{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,12]],"date-time":"2025-11-12T21:06:20Z","timestamp":1762981580418,"version":"3.37.3"},"reference-count":49,"publisher":"Oxford University Press (OUP)","issue":"7","license":[{"start":{"date-parts":[[2023,3,31]],"date-time":"2023-03-31T00:00:00Z","timestamp":1680220800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","award":["MS1-173066"],"award-info":[{"award-number":["MS1-173066"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100009192","name":"Alberta Innovates","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100009192","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000156","name":"Fonds de recherche du Qu\u00e9bec \u2013 Sant\u00e9","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000156","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2023,7,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:p>The SPIN-CHAT Program was designed to support mental health among individuals with systemic sclerosis (SSc; commonly known as scleroderma) and at least mild anxiety symptoms at the onset of COVID-19. The program was formally evaluated in the SPIN-CHAT Trial. Little is known about program and trial acceptability, and factors impacting implementation from the perspectives of research team members and trial participants. Thus, the propose of this follow-up study was to explore research team members\u2019 and trial participants\u2019 experiences with the program and trial to identify factors impacting acceptability and successful implementation. Data were collected cross-sectionally through one-on-one, videoconference-based, semi-structured interviews with 22 research team members and 30 purposefully recruited trial participants (Mage = 54.9, SD = 13.0 years). A social constructivist paradigm was adopted, and data were analyzed thematically. Data were organized into seven themes: (i) getting started: the importance of prolonged engagement and exceeding expectations; (ii) designing the program and trial: including multiple features; (iii) training: research team members are critical to positive program and trial experiences; (iv) offering the program and trial: it needs to be flexible and patient-oriented; (v) maximizing engagement: navigating and managing group dynamics; (vi) delivering a videoconference-based supportive care intervention: necessary, appreciated, and associated with some barriers; and (vii) refining the program and trial: considering modification when offered beyond the period of COVID-19 restrictions. Trial participants were satisfied with and found the SPIN-CHAT Program and Trial to be acceptable. Results offer implementation data that can guide the design, development, and refinement of other supportive care programs seeking to promote psychological health during and beyond COVID-19.<\/jats:p>","DOI":"10.1093\/tbm\/ibac091","type":"journal-article","created":{"date-parts":[[2023,3,31]],"date-time":"2023-03-31T12:24:30Z","timestamp":1680265470000},"page":"442-452","source":"Crossref","is-referenced-by-count":1,"title":["Exploring research team members\u2019 and trial participants\u2019 perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: a qualitative interview study"],"prefix":"10.1093","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7804-9811","authenticated-orcid":false,"given":"Amanda","family":"Wurz","sequence":"first","affiliation":[{"name":"School of Kinesiology, University of the Fraser Valley , Chilliwack, BC , Canada"},{"name":"Faculty of 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Institute for Medical Research, Jewish General Hospital , Montreal, QC , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lydia","family":"Tao","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital , Montreal, QC , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9403-492X","authenticated-orcid":false,"given":"Laura","family":"Dyas","sequence":"additional","affiliation":[{"name":"National Scleroderma Foundation, Michigan Chapter , Southfield, MI , USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1573-4504","authenticated-orcid":false,"given":"Linda","family":"Kwakkenbos","sequence":"additional","affiliation":[{"name":"Clinical Psychology, Radboud University , Nijmegen , The Netherlands"},{"name":"Department of Medical Psychology, Radboud Institute for Health Sciences, Radboud University Medical Center , Nijmegen , The Netherlands"},{"name":"IQ Healthcare, Radboud Institute for Health Sciences, Radboud University Medical Center , Nijmegen , The Netherlands"},{"name":"Department of Psychiatry, Radboudumc Center for Mindfulness, Radboud Institute for Health Sciences, Radboud University Medical Center , Nijmegen , The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4310-3689","authenticated-orcid":false,"given":"Brooke","family":"Levis","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital , Montreal, QC , Canada"},{"name":"Department of Epidemiology, Biostatistics, and Occupational Health, McGill University , Montreal, QC , Canada"},{"name":"Centre for Prognosis Research, School of Primary, Community and Social Care, Keele University , Staffordshire , UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7123-5769","authenticated-orcid":false,"given":"Ghassan","family":"El-Baalbaki","sequence":"additional","affiliation":[{"name":"Department of Psychology, Universit\u00e9 du Qu\u00e9bec \u00e0 Montr\u00e9al , Montreal, QC , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5615-7005","authenticated-orcid":false,"given":"Danielle B","family":"Rice","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital , Montreal, QC , Canada"},{"name":"Department of Psychology, McGill University , Montreal, QC , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5527-1746","authenticated-orcid":false,"given":"Yin","family":"Wu","sequence":"additional","affiliation":[{"name":"Department of Psychiatry, McGill University , Montreal, QC , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Richard S","family":"Henry","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital , Montreal, QC , Canada"},{"name":"Department of Psychology, McGill University , Montreal, QC , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laura","family":"Bustamante","sequence":"additional","affiliation":[{"name":"Department of Applied Human Sciences, Concordia University , Montreal, QC , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sami","family":"Harb","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital , Montreal, QC , Canada"},{"name":"Department of Psychiatry, McGill University , Montreal, QC , 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University Health Centre , Montreal, QC , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John","family":"Varga","sequence":"additional","affiliation":[{"name":"University of Michigan , Ann Arbor, MI , USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Luc","family":"Mouthon","sequence":"additional","affiliation":[{"name":"Service de M\u00e9decine Interne, Centre de R\u00e9f\u00e9rence Maladies Auto-immunes et Syst\u00e9miques Rares d\u2019Ile de France, H\u00f4pital Cochin, Assistance Publique, H\u00f4pitaux de Paris (APHP) , Paris , France"},{"name":"APHP-CUP, H\u00f4pital Cochin, Universit\u00e9 de Paris , Paris , France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8755-5935","authenticated-orcid":false,"given":"Sarah","family":"Markham","sequence":"additional","affiliation":[{"name":"Department of Biostatistics and Health Informatics, King\u2019s College London , London , UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5644-8432","authenticated-orcid":false,"given":"Brett D","family":"Thombs","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital , Montreal, QC , Canada"},{"name":"Department of Epidemiology, Biostatistics, and Occupational Health, McGill University , Montreal, QC , Canada"},{"name":"Department of Psychology, McGill University , Montreal, QC , Canada"},{"name":"Department of Medicine, McGill University , Montreal, QC , Canada"},{"name":"Biomedical Ethics Unit, McGill University , Montreal, QC , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3896-7383","authenticated-orcid":false,"given":"S Nicole","family":"Culos-Reed","sequence":"additional","affiliation":[{"name":"Faculty of Kinesiology, University of Calgary , Calgary, AB , Canada"},{"name":"Department of Oncology, Cumming School of Medicine, University of Calgary , Calgary, AB , Canada"},{"name":"Department of Psychosocial Resources, Tom Baker Cancer Centre, Cancer Care, Alberta Health Services , Calgary, AB , Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"name":"SPIN-CHAT Patient Advisory Team","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"name":"Program Facilitators","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2023,3,31]]},"reference":[{"issue":"7887","key":"2023070112505237800_CIT0001","doi-asserted-by":"crossref","first-page":"121","DOI":"10.1038\/s41586-021-04099-6","article-title":"Mental health concerns during the COVID-19 pandemic as revealed by helpline 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