{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T16:51:30Z","timestamp":1791564690178,"version":"4.3.4"},"reference-count":44,"publisher":"Ovid Technologies (Wolters Kluwer Health)","issue":"6","content-domain":{"domain":["lww.com","ovid.com"],"crossmark-restriction":true},"short-container-title":[],"published-print":{"date-parts":[[2026,11]]},"abstract":"\n Background:<\/jats:title>\n Congenital heart disease requires complex care, placing mothers at risk of high burden and low self-efficacy. Family-centered care (FCC), emphasizing collaboration with healthcare providers, may alleviate these challenges. However, its predictive role in the Turkish context remains underexplored.<\/jats:p>\n <\/jats:sec>\n \n Methods:<\/jats:title>\n This cross-sectional, descriptive correlational study included mothers of 131 children aged 0 to 2 years who were followed at a pediatric cardiac surgery unit. Data were collected using the FCC Scale, Zarit Caregiving Burden Scale, and Parental Self-Efficacy Scale. Analyses involved descriptive statistics, Pearson correlations, and multiple linear regression.<\/jats:p>\n <\/jats:sec>\n \n Results:<\/jats:title>\n \n Lower FCC perceptions were strongly associated with higher caregiving burden and lower parental self-efficacy. For caregiving burden, Model 1 explained 58.7% of the variance (adjusted\n R<\/jats:italic>\n 2<\/jats:sup>\n = 0.587;\n F<\/jats:italic>\n (5, 82) = 25.718,\n P<\/jats:italic>\n < .001). Significant predictors were extended family structure (\n \u03b2<\/jats:italic>\n = 0.235,\n P<\/jats:italic>\n = .002) and lower FCC perception (\n \u03b2<\/jats:italic>\n = \u22120.744,\n P<\/jats:italic>\n < .001). For parental self-efficacy, Model 2 explained 60.1% of the variance (adjusted\n R<\/jats:italic>\n 2<\/jats:sup>\n = 0.601;\n F<\/jats:italic>\n (10, 78) = 14.231,\n P<\/jats:italic>\n < .001). Significant predictors were urban residence (\n \u03b2<\/jats:italic>\n = 0.189,\n P<\/jats:italic>\n = .012), greater illness knowledge (\n \u03b2<\/jats:italic>\n = 0.184,\n P<\/jats:italic>\n = .019), and higher FCC perception (\n \u03b2<\/jats:italic>\n = 0.643,\n P<\/jats:italic>\n < .001). FCC emerged as the strongest predictor in both models.\n <\/jats:p>\n <\/jats:sec>\n \n Conclusion:<\/jats:title>\n Mothers\u2019 perceptions of FCC emerged as a key determinant of caregiving outcomes, demonstrating a protective role by reducing burden and enhancing self-efficacy.<\/jats:p>\n <\/jats:sec>\n \n Implication for Practice:<\/jats:title>\n Integrating FCC into pediatric cardiology as a standard of care\u2014through clear communication, tailored education, perioperative support, and telehealth for rural families\u2014can promote maternal resilience, reduce caregiving stress, and improve child health outcomes.<\/jats:p>\n <\/jats:sec>","DOI":"10.1097\/jcn.0000000000001366","type":"journal-article","created":{"date-parts":[[2026,7,14]],"date-time":"2026-07-14T20:04:10Z","timestamp":1784059450000},"page":"e657-E666","update-policy":"https:\/\/doi.org\/10.1097\/lww.0000000000001000","source":"Crossref","is-referenced-by-count":0,"title":["Family-Centered Care and Sociodemographic Characteristics as Predictors of Caregiving Burden and Parental Self-Efficacy in Mothers of Infants With Congenital Heart Disease"],"prefix":"10.1097","volume":"41","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1574-4673","authenticated-orcid":false,"given":"Ay\u015fe","family":"Ay","sequence":"first","affiliation":[{"name":"Ay\u015fe Ay, RN, PhD, Associate Professor, Department of Nursing, Faculty of Health Sciences, Ba\u015fkent University, Ankara, Turkey. \u0130l\u00e7im Ercan Koyuncu, RN, PhD, Assistant Professor, Department of Nursing, Faculty of Health Sciences, Ba\u015fkent University, Ankara, Turkey. Asli Akdeniz Kudube\u015f, RN, PhD, Associate Professor, Department of Pediatric Nursing, Faculty of Health Sciences, Bilecik \u015eeyh Edebali University, Bilecik, Turkey."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7604-8447","authenticated-orcid":false,"given":"\u0130l\u00e7im","family":"Ercan-Koyuncu","sequence":"additional","affiliation":[{"name":"Ay\u015fe Ay, RN, PhD, Associate Professor, Department of Nursing, Faculty of Health Sciences, Ba\u015fkent University, Ankara, Turkey. \u0130l\u00e7im Ercan Koyuncu, RN, PhD, Assistant Professor, Department of Nursing, Faculty of Health Sciences, Ba\u015fkent University, Ankara, Turkey. Asli Akdeniz Kudube\u015f, RN, PhD, Associate Professor, Department of Pediatric Nursing, Faculty of Health Sciences, Bilecik \u015eeyh Edebali University, Bilecik, Turkey."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0911-8182","authenticated-orcid":false,"given":"Asli","family":"Akdeniz Kudube\u015f","sequence":"additional","affiliation":[{"name":"Ay\u015fe Ay, RN, PhD, Associate Professor, Department of Nursing, Faculty of Health Sciences, Ba\u015fkent University, Ankara, Turkey. \u0130l\u00e7im Ercan Koyuncu, RN, PhD, Assistant Professor, Department of Nursing, Faculty of Health Sciences, Ba\u015fkent University, Ankara, Turkey. Asli Akdeniz Kudube\u015f, RN, PhD, Associate Professor, Department of Pediatric Nursing, Faculty of Health Sciences, Bilecik \u015eeyh Edebali University, Bilecik, Turkey."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"276","published-online":{"date-parts":[[2026,7,14]]},"reference":[{"key":"R1-20261009","first-page":"100311","article-title":"Transition readiness in congenital heart disease: are teens and young adults getting the recommended information?","volume":"7","author":"Harrison","year":"2022","journal-title":"Int J Cardiol Congenit Heart Dis"},{"key":"R3-20261009","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1016\/j.ppedcard.2018.10.005","article-title":"Profiles of heart failure in adolescents and young adults with congenital heart disease.","volume":"51","author":"Guccione","year":"2018","journal-title":"Prog Pediatr Cardiol"},{"issue":"9","key":"R4-20261009","doi-asserted-by":"crossref","first-page":"1142","DOI":"10.1017\/S1047951118000963","article-title":"Parental stress and resilience in CHD: a new frontier for health disparities research.","volume":"28","author":"Lisanti","year":"2018","journal-title":"Cardiol Young"},{"issue":"8","key":"R5-20261009","doi-asserted-by":"crossref","first-page":"802","DOI":"10.15537\/smj.2019.8.24405","article-title":"Unplanned hospital readmissions following congenital heart diseases surgery. Prevalence and predictors.","volume":"40","author":"Azhar","year":"2019","journal-title":"Saudi Med J"},{"key":"R6-20261009","doi-asserted-by":"crossref","first-page":"35","DOI":"10.1016\/j.jpeds.2018.09.038","article-title":"Social risk factors impact hospital readmission and outpatient appointment adherence for children with congenital heart disease.","volume":"205","author":"Demianczyk","year":"2019","journal-title":"J Pediatr"},{"issue":"3","key":"R7-20261009","doi-asserted-by":"crossref","first-page":"e20200531","DOI":"10.1542\/peds.2020-0531","article-title":"Telehealth home monitoring and postcardiac surgery for congenital heart disease.","volume":"146","author":"Medoff-Cooper","year":"2020","journal-title":"Pediatrics"},{"key":"R8-20261009","doi-asserted-by":"crossref","first-page":"1194031","DOI":"10.3389\/fpsyg.2023.1194031","article-title":"Life situation of a caregiver of a child with congenital heart defect and\/or other cardiac problems: structure and preliminary 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