{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,7]],"date-time":"2026-04-07T21:53:13Z","timestamp":1775598793951,"version":"3.50.1"},"reference-count":47,"publisher":"Oxford University Press (OUP)","issue":"4","license":[{"start":{"date-parts":[[2019,7,27]],"date-time":"2019-07-27T00:00:00Z","timestamp":1564185600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"DOI":"10.13039\/501100000739","name":"University of Southampton","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000739","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100013962","name":"Solent NHS Trust","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100013962","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Programa Operacional de Competitividade e Internacionaliza\u00e7\u00e3o"},{"DOI":"10.13039\/501100008530","name":"Fundo Europeu de Desenvolvimento Regional","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100008530","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001871","name":"Funda\u00e7\u00e3o para a Ci\u00eancia e Tecnologia","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100001871","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2020,5,15]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background and Objectives<\/jats:title>\n                    <jats:p>A core outcome set (COS) to evaluate physical activity (PA) interventions for people living with dementia is needed, as the development of guidelines is currently limited by important heterogeneity in this field of research. Development of COS often includes Delphi surveys, but people living with dementia are often excluded. This study aimed to reach consensus on this COS using a modified Delphi survey to enable the participation of people living with dementia.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Research Design and Methods<\/jats:title>\n                    <jats:p>Two stakeholders groups took part in a Delphi survey (Group 1: people living with dementia and family caregivers; Group 2: professionals from different backgrounds, including physiotherapists, occupational therapists, and researchers). Caregivers and professionals completed the survey remotely. Participants living with dementia took part face-to-face, using a card sorting strategy. The consensus process was finalized with a consensus meeting.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Ninety-five participants of both groups completed the modified Delphi. Of those, 11 attended the consensus meeting. The card sorting strategy was successful at including people living with dementia. Seven outcomes reached consensus: preventing falls; doing what you can do; staying healthy and fit; walking better, being able to stand up and climb stairs; feeling brighter; enjoying the moment; and, feeling useful and having a purpose.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion and Implications<\/jats:title>\n                    <jats:p>Robust and innovative methodological strategies were used to reach a consensus on a COS (what to measure) to evaluate PA for people living with dementia. Future work will focus on the selection of the most appropriate tools to measure these outcomes (how to measure).<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1093\/geront\/gnz100","type":"journal-article","created":{"date-parts":[[2019,6,27]],"date-time":"2019-06-27T07:08:36Z","timestamp":1561619316000},"page":"682-692","source":"Crossref","is-referenced-by-count":13,"title":["A Core Outcome Set to Evaluate Physical Activity Interventions for People Living With Dementia"],"prefix":"10.1093","volume":"60","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4055-0894","authenticated-orcid":false,"given":"Ana-Carolina","family":"Gon\u00e7alves","sequence":"first","affiliation":[{"name":"School of Health Sciences, Faculty of Environmental and Life Sciences, University of Southampton ,","place":["UK"]},{"name":"Research and Development, Solent NHS Trust , Southampton,","place":["UK"]}]},{"given":"Dinesh","family":"Samuel","sequence":"additional","affiliation":[{"name":"School of Health Sciences, Faculty of Environmental and Life Sciences, University of Southampton ,","place":["UK"]}]},{"given":"Mary","family":"Ramsay","sequence":"additional","affiliation":[{"name":"Research and Development, Solent NHS Trust , Southampton,","place":["UK"]}]},{"given":"Sara","family":"Demain","sequence":"additional","affiliation":[{"name":"Peninsula Allied Health Centre, School of Health Professions, University of Plymouth ,","place":["UK"]}]},{"given":"Alda","family":"Marques","sequence":"additional","affiliation":[{"name":"School of Health Sciences (ESSUA) and Institute of Biomedicine (iBiMED), University of Aveiro , Aveiro,","place":["Portugal"]}]}],"member":"286","published-online":{"date-parts":[[2019,7,27]]},"reference":[{"key":"2026010623021876300_CIT0001","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1186\/1471-2288-5-37","article-title":"Stability of response characteristics of a Delphi panel: Application of bootstrap data expansion","volume":"5","author":"Akins","year":"2005","journal-title":"BMC Medical Research Methodology"},{"key":"2026010623021876300_CIT0002","doi-asserted-by":"crossref","first-page":"1143","DOI":"10.1136\/archdischild-2017-312901","article-title":"NETS1HD study: Development of a Hirschsprung\u2019s disease core outcome set","volume":"102","author":"Allin","year":"2017","journal-title":"Archives of Disease in Childhood"},{"key":"2026010623021876300_CIT0003","volume-title":"World Alzheimer report 2015: The global impact of dementia\u2014An analysis of prevalence, incidence, cost and trends","author":"Alzheimer\u2019s Disease International","year":"2015"},{"key":"2026010623021876300_CIT0004","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1186\/s12877-015-0008-1","article-title":"What should we know about dementia in the 21st century? 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