{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,29]],"date-time":"2026-06-29T04:23:58Z","timestamp":1782707038451,"version":"3.54.5"},"reference-count":41,"publisher":"Oxford University Press (OUP)","issue":"3","license":[{"start":{"date-parts":[[2021,1,7]],"date-time":"2021-01-07T00:00:00Z","timestamp":1609977600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000056","name":"National Institute of Nursing Research","doi-asserted-by":"publisher","award":["NR016575"],"award-info":[{"award-number":["NR016575"]}],"id":[{"id":"10.13039\/100000056","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100015690","name":"South Carolina Clinical and Translational Research Institute","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100015690","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/100006942","name":"Medical University of South Carolina","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100006942","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006108","name":"National Center for Advancing Translational Sciences","doi-asserted-by":"publisher","award":["KL2 TR001452"],"award-info":[{"award-number":["KL2 TR001452"]}],"id":[{"id":"10.13039\/100006108","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006108","name":"National Center for Advancing Translational Sciences","doi-asserted-by":"publisher","award":["UL1 TR001450"],"award-info":[{"award-number":["UL1 TR001450"]}],"id":[{"id":"10.13039\/100006108","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2021,4,7]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:p>Sickle cell disease (SCD) is an inherited hemoglobinopathy that leads to blood vessel occlusion and multiorgan complications, including pain, that may be experienced daily. Symptom management often begins at home, and tools are needed to support self-management strategies that can be implemented by children with SCD and families. The purpose of this study was to assess the feasibility of the mHealth self-management intervention (application) Voice Crisis Alert V2 for children with SCD and families. Feasibility assessment was guided by the Reach, Efficacy, Adoption, Implementation, and Maintenance framework. Data were collected with 60 dyads (children with SCD\/caregivers) at four time points. Self-management data were collected via application use, and postintervention interviews were conducted. Analyses included descriptive statistics and constant comparison with directed content analysis. Recruitment was completed in 28 weeks, with 82% retention at end-of-intervention. Mobile Application Rating Scale scores and interview data indicated high satisfaction. From baseline to mid-intervention, 94% of dyads used the application (75% of total use); 45% used the application from mid-intervention to the end-of-intervention. Dyads made 2,384 actions in the application; the most commonly used features were recording health history and recording and tracking symptoms. Few reported issues with the application; most issues occurred early in the study and were corrected. After the intervention period was completed, 37% continued to use the application. Feasibility was confirmed by meeting recruitment and retention goals, high adoption of the application, and high reported satisfaction with the application. Challenges with sustained use were encountered, and areas for improvement were identified.<\/jats:p>","DOI":"10.1093\/tbm\/ibaa132","type":"journal-article","created":{"date-parts":[[2021,1,13]],"date-time":"2021-01-13T17:27:06Z","timestamp":1610558826000},"page":"724-732","source":"Crossref","is-referenced-by-count":14,"title":["Feasibility of an mHealth self-management intervention for children and adolescents with sickle cell disease and their families"],"prefix":"10.1093","volume":"11","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5697-9156","authenticated-orcid":false,"given":"Shannon","family":"Phillips","sequence":"first","affiliation":[{"name":"College of Nursing, Medical University of South Carolina, Charleston, SC, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julie","family":"Kanter","sequence":"additional","affiliation":[{"name":"Division of Hematology and Oncology, University of Alabama Birmingham, Birmingham, AL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martina","family":"Mueller","sequence":"additional","affiliation":[{"name":"College of Nursing, Medical University of South Carolina, Charleston, SC, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amy","family":"Gulledge","sequence":"additional","affiliation":[{"name":"College of Nursing, Medical University of South Carolina, Charleston, SC, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kenneth","family":"Ruggiero","sequence":"additional","affiliation":[{"name":"College of Nursing, Medical University of South Carolina, Charleston, SC, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary","family":"Johnson","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Medical University of South Carolina, Charleston, SC, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Teresa J","family":"Kelechi","sequence":"additional","affiliation":[{"name":"College of Nursing, Medical University of South Carolina, Charleston, SC, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2021,1,7]]},"reference":[{"key":"2021041002514765400_CIT0001","doi-asserted-by":"crossref","first-page":"S512","DOI":"10.1016\/j.amepre.2009.12.022","article-title":"Population estimates of sickle cell disease in the U.S","volume":"38","author":"Hassell","year":"2010","journal-title":"Am J Prev Med."},{"issue":"9757","key":"2021041002514765400_CIT0002","doi-asserted-by":"crossref","first-page":"2018","DOI":"10.1016\/S0140-6736(10)61029-X","article-title":"Sickle-cell disease","volume":"376","author":"Rees","year":"2010","journal-title":"Lancet."},{"issue":"(23)","key":"2021041002514765400_CIT0003","doi-asserted-by":"crossref","first-page":"1639","DOI":"10.1056\/NEJM199406093302303","article-title":"Mortality in sickle cell disease\u2014Life expectancy and risk factors for early death","volume":"330","author":"Platt","year":"1994","journal-title":"N Engl J Med."},{"issue":"6","key":"2021041002514765400_CIT0004","doi-asserted-by":"crossref","first-page":"363","DOI":"10.1097\/01.md.0000189089.45003.52","article-title":"Outcome of sickle cell anemia: A 4-decade observational study of 1056 patients","volume":"84","author":"Powars","year":"2005","journal-title":"Medicine (Baltim)."},{"issue":"(1)","key":"2021041002514765400_CIT0005","first-page":"6","article-title":"Definitions of the phenotypic manifestations of sickle cell disease","volume":"85","author":"Ballas","year":"2009","journal-title":"Am J Hematol."},{"issue":"10","key":"2021041002514765400_CIT0006","doi-asserted-by":"crossref","first-page":"346","DOI":"10.1016\/j.cppeds.2006.07.002","article-title":"Sickle cell disease\u2014Pathophysiology and treatment","volume":"36","author":"Redding-Lallinger","year":"2006","journal-title":"Curr Probl Pediatr 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(SMART)","volume":"39","author":"Jonassaint","year":"2015","journal-title":"Hemoglobin."},{"issue":"1","key":"2021041002514765400_CIT0038","doi-asserted-by":"crossref","first-page":"e15093","DOI":"10.2196\/15093","article-title":"Web-based technology to improve disease knowledge among adolescents with sickle cell disease: Pilot study","volume":"3","author":"Saulsberry","year":"2020","journal-title":"JMIR Pediatr Parent."},{"key":"2021041002514765400_CIT0039","doi-asserted-by":"crossref","first-page":"243","DOI":"10.1016\/j.jbi.2016.02.002","article-title":"A user-centered model for designing consumer mobile health (mHealth) applications (apps)","volume":"60","author":"Schnall","year":"2016","journal-title":"J Biomed Inform."},{"issue":"(5)","key":"2021041002514765400_CIT0040","doi-asserted-by":"crossref","first-page":"772","DOI":"10.3390\/su9050772","article-title":"Mobile healthcare applications and gamification for sustained health 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