},{"key":"2026021306011928700_rkag010-B20","doi-asserted-by":"crossref","first-page":"898","DOI":"10.1111\/1756-185X.13893","article-title":"Elevating the role of carers in rheumatoid arthritis management in the Asia-Pacific region","volume":"23","author":"Pile","year":"2020","journal-title":"Int J Rheum Dis"},{"key":"2026021306011928700_rkag010-B21","doi-asserted-by":"crossref","first-page":"4131","DOI":"10.1007\/s00520-016-3237-8","article-title":"Attitudes and experiences of family involvement in cancer consultations: a qualitative exploration of patient and family member perspectives","volume":"24","author":"Laidsaar-Powell","year":"2016","journal-title":"Supportive Care in Cancer"},{"key":"2026021306011928700_rkag010-B22","doi-asserted-by":"crossref","first-page":"245","DOI":"10.1016\/j.pec.2019.08.031","article-title":"Partner involvement in treatment-related decision making in triadic clinical consultations\u2014a systematic review of qualitative and quantitative studies","volume":"103","author":"Bracher","year":"2020","journal-title":"Patient Educ Couns"},{"key":"2026021306011928700_rkag010-B23","doi-asserted-by":"crossref","first-page":"211","DOI":"10.1108\/JOE-01-2018-0003","article-title":"Professionals\u2019 involvement of relatives\u2014only good intentions?","volume":"8","author":"Glasdam","year":"2019","journal-title":"J Organ Ethnogr"},{"key":"2026021306011928700_rkag010-B24","doi-asserted-by":"crossref","first-page":"355","DOI":"10.1177\/1074840710383145","article-title":"Do family interventions improve health?","volume":"16","author":"Chesla","year":"2010","journal-title":"J Fam Nurs"},{"key":"2026021306011928700_rkag010-B25","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1136\/rmdopen-2023-003412","article-title":"Prevalence of anxiety and depression and the association with self-management behaviour in &gt;12 000 patients with inflammatory rheumatic disease: a cross-sectional nationwide study","volume":"10","author":"Vestergaard","year":"2024","journal-title":"RMD Open"}],"container-title":["Rheumatology Advances in Practice"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/academic.oup.com\/rheumap\/advance-article-pdf\/doi\/10.1093\/rap\/rkag010\/66613374\/rkag010.pdf","content-type":"application\/pdf","content-version":"am","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/rheumap\/article-pdf\/10\/1\/rkag010\/66613374\/rkag010.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/rheumap\/article-pdf\/10\/1\/rkag010\/66613374\/rkag010.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,2,13]],"date-time":"2026-02-13T11:01:26Z","timestamp":1770980486000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/rheumap\/article\/doi\/10.1093\/rap\/rkag010\/8443458"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026]]},"references-count":25,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2026,1,2]]}},"URL":"https:\/\/doi.org\/10.1093\/rap\/rkag010","relation":{},"ISSN":["2514-1775"],"issn-type":[{"value":"2514-1775","type":"electronic"}],"subject":[],"published-other":{"date-parts":[[2026]]},"published":{"date-parts":[[2026]]},"article-number":"rkag010"}}