{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T12:11:58Z","timestamp":1789992718924,"version":"4.0.1"},"reference-count":101,"publisher":"Oxford University Press (OUP)","issue":"4","license":[{"start":{"date-parts":[[2025,6,6]],"date-time":"2025-06-06T00:00:00Z","timestamp":1749168000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/pages\/standard-publication-reuse-rights"}],"funder":[{"DOI":"10.13039\/100000071","name":"National Institute of Child Health and Human Development","doi-asserted-by":"publisher","award":["1K23HD10598701A1"],"award-info":[{"award-number":["1K23HD10598701A1"]}],"id":[{"id":"10.13039\/100000071","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,10,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Persons with physical disabilities (PWD) are a health care disparity group who face both difficulties accessing and inequalities in care. Although their sexual health is impacted by their disability and important to them, they often receive no or inadequate sexual health care. To address this gap, we sought to summarize evidence-based recommendations for culturally sensitive sexual health care for PWD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>The aim of this scoping review was to identify patient-reported preferences for culturally sensitive sexual health care for people with Parkinson\u2019s Disease, Multiple Sclerosis, Spinal Cord Injury, Spina Bifida, and Cerebral Palsy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Utilizing PubMed and Embase, we identified all primary research studies published from 1\/1\/2005-1\/6\/2024 that included PWD-reported preferences for delivery of sexual health care. After determining eligibility, two authors extracted and subsequently summarized the data utilizing standard scoping review methods.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>6575 articles were identified, of which 32 met eligibility criteria, which included 13 reviews, nine cross- sectional studies, nine cohort studies, and one quasi-experimental studies. Sexual health generally goes unaddressed in the care of PWD despite its importance to the individuals. While there is a paucity of research, existing evidence suggests that preferences are highly individual and may vary by sociocultural, health, disability, relationship, and personal factors. Health care providers should ask each person about their preferences for the timing and context of sexual health conversations, such as who is present and how to make the person comfortable during the clinic visit. Validated questionnaires and educational tools may help facilitate conversations. Sexual health conversations should be ongoing.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Providing culturally sensitive sexual health care for PWD and their partners is both critical and feasible. Additional research is needed to further explore preferences for care and how preferences are impacted by the intersectionality of sociocultural, disability, and other factors.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/sxmrev\/qeaf026","type":"journal-article","created":{"date-parts":[[2025,5,23]],"date-time":"2025-05-23T09:38:59Z","timestamp":1747993139000},"page":"674-686","source":"Crossref","is-referenced-by-count":1,"title":["Providing culturally sensitive sexual medicine for persons with disabilities: a scoping review"],"prefix":"10.1093","volume":"13","author":[{"given":"Rebecca","family":"Howland","sequence":"first","affiliation":[{"name":"Department of Urology, University of Michigan , Ann Arbor, MI 48109 ,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Benjamin","family":"Tooke","sequence":"additional","affiliation":[{"name":"Department of Urology, University of California Los Angeles , Los Angeles, CA 90095 ,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hugh","family":"Deery","sequence":"additional","affiliation":[{"name":"Independent Scholar"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"JoAnne","family":"Deery","sequence":"additional","affiliation":[{"name":"Independent Scholar"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jodi","family":"Kreschmer","sequence":"additional","affiliation":[{"name":"Department of Physical Medicine and Rehabilitation, University of Michigan , Ann Arbor, MI 48109 ,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Arthur","sequence":"additional","affiliation":[{"name":"Department of Nursing, Indiana University , Bloomington, IN 47408 ,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniela","family":"Wittmann","sequence":"additional","affiliation":[{"name":"Department of Urology, University of Michigan , Ann Arbor, MI 48109 ,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Courtney","family":"Streur","sequence":"additional","affiliation":[{"name":"Department of Urology, University of Michigan , Ann Arbor, MI 48109 ,","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2025,6,6]]},"reference":[{"issue":"9","key":"2025102205564186600_ref1","doi-asserted-by":"publisher","first-page":"1000","DOI":"10.1037\/amp0000283","article-title":"Disability culturally competent sexual healthcare","volume":"72","author":"Mona","year":"2017","journal-title":"Am Psychol"},{"key":"2025102205564186600_ref2","doi-asserted-by":"publisher","first-page":"S198","DOI":"10.2105\/AJPH.2014.302182","volume-title":"Am J Public Health","author":"Krahn","year":"2015"},{"issue":"10","key":"2025102205564186600_ref3","doi-asserted-by":"publisher","first-page":"e0238585","DOI":"10.1371\/journal.pone.0238585","article-title":"Barriers facing persons with disability in accessing sexual and reproductive health services in sub-Saharan Africa: a systematic review","volume":"15","author":"Ganle","year":"2020","journal-title":"PLoS One"},{"issue":"10","key":"2025102205564186600_ref4","doi-asserted-by":"publisher","first-page":"1371","DOI":"10.1089\/neu.2004.21.1371","article-title":"Targeting recovery: priorities of the spinal cord-injured population","volume":"21","author":"Anderson","year":"2004","journal-title":"J Neurotrauma"},{"issue":"1","key":"2025102205564186600_ref5","doi-asserted-by":"publisher","first-page":"61","DOI":"10.2340\/16501977-0128","article-title":"Sexuality and sexual life in women with spinal cord injury: a controlled study","volume":"40","author":"Kreuter","year":"2008","journal-title":"J Rehabil Med"},{"issue":"3","key":"2025102205564186600_ref6","doi-asserted-by":"publisher","first-page":"766","DOI":"10.1007\/s00586-015-3991-1","article-title":"Discussing sexual health in spinal care","volume":"25","author":"Korse","year":"2016","journal-title":"Eur Spine J"},{"issue":"4","key":"2025102205564186600_ref7","doi-asserted-by":"publisher","first-page":"605","DOI":"10.1016\/j.cnur.2007.07.007","article-title":"Intimacy and multiple sclerosis","volume":"42","author":"Moore","year":"2007","journal-title":"Nurs Clin N Am"},{"issue":"2","key":"2025102205564186600_ref8","doi-asserted-by":"publisher","first-page":"191","DOI":"10.2522\/ptj.20060188","article-title":"Health care providers\u2019 knowledge, attitudes, and self-efficacy for working with patients with spinal cord injury who have diverse sexual orientations","volume":"88","author":"Burch","year":"2008","journal-title":"Phys Ther"},{"issue":"11","key":"2025102205564186600_ref9","doi-asserted-by":"publisher","first-page":"1550","DOI":"10.1080\/09638288.2019.1670271","article-title":"Sexuality as part of rehabilitation? A qualitative study on the perceptions of rehabilitation nurses on discussing patient sexuality during clinical rehabilitation","volume":"43","author":"Pascual","year":"2021","journal-title":"Disabil Rehabil"},{"issue":"6","key":"2025102205564186600_ref10","doi-asserted-by":"publisher","first-page":"853","DOI":"10.1016\/j.jsxm.2019.03.012","article-title":"\u201cIf everyone Else is having this talk with their doctor, why Am I not having this talk with mine?\u201d: the experiences of Sexuality and sexual health education of young women with spina bifida","volume":"16","author":"Streur","year":"2019","journal-title":"Journal of Sexual Medicine"},{"issue":"5","key":"2025102205564186600_ref11","doi-asserted-by":"publisher","first-page":"586","DOI":"10.1080\/10790268.2019.1621730","article-title":"Sexual abuse in people with spinal cord damage","volume":"43","author":"New","year":"2020","journal-title":"J Spinal Cord Med"},{"issue":"1","key":"2025102205564186600_ref12","doi-asserted-by":"publisher","first-page":"31","DOI":"10.1363\/psrh.12130","article-title":"Pregnancy intendedness by maternal disability status and type in the United States","volume":"52","author":"Horner-Johnson","year":"2020","journal-title":"Perspect Sex Reprod Health"},{"key":"2025102205564186600_ref13","author":"How Multiple Sclerosis Affects Intimacy and Sexual Health"},{"key":"2025102205564186600_ref14","author":"Houtrow"},{"issue":"3","key":"2025102205564186600_ref15","doi-asserted-by":"publisher","first-page":"342","DOI":"10.1037\/a0022967","article-title":"Patient-centered culturally sensitive health care: model testing and refinement","volume":"30","author":"Tucker","year":"2011","journal-title":"Health Psychol"},{"key":"2025102205564186600_ref16","doi-asserted-by":"publisher","first-page":"103543","DOI":"10.1016\/j.ridd.2019.103543","article-title":"Providers\u2019 perspectives on factors complicating the culturally sensitive care of individuals with intellectual disabilities","volume":"96","author":"van Herwaarden","year":"2020","journal-title":"Res Dev Disabil"},{"issue":"2","key":"2025102205564186600_ref17","doi-asserted-by":"publisher","first-page":"620","DOI":"10.1007\/s40615-021-00994-w","article-title":"Latinx patients\u2019 perceptions of culturally sensitive health care and their association with patient satisfaction, patient-provider communication, and therapeutic alliance","volume":"9","author":"Roncoroni","year":"2022","journal-title":"J Racial Ethn Health Disparities"},{"issue":"10","key":"2025102205564186600_ref18","doi-asserted-by":"publisher","first-page":"2119","DOI":"10.11124\/JBIES-20-00167","article-title":"Updated methodological guidance for the conduct of scoping reviews","volume":"18","author":"Peters","year":"2020","journal-title":"JBI Evid Synth"},{"issue":"1","key":"2025102205564186600_ref19","doi-asserted-by":"publisher","first-page":"148","DOI":"10.1186\/2046-4053-4-1","article-title":"Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015 statement","volume":"4","author":"Moher","year":"2016","journal-title":"Revista Espanola de Nutricion Humana y Dietetica"},{"issue":"1","key":"2025102205564186600_ref20","doi-asserted-by":"publisher","first-page":"12","DOI":"10.1002\/2327-6924.12380","article-title":"Understanding scoping reviews: definition, purpose, and process","volume":"29","author":"Peterson","year":"2017","journal-title":"J Am Assoc Nurse Pract"},{"issue":"6","key":"2025102205564186600_ref21","doi-asserted-by":"publisher","first-page":"375","DOI":"10.1177\/1756285611411504","article-title":"Management of sexual dysfunction in Parkinson\u2019s disease","volume":"4","author":"Bronner","year":"2011","journal-title":"Ther Adv Neurol Disord"},{"issue":"2","key":"2025102205564186600_ref22","doi-asserted-by":"publisher","first-page":"119","DOI":"10.1007\/s11195-010-9180-6","article-title":"Sexuality of young adults with cerebral palsy: experienced limitations and needs","volume":"29","author":"Wiegerink","year":"2011","journal-title":"Sex Disabil"},{"issue":"210","key":"2025102205564186600_ref23","article-title":"Sexuality IN young people WITH physical disabilities: theory and practice","volume":"9","author":"Hardoff","year":"2012","journal-title":"Georgian Med News"},{"issue":"4","key":"2025102205564186600_ref24","doi-asserted-by":"publisher","first-page":"530","DOI":"10.1038\/aja.2011.110","article-title":"Multiple sclerosis and sexual dysfunction","volume":"14","author":"Guo","year":"2012","journal-title":"Asian J Androl"},{"issue":"2","key":"2025102205564186600_ref25","doi-asserted-by":"publisher","first-page":"375","DOI":"10.3233\/NRE-172187","article-title":"Changing the culture of neurodisability through language and sensitivity of providers: creating a safe place for LGBTQIA+ people","volume":"41","author":"Moreno","year":"2017","journal-title":"NeuroRehabilitation"},{"issue":"1","key":"2025102205564186600_ref26","doi-asserted-by":"publisher","first-page":"2","DOI":"10.1002\/mds.22519","article-title":"Genitourinary dysfunction in Parkinson\u2019s disease","volume":"25","author":"Sakakibara","year":"2010","journal-title":"Mov Disord"},{"issue":"1","key":"2025102205564186600_ref27","doi-asserted-by":"publisher","first-page":"100280","DOI":"10.1016\/j.esxm.2020.10.008","article-title":"Sexual disorders and quality of life in Parkinson\u2019s disease","volume":"9","author":"Santa Rosa Malcher","year":"2021","journal-title":"Sex Med"},{"key":"2025102205564186600_ref28","doi-asserted-by":"publisher","first-page":"101665","DOI":"10.1016\/j.arr.2022.101665","article-title":"The association between Parkinson\u2019s disease and sexual dysfunction: clinical correlation and therapeutic implications","volume":"79","author":"Ng","year":"2022","journal-title":"Ageing Res Rev"},{"issue":"10","key":"2025102205564186600_ref29","doi-asserted-by":"publisher","first-page":"1327","DOI":"10.1111\/ene.13983","article-title":"The PRIAMO study: active sexual life is associated with better motor and non-motor outcomes in men with early Parkinson\u2019s disease","volume":"26","author":"Picillo","year":"2019","journal-title":"Eur J Neurol"},{"key":"2025102205564186600_ref30","doi-asserted-by":"publisher","DOI":"10.1002\/mds.10473","article-title":"The unified parkinson\u2019s disease rating scale (UPDRS): Status and recommendations","volume-title":"Mov Disord","author":"Movement Disorder Society Task Force on Rating Scales for Parkinson\u2019s Disease"},{"key":"2025102205564186600_ref31","doi-asserted-by":"crossref","DOI":"10.1093\/ageing\/26.5.353","article-title":"The parkinson\u2019s disease questionnaire (PDQ-39): Development and validation of a parkinson\u2019s disease summary index score","volume-title":"Age Aging","author":"Jenkinson\u2019","year":"1997"},{"key":"2025102205564186600_ref32","first-page":"859","volume-title":"International Review of Neurobiology","author":"Bhattacharyya","year":"2017"},{"issue":"3","key":"2025102205564186600_ref33","doi-asserted-by":"publisher","first-page":"361","DOI":"10.1007\/s00702-016-1655-x","article-title":"Discussing sexuality with patients with Parkinson\u2019s disease: a survey among Dutch neurologists","volume":"124","author":"van Hees","year":"2017","journal-title":"J Neural Transm"},{"key":"2025102205564186600_ref34","author":"National Institute of Neurological Disorders and Stroke","year":"2023"},{"issue":"1","key":"2025102205564186600_ref35","doi-asserted-by":"publisher","first-page":"352","DOI":"10.1186\/s12905-023-02501-1","article-title":"Prevalence and risk of developing sexual dysfunction in women with multiple sclerosis (MS): a systematic review and meta-analysis","volume":"23","author":"Yazdani","year":"2023","journal-title":"BMC Womens Health"},{"issue":"5","key":"2025102205564186600_ref36","doi-asserted-by":"publisher","first-page":"289","DOI":"10.1111\/j.1600-0404.2009.01314.x","article-title":"Female sexuality in multiple sclerosis: the multidimensional nature of the problem and the intervention","volume":"121","author":"Bronner","year":"2010","journal-title":"Acta Neurol Scand"},{"issue":"2","key":"2025102205564186600_ref37","doi-asserted-by":"publisher","first-page":"96","DOI":"10.1038\/ncpuro1298","article-title":"Sexual dysfunction in patients with multiple sclerosis: a multidisciplinary approach to evaluation and management","volume":"6","author":"Fletcher","year":"2008","journal-title":"Nat Clin Pract Urol"},{"key":"2025102205564186600_ref38","doi-asserted-by":"publisher","first-page":"104672","DOI":"10.1016\/j.msard.2023.104672","article-title":"Sexual problems in MS: sex differences and their impact on quality of life","volume":"74","author":"Kaplan","year":"2023","journal-title":"Mult Scler Relat Disord"},{"issue":"4","key":"2025102205564186600_ref39","doi-asserted-by":"publisher","first-page":"302","DOI":"10.1080\/00224490209552154","article-title":"Relationship functioning and sexuality among people with multiple sclerosis","volume":"39","author":"McCabe","year":"2002","journal-title":"J Sex Res"},{"issue":"9","key":"2025102205564186600_ref40","doi-asserted-by":"publisher","first-page":"1172","DOI":"10.1093\/jsxmed\/qdad100","article-title":"Sexuality experiences of women with multiple sclerosis reporting overactive bladder: a qualitative study","volume":"20","author":"Dunya","year":"2023","journal-title":"J Sex Med"},{"issue":"6","key":"2025102205564186600_ref41","doi-asserted-by":"publisher","first-page":"2215","DOI":"10.3390\/jcm12062215","article-title":"Sexual dysfunction in people with multiple sclerosis: the role of disease severity, illness perception, and depression","volume":"12","author":"Scandurra","year":"2023","journal-title":"J Clin Med"},{"issue":"4","key":"2025102205564186600_ref42","doi-asserted-by":"publisher","first-page":"991","DOI":"10.1111\/ene.15696","article-title":"Sexual dysfunction in female and male people with multiple sclerosis: disability, depression and hormonal status matter","volume":"30","author":"Di Pauli","year":"2023","journal-title":"Eur J Neurol"},{"issue":"5","key":"2025102205564186600_ref43","doi-asserted-by":"publisher","first-page":"610","DOI":"10.1177\/1352458513503598","article-title":"The impact of sexual dysfunction on health-related quality of life in people with multiple sclerosis","volume":"20","author":"Schairer","year":"2014","journal-title":"Mult Scler J"},{"issue":"3","key":"2025102205564186600_ref44","doi-asserted-by":"publisher","first-page":"873","DOI":"10.1007\/s10072-022-06572-0","article-title":"Sexual dysfunction therapeutic approaches in patients with multiple sclerosis: a systematic review","volume":"44","author":"Giannopapas","year":"2023","journal-title":"Neurol Sci"},{"issue":"4","key":"2025102205564186600_ref45","doi-asserted-by":"publisher","first-page":"743","DOI":"10.1016\/j.jsxm.2021.01.178","article-title":"Sexuality and multiple sclerosis: patient and doctor perspectives","volume":"18","author":"Altmann","year":"2021","journal-title":"Journal of Sexual Medicine"},{"issue":"1","key":"2025102205564186600_ref46","doi-asserted-by":"publisher","first-page":"116","DOI":"10.1002\/nau.22884","article-title":"Female sexual dysfunction in multiple sclerosis: results of a survey among Dutch urologists and patients","volume":"36","author":"Scheepe","year":"2017","journal-title":"Neurourol Urodyn"},{"issue":"6","key":"2025102205564186600_ref47","doi-asserted-by":"publisher","first-page":"947","DOI":"10.1016\/j.apmr.2016.01.005","article-title":"Evaluation of sexual dysfunction in men with spinal cord injury using the male sexual quotient","volume":"97","author":"Miranda","year":"2016","journal-title":"Arch Phys Med Rehabil"},{"key":"2025102205564186600_ref48","first-page":"387","volume-title":"Prog Brain Res","author":"Elliott","year":"2006"},{"issue":"1","key":"2025102205564186600_ref49","doi-asserted-by":"publisher","first-page":"57","DOI":"10.1310\/sci2301-57","article-title":"Improving sexual satisfaction in persons with spinal cord injuries: collective wisdom","volume":"23","author":"Alexander","year":"2017","journal-title":"Top Spinal Cord Inj Rehabil"},{"issue":"10","key":"2025102205564186600_ref50","doi-asserted-by":"publisher","first-page":"1577","DOI":"10.1007\/s00345-018-2347-y","article-title":"Fertility and sexuality in the spinal cord injury patient","volume":"36","author":"Stoffel","year":"2018","journal-title":"World J Urol"},{"issue":"5","key":"2025102205564186600_ref51","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1038\/sj.sc.3101979","article-title":"Spinal cord injury influences psychogenic as well as physical components of female sexual ability","volume":"45","author":"Anderson","year":"2007","journal-title":"Spinal Cord"},{"issue":"11","key":"2025102205564186600_ref52","doi-asserted-by":"publisher","first-page":"1084","DOI":"10.1038\/s41393-018-0188-6","article-title":"Women\u2019s experiences of sexuality after spinal cord injury: a UK perspective","volume":"56","author":"Thrussell","year":"2018","journal-title":"Spinal Cord"},{"key":"2025102205564186600_ref53","first-page":"455","volume-title":"Sexual Function in Spinal Cord Lesioned Men","author":"Biering-S\u00f8rensen","year":"2001"},{"issue":"11","key":"2025102205564186600_ref54","doi-asserted-by":"publisher","first-page":"926","DOI":"10.2340\/16501977-1057","article-title":"Sexual function in a traumatic spinal cord injured population 10-45 years after injury","volume":"44","author":"Biering-S\u00f8rensen","year":"2012","journal-title":"J Rehabil Med"},{"issue":"5","key":"2025102205564186600_ref55","doi-asserted-by":"publisher","first-page":"865","DOI":"10.1016\/j.apmr.2020.11.002","article-title":"Effect of different forms of activity-based recovery training on bladder, bowel, and sexual function after spinal cord injury","volume":"102","author":"Hubscher","year":"2021","journal-title":"Arch Phys Med Rehabil"},{"issue":"4","key":"2025102205564186600_ref56","doi-asserted-by":"publisher","first-page":"225","DOI":"10.1038\/sc.1994.42","article-title":"Sexual adjustment after spinal cord injury (Sci) focusing on partner experiences","volume":"32","author":"Kreuter","year":"1994","journal-title":"Paraplegia"},{"key":"2025102205564186600_ref57","volume-title":"Sexual Rehabilitation after Spinal Cord Injury","author":"Sciud","year":"2016"},{"issue":"21","key":"2025102205564186600_ref58","doi-asserted-by":"publisher","first-page":"1374","DOI":"10.12968\/bjon.2019.28.21.1374","article-title":"Evaluating sexual function education for patients after a spinal cord injury","volume":"28","author":"Rodger","year":"2019","journal-title":"Br J Nurs"},{"issue":"6","key":"2025102205564186600_ref59","doi-asserted-by":"publisher","first-page":"461","DOI":"10.1016\/0260-6917(91)90009-Y","article-title":"Talking about post-injury sexual functioning: the views of people with spinal cord injuries-a qualitative intervew study","volume":"11","author":"Nevin","year":"2021","journal-title":"Int J Nurs Pract"},{"issue":"9","key":"2025102205564186600_ref60","doi-asserted-by":"publisher","first-page":"962","DOI":"10.1016\/j.pmrj.2015.03.008","article-title":"Perceived quality of life with spinal cord injury: a comparison between emergency medicine and physical medicine and rehabilitation physicians","volume":"7","author":"Cushman","year":"2015","journal-title":"PM and R"},{"issue":"sup1","key":"2025102205564186600_ref61","doi-asserted-by":"publisher","first-page":"68","DOI":"10.1080\/10790268.2019.1612642","article-title":"Conception and development of sexual health indicators to advance the quality of spinal cord injury rehabilitation: SCI-high project","volume":"42","author":"Elliott","year":"2019","journal-title":"J Spinal Cord Med"},{"issue":"4","key":"2025102205564186600_ref62","doi-asserted-by":"publisher","first-page":"187","DOI":"10.12968\/bjnn.2013.9.4.187","article-title":"An overview of traumatic spinal cord injury: part 3. Rehabilitation","volume":"9","author":"Saif","year":"2013","journal-title":"Br J Neurosci Nurs"},{"issue":"2","key":"2025102205564186600_ref63","doi-asserted-by":"publisher","first-page":"6902260030p1","DOI":"10.5014\/ajot.2015.015040","article-title":"\u201cDon\u2019t think paralysis takes away your womanhood\u201d: sexual intimacy after spinal cord injury","volume":"69","author":"Fritz","year":"2015","journal-title":"The American Journal of Occupational Therapy"},{"issue":"4","key":"2025102205564186600_ref64","doi-asserted-by":"publisher","first-page":"211","DOI":"10.1179\/2045772312Y.0000000025","article-title":"Impact of spinal cord injury on sexuality: broad-based clinical practice intervention and practical application","volume":"35","author":"Hess","year":"2012","journal-title":"J Spinal Cord Med"},{"issue":"12","key":"2025102205564186600_ref65","doi-asserted-by":"publisher","first-page":"842","DOI":"10.1038\/sc.2010.36","article-title":"Sexual rehabilitation in women with spinal cord injury: a critical review of the literature","volume":"48","author":"Lombardi","year":"2010","journal-title":"Spinal Cord"},{"issue":"8","key":"2025102205564186600_ref66","doi-asserted-by":"publisher","first-page":"584","DOI":"10.1038\/sc.2015.216","article-title":"Development of a comprehensive survey of sexuality issues including a self-report version of the international spinal cord injury sexual function basic data sets","volume":"54","author":"New","year":"2016","journal-title":"Spinal Cord"},{"issue":"3","key":"2025102205564186600_ref67","doi-asserted-by":"publisher","first-page":"281","DOI":"10.1080\/10790268.2010.11689709","article-title":"Sexuality and Reproductive health in adults with spinal cord injury","volume":"33","year":"2010","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2025102205564186600_ref68","doi-asserted-by":"publisher","first-page":"303","DOI":"10.1080\/14681990600754559","article-title":"Training in sexology for medical and paramedical professionals: a model for the rehabilitation setting","volume":"21","author":"Gianotten","year":"2006","journal-title":"Sex Relatsh Ther"},{"issue":"6","key":"2025102205564186600_ref69","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups","volume":"19","author":"Tong","year":"2007","journal-title":"Int J Qual Health Care"},{"issue":"10","key":"2025102205564186600_ref70","doi-asserted-by":"publisher","first-page":"53","DOI":"10.7748\/ns2013.11.28.10.53.e7654","article-title":"Promoting sexual health and wellbeing: the role of the nurse","volume":"28","author":"Evans","year":"2013","journal-title":"Nurs Stand"},{"issue":"1","key":"2025102205564186600_ref71","doi-asserted-by":"publisher","first-page":"49","DOI":"10.1310\/sci2301-49","article-title":"A multidisciplinary approach to sexual and fertility rehabilitation: the sexual rehabilitation framework","volume":"23","author":"Elliott","year":"2017","journal-title":"Top Spinal Cord Inj Rehabil"},{"issue":"3-4","key":"2025102205564186600_ref72","doi-asserted-by":"publisher","first-page":"313","DOI":"10.3233\/PRM-170462","article-title":"Sexual identity and orientation in adult men and women with spina bifida","volume":"10","author":"Szymanski","year":"2017","journal-title":"J Pediatr Rehabil Med"},{"issue":"5","key":"2025102205564186600_ref73","doi-asserted-by":"publisher","first-page":"979","DOI":"10.1016\/j.apmr.2004.10.042","article-title":"Sex education, relationships, and sexuality in young adults with spina bifida","volume":"86","author":"Verhoef","year":"2005","journal-title":"Arch Phys Med Rehabil"},{"issue":"5","key":"2025102205564186600_ref74","doi-asserted-by":"publisher","first-page":"1785","DOI":"10.1002\/nau.23525","article-title":"Sexual function and qualify of life in women with spina bifida: are the women with spina bifida satisfied with their sexual activity?","volume":"37","author":"Choi","year":"2018","journal-title":"Neurourol Urodyn"},{"issue":"4S","key":"2025102205564186600_ref75","doi-asserted-by":"publisher","first-page":"1611","DOI":"10.1016\/j.juro.2007.03.162","article-title":"Sexual function in adult patients with spina bifida and its impact on quality of life","volume":"178","author":"Lassmann","year":"2007","journal-title":"J Urol"},{"issue":"10","key":"2025102205564186600_ref76","doi-asserted-by":"publisher","first-page":"1323","DOI":"10.1111\/j.1442-2042.2006.01559.x","article-title":"Sexuality and seeking medical help for erectile dysfunction in young adults with spina bifida","volume":"13","author":"Shiomi","year":"2006","journal-title":"Int J Urol"},{"issue":"3","key":"2025102205564186600_ref77","doi-asserted-by":"publisher","first-page":"566","DOI":"10.1016\/j.urology.2005.09.014","article-title":"Evaluation of sexual function in young men with spina bifida and myelomeningocele using the international index of erectile function","volume":"67","author":"Gam\u00e9","year":"2006","journal-title":"Urology"},{"issue":"6","key":"2025102205564186600_ref78","doi-asserted-by":"publisher","first-page":"420","DOI":"10.1017\/S0012162204000684","article-title":"Secondary impairments in young adults with spina bifida","volume":"46","author":"Verhoef","year":"2004","journal-title":"Dev Med Child Neurol"},{"issue":"10","key":"2025102205564186600_ref79","doi-asserted-by":"publisher","first-page":"S0012162299001383","DOI":"10.1017\/S0012162299001383","article-title":"Sexual and reproductive health in young people with spina bifida","volume":"41","author":"Sawyer","year":"1999","journal-title":"Dev Med Child Neurol"},{"key":"2025102205564186600_ref80","doi-asserted-by":"publisher","first-page":"1466","DOI":"10.1097\/00005392-199704000-00105","volume-title":"Reproductive understanding, sexuality and testosterone in spina bifida","author":"Decter","year":"1997"},{"issue":"9","key":"2025102205564186600_ref81","doi-asserted-by":"publisher","first-page":"1694","DOI":"10.1016\/j.jsxm.2020.05.026","article-title":"\u201cI tell them what I can feel and how far my legs can bend\u201d: optimizing sexual satisfaction for women with spina bifida","volume":"17","author":"Streur","year":"2020","journal-title":"J Sex Med"},{"key":"2025102205564186600_ref82","doi-asserted-by":"publisher","first-page":"273","DOI":"10.1016\/j.urology.2016.06.026","article-title":"Characterizing pelvic organ prolapse in adult spina bifida patients","volume":"97","author":"Liu","year":"2016","journal-title":"Urology"},{"key":"2025102205564186600_ref83","doi-asserted-by":"publisher","first-page":"79","DOI":"10.1016\/j.urology.2020.05.092","article-title":"Let\u2019s talk about sex: special considerations in Reproductive care and sexual education in young women with spina bifida","volume":"151","author":"Tong","year":"2021","journal-title":"Urology"},{"issue":"8","key":"2025102205564186600_ref84","doi-asserted-by":"publisher","first-page":"1105","DOI":"10.1111\/dmcn.15494","article-title":"Sexual and reproductive health education for patients with myelomeningocele","volume":"65","author":"Lutz","year":"2023","journal-title":"Dev Med Child Neurol"},{"issue":"3","key":"2025102205564186600_ref85","doi-asserted-by":"publisher","first-page":"538","DOI":"10.1097\/JU.0000000000003556","article-title":"\u201cI just haven\u2019t done any of that\u201d: applicability of the international index of erectile function in young men with spina bifida","volume":"210","author":"Rague","year":"2023","journal-title":"J Urol"},{"issue":"10","key":"2025102205564186600_ref86","doi-asserted-by":"publisher","first-page":"1403","DOI":"10.1016\/j.jsxm.2018.08.001","article-title":"\u201cI Don\u2019t know what I\u2019m doing\u2026 I hope I\u2019m not just an idiot\u201d: the need to train Pediatric urologists to discuss sexual and Reproductive health care with young women with spina bifida","volume":"15","author":"Streur","year":"2018","journal-title":"Journal of Sexual Medicine"},{"issue":"3","key":"2025102205564186600_ref87","doi-asserted-by":"publisher","first-page":"389","DOI":"10.1111\/dmcn.15709","article-title":"Male perspectives on clinical communication about sexual health in spina bifida","volume":"66","author":"Rague","year":"2023","journal-title":"Dev Med Child Neurol"},{"issue":"2","key":"2025102205564186600_ref88","doi-asserted-by":"publisher","first-page":"285","DOI":"10.3233\/PRM-210020","article-title":"Women with cerebral palsy: a qualitative study about their experiences with sexual and reproductive health education and services","volume":"14","author":"Gray","year":"2021","journal-title":"J Pediatr Rehabil Med"},{"issue":"9","key":"2025102205564186600_ref89","doi-asserted-by":"publisher","first-page":"891","DOI":"10.2340\/16501977-1863","article-title":"Spina bifida and sexuality","volume":"46","author":"Linstow","year":"2014","journal-title":"J Rehabil Med"},{"issue":"4","key":"2025102205564186600_ref90","doi-asserted-by":"publisher","first-page":"655","DOI":"10.3233\/PRM-200757","article-title":"Women\u2019s health guidelines for the care of people with spina bifida","volume":"13","author":"Berndl","year":"2020","journal-title":"J Pediatr Rehabil Med"},{"issue":"12","key":"2025102205564186600_ref91","doi-asserted-by":"publisher","first-page":"1766","DOI":"10.1016\/j.jsxm.2022.08.201","article-title":"Solo and partnered sexual behavior among an international sample of adults with spina bifida","volume":"19","author":"Hensel","year":"2022","journal-title":"Journal of Sexual Medicine"},{"issue":"3","key":"2025102205564186600_ref92","doi-asserted-by":"publisher","first-page":"161","DOI":"10.1097\/JNN.0000000000000367","article-title":"Sexual function in young individuals with multiple sclerosis: does disability matter?","volume":"50","author":"Calabr\u00f2","year":"2018","journal-title":"J Neurosci Nurs"},{"issue":"1","key":"2025102205564186600_ref93","doi-asserted-by":"publisher","first-page":"40","DOI":"10.1002\/ddrr.90","article-title":"Psychosocial and family functioning in spina bifida","volume":"16","author":"Holmbeck","year":"2010","journal-title":"Dev Disabil Res Rev"},{"issue":"9","key":"2025102205564186600_ref94","doi-asserted-by":"publisher","first-page":"910","DOI":"10.1093\/jpepsy\/jsw092","article-title":"Testing the utility of a bio-Neuropsychosocial model for predicting medical adherence and responsibility during early adolescence in youth with spina bifida","volume":"42","author":"Psihogios","year":"2017","journal-title":"J Pediatr Psychol"},{"issue":"3","key":"2025102205564186600_ref95","doi-asserted-by":"publisher","first-page":"189","DOI":"10.1007\/s11920-996-0006-2","article-title":"Prevalence and risk factors of sexual dysfunction in men and women definitions and outcomes","volume":"2","author":"Rosen","year":"2000","journal-title":"Curr Psychiatry Rep"},{"issue":"4","key":"2025102205564186600_ref96","doi-asserted-by":"publisher","first-page":"226","DOI":"10.1038\/sj.ijir.3900857","article-title":"The international index of erectile function (IIEF): a state-of-the-science review","volume":"14","author":"Rosen","year":"2002","journal-title":"Int J Impot Res Published online"},{"issue":"3","key":"2025102205564186600_ref97","doi-asserted-by":"publisher","first-page":"S129","DOI":"10.1016\/j.fertnstert.2009.07.1173","article-title":"The female sexual function index (FSFI): a potential \u201cgold standard\u201d measure for assessing therapeutically-induced change in female sexual function","volume":"92","author":"Sand","year":"2009","journal-title":"Fertil Steril"},{"issue":"7","key":"2025102205564186600_ref98","doi-asserted-by":"publisher","first-page":"518","DOI":"10.1111\/j.1747-4949.2011.00758.x","article-title":"Sex after stroke: a content analysis of printable educational materials available online","volume":"8","author":"Hamam","year":"2013","journal-title":"Int J Stroke"},{"key":"2025102205564186600_ref99","volume-title":"Ultimate Guide to Sex and Disability: For all of us Who Live with Disabilities, Chronic Pain, and Illness","author":"Kaufman","year":"2007"},{"issue":"6","key":"2025102205564186600_ref100","doi-asserted-by":"publisher","first-page":"1625","DOI":"10.1002\/nau.24024","article-title":"Are EAU\/ESPU pediatric urology guideline recommendations on neurogenic bladder well received by the patients? Results of a survey on awareness in spina bifida patients and caregivers","volume":"38","author":"Dogan","year":"2019","journal-title":"Neurourol Urodyn"},{"issue":"3","key":"2025102205564186600_ref101","doi-asserted-by":"publisher","first-page":"136","DOI":"10.1016\/j.dhjo.2012.03.003","article-title":"Training physicians about caring for persons with disabilities: \u201cnothing about us without us!\u201d","volume":"5","author":"Iezzoni","year":"2012","journal-title":"Disabil Health J"}],"container-title":["Sexual Medicine Reviews"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/academic.oup.com\/smr\/article-pdf\/13\/4\/674\/63447478\/qeaf026.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/smr\/article-pdf\/13\/4\/674\/63447478\/qeaf026.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T09:56:52Z","timestamp":1761127012000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/smr\/article\/13\/4\/674\/8158027"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,6,6]]},"references-count":101,"journal-issue":{"issue":"4","published-online":{"date-parts":[[2025,6,6]]},"published-print":{"date-parts":[[2025,10,4]]}},"URL":"https:\/\/doi.org\/10.1093\/sxmrev\/qeaf026","relation":{},"ISSN":["2050-0513","2050-0521"],"issn-type":[{"value":"2050-0513","type":"print"},{"value":"2050-0521","type":"electronic"}],"subject":[],"published-other":{"date-parts":[[2025,10]]},"published":{"date-parts":[[2025,6,6]]}}}