{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,5]],"date-time":"2026-01-05T21:48:43Z","timestamp":1767649723816,"version":"3.41.0"},"reference-count":54,"publisher":"Ovid Technologies (Wolters Kluwer Health)","issue":"6","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2017,11]]},"abstract":"<jats:sec><jats:title>Purpose of review<\/jats:title><jats:p>To review the novel development of standardized clinical outcome measures used in adult patients with idiopathic inflammatory myopathies (IIMs). A further aim was to determine what aspects of IIM are covered by these outcome measures according to the International Classification of Functioning, Disability and Health (ICF).<\/jats:p><\/jats:sec><jats:sec><jats:title>Recent findings<\/jats:title><jats:p>The sporadic inclusion body myositis functional assessment (sIFA) is the first diagnosis-specific patient-driven patient-reported outcome measure. The adult myositis assessment tool (AMAT) is a new outcome measure assessing physical performance. Also, new criteria to assess response to treatment have been presented for both adults and children with IIM. The ICF provides a standardized frame and structure to report outcome, including functional disability. Using this framework, it is evident that there is a lack of validated patient-reported outcome measures to assess disease aspects important to patient, and that no studies have evaluated life-style factors such as physical activity in these patients.<\/jats:p><\/jats:sec><jats:sec><jats:title>Summary<\/jats:title><jats:p>The sIFA will ensure patient-relevant patient-reported assessment of activity limitations in patients with inclusion body myositis. The AMAT is a partly validated tool that needs to be used in clinical trials for further validation. The response criteria will enhance assessment of individual response to different treatments.<\/jats:p><\/jats:sec>","DOI":"10.1097\/bor.0000000000000433","type":"journal-article","created":{"date-parts":[[2017,8,8]],"date-time":"2017-08-08T20:28:39Z","timestamp":1502224119000},"page":"591-597","source":"Crossref","is-referenced-by-count":7,"title":["Novel insights of disability assessment in adult myositis"],"prefix":"10.1097","volume":"29","author":[{"given":"Hector Fabricio","family":"Espinosa-Ortega","sequence":"first","affiliation":[{"name":"Department of Medicine, Rheumatology Unit, Karolinska Institutet, Stockholm, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mariana","family":"Moreno-Ramirez","sequence":"additional","affiliation":[{"name":"Department of Internal Medicine, Hospital Central Sur de Alta Especialidad, Petr\u00f3leos Mexicanos, Mexico"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Helene","family":"Alexanderson","sequence":"additional","affiliation":[{"name":"Division of Physiotherapy, Department of NVS, Karolinska Institutet, Huddinge"},{"name":"Functional Area Occupational Therapy and Physical Therapy, Karolinska University Hospital, Stockholm, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"276","reference":[{"key":"R1-20230829","doi-asserted-by":"crossref","first-page":"297","DOI":"10.1038\/nrrheum.2011.39","article-title":"Pathogenesis, classification and treatment of inflammatory myopathies","volume":"7","author":"Zong","year":"2011","journal-title":"Nat Rev Rheumatol"},{"key":"R2-20230829","doi-asserted-by":"crossref","first-page":"273","DOI":"10.1007\/s11926-007-0044-8","article-title":"Inflammatory muscle disease: clinical presentation and assessment of patients","volume":"9","author":"Alexanderson","year":"2007","journal-title":"Curr Rheumatol Rep"},{"key":"R3-20230829","doi-asserted-by":"crossref","first-page":"581","DOI":"10.3899\/jrheum.131247","article-title":"Patient-reported outcomes and adult patients\u2019 disease experience in the idiopathic inflammatory myopathies. 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