{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,30]],"date-time":"2025-10-30T22:39:57Z","timestamp":1761863997329},"reference-count":35,"publisher":"Ovid Technologies (Wolters Kluwer Health)","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2019,7]]},"abstract":"<jats:sec><jats:title>PURPOSE:<\/jats:title><jats:p>The purpose of this study was to evaluate bladder self-management in transition to adult care for patients with spina bifida (SB) in 3 countries with similar clinical practice and different social, cultural, and economic milieu.<\/jats:p><\/jats:sec><jats:sec><jats:title>STUDY DESIGN:<\/jats:title><jats:p>Cross-sectional study.<\/jats:p><\/jats:sec><jats:sec><jats:title>SUBJECTS AND SETTING:<\/jats:title><jats:p>The sample comprised 90 participants: 27 reside in Brazil, 36 reside in Germany, and 27 reside in the United States. Demographic characteristics of the sample are based on country. The distribution of sex in the Brazilian sample was 18 males and 9 females, the German group had 11 males and 25 females, and the United States group had 8 males and 19 females. The age range of the cumulative sample was 13 to 29 years. The age of the German sample (mean 23.56, standard deviation [SD] 4.60 years) was significantly higher (analysis of variance,<jats:italic toggle=\"yes\">F<\/jats:italic><jats:sub>(2, 87)<\/jats:sub>= 13.62,<jats:italic toggle=\"yes\">P<\/jats:italic>&lt; .001) than the other 2 groups (Brazil mean 20.56 years, SD 5.24; US mean 19.44 years, SD 4.70).<\/jats:p><\/jats:sec><jats:sec><jats:title>METHODS:<\/jats:title><jats:p>Demographic, clinical, and social variable data were collected via an online questionnaire distributed to multiple regions of Germany and a multidisciplinary myelomeningocele clinic at the University of Michigan in the Midwestern United States. In Brazil, participants completed a printed version of the survey. In Germany and the United States, an electronic version of the survey was made available online. German and English versions of the survey, originally developed in Portuguese for persons residing in Brazil, were translated and validated.<\/jats:p><\/jats:sec><jats:sec><jats:title>RESULTS:<\/jats:title><jats:p>The majority of participants (94.4%) performed intermittent catheterization (IC), 76.5% performed IC independently, whereas 23.5% required assistance with IC or catheterized with aids (handles, leg spreaders, and penis or labia holder). There were no statistically significant group differences in independent self-catheterization by gender. There were significant national group differences in level of lesion (<jats:italic toggle=\"yes\">P<\/jats:italic>= .016), use of shunt (<jats:italic toggle=\"yes\">P<\/jats:italic>= .012), and medication for bladder management (<jats:italic toggle=\"yes\">P<\/jats:italic>&lt; .001). Among participants 18 years and older, there were significantly higher levels of education in the German and the US samples than in the Brazilian sample (<jats:italic toggle=\"yes\">P<\/jats:italic>&lt; .001).<\/jats:p><\/jats:sec><jats:sec><jats:title>CONCLUSIONS:<\/jats:title><jats:p>Although there were national group differences in medical characteristics and management of SB, differences in independent self-catheterization were not significant. Findings suggest that support from family\/caregivers and health care providers appears to facilitate transition to independent self-care, regardless of national context.<\/jats:p><\/jats:sec>","DOI":"10.1097\/won.0000000000000545","type":"journal-article","created":{"date-parts":[[2019,7,8]],"date-time":"2019-07-08T16:06:48Z","timestamp":1562602008000},"page":"321-326","source":"Crossref","is-referenced-by-count":9,"title":["Bladder Self-management in the Transition to Adulthood With Spina Bifida in 3 Countries"],"prefix":"10.1097","volume":"46","author":[{"given":"Fabiana","family":"Faleiros","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Seth","family":"Warschausky","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christoph","family":"K\u00e4ppler","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"William","family":"Schutt","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michel M.","family":"Cintra","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Soraia A. N.","family":"Rabeh","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fernanda R. E.","family":"Gimenes","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"276","reference":[{"key":"R1-20230826","first-page":"5364827","article-title":"Spina bifida: pathogenesis, mechanisms, and genes in mice and humans","volume":"2017","author":"Mohd-Zin","year":"2017","journal-title":"Scientifica (Cairo)"},{"issue":"7852","key":"R2-20230826","doi-asserted-by":"crossref","first-page":"301","DOI":"10.1016\/S0140-6736(74)92606-3","article-title":"Effect of early surgery for spina bifida cystica on survival and quality of life","volume":"1","author":"Laurence","year":"1974","journal-title":"Lancet"},{"issue":"7","key":"R3-20230826","doi-asserted-by":"crossref","first-page":"801","DOI":"10.1007\/s00381-009-0865-z","article-title":"The changing incidence of myelomeningocele and its impact on pediatric neurosurgery: a review from the Children's Memorial Hospital","volume":"25","author":"Bowman","year":"2009","journal-title":"Childs Nerv Syst"},{"issue":"3","key":"R5-20230826","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1159\/000056005","article-title":"Spina bifida outcome: a 25-year prospective","volume":"34","author":"Bowman","year":"2001","journal-title":"Pediatr Neurosurg"},{"issue":"1","key":"R6-20230826","doi-asserted-by":"crossref","first-page":"82","DOI":"10.1002\/ddrr.100","article-title":"Neurosurgical management of spina bifida: research issues","volume":"16","author":"Bowman","year":"2010","journal-title":"Dev Disabil Res Rev"},{"key":"R7-20230826","doi-asserted-by":"crossref","first-page":"597","DOI":"10.1046\/j.1365-2788.2003.00475.x","article-title":"Validity of a performance assessment of activities of daily living for people with developmental disabilities","volume":"47","author":"Kottorp","year":"2003","journal-title":"J Intellect Disabil Res"},{"issue":"1","key":"R8-20230826","first-page":"91","article-title":"Cerebral palsy: an overview","volume":"73","author":"Krigger","year":"2006","journal-title":"Am Fam Physician"},{"issue":"1","key":"R9-20230826","doi-asserted-by":"crossref","first-page":"29","DOI":"10.1016\/j.pmr.2014.09.007","article-title":"Transition to adult care for patients with spina bifida","volume":"26","author":"Le","year":"2015","journal-title":"Phys Med Rehabil Clin N Am"},{"issue":"3","key":"R10-20230826","doi-asserted-by":"crossref","first-page":"355","DOI":"10.1016\/j.ucl.2017.04.003","article-title":"Long-term complications of the neurogenic bladder","volume":"44","author":"Nseyo","year":"2017","journal-title":"Urol Clin North Am"},{"issue":"6","key":"R11-20230826","doi-asserted-by":"crossref","first-page":"636","DOI":"10.1097\/WON.0000000000000272","article-title":"Predictive factors for intermittent self-catheterization in German and Brazilian individuals with spina bifida and neurogenic bladder dysfunction","volume":"43","author":"Faleiros","year":"2016","journal-title":"J Wound Ostomy Continence Nurs"},{"issue":"3","key":"R12-20230826","doi-asserted-by":"crossref","first-page":"268","DOI":"10.1037\/rep0000157","article-title":"Health self-management, transition readiness and adaptive behavior in persons with cerebral palsy or myelomeningocele","volume":"62","author":"Warschausky","year":"2017","journal-title":"Rehabil Psychol"},{"issue":"12","key":"R13-20230826","doi-asserted-by":"crossref","first-page":"1175","DOI":"10.1111\/jpc.12938","article-title":"Renal scarring and chronic kidney disease in children with spina bifida in a multidisciplinary Malaysian centre","volume":"51","author":"Kanaheswari","year":"2015","journal-title":"J Paediatr Child Health"},{"issue":"2","key":"R14-20230826","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1002\/j.2048-7940.2007.tb00153.x","article-title":"The experience of adolescent women living with spina bifida part I: self-concept and family relationships","volume":"32","author":"Bellin","year":"2007","journal-title":"Rehabil Nurs"},{"issue":"44","key":"R15-20230826","first-page":"44","article-title":"Intermittent self-catheterisation","volume":"99","year":"2003","journal-title":"Nursing Times"},{"issue":"1","key":"R17-20230826","doi-asserted-by":"crossref","first-page":"83","DOI":"10.3233\/NRE-2010-0583","article-title":"Family needs and psychosocial functioning of caregivers of individuals with spinal cord injury from Colombia, South America","volume":"27","author":"Lasprilla","year":"2010","journal-title":"NeuroReabilitation"},{"issue":"5","key":"R20-20230826","doi-asserted-by":"crossref","first-page":"E6","DOI":"10.3171\/2016.8.FOCUS16257","article-title":"Rate of shunt revision as a function of age in patients with shunted hydrocephalus due to myelomeningocele","volume":"41","author":"Dupepe","year":"2016","journal-title":"Neurosurg Focus"},{"issue":"4","key":"R21-20230826","doi-asserted-by":"crossref","first-page":"973","DOI":"10.1002\/nau.23053","article-title":"A framework for transitioning patients from pediatric to adult health settings for patients with neurogenic bladder","volume":"36","author":"Lewis","year":"2017","journal-title":"Neurourol Urodyn"},{"issue":"6","key":"R22-20230826","doi-asserted-by":"crossref","first-page":"559","DOI":"10.4236\/health.2016.86059","article-title":"The reality of children and adolescents with meningomyelocele and their families, in the City of Belo Horizonte and its metropolitan area, Brazil","volume":"8","author":"Freitas","year":"2016","journal-title":"Health"},{"key":"R23-20230826","doi-asserted-by":"crossref","first-page":"967","DOI":"10.1007\/s00381-010-1368-7","article-title":"Cognitive and functional outcome in spina bifida\u2014chiari II malformation","volume":"27","author":"Jenkinson","year":"2011","journal-title":"Childs Nerv Syst"},{"issue":"5","key":"R24-20230826","doi-asserted-by":"crossref","first-page":"1246","DOI":"10.1007\/s11999-010-1594-z","article-title":"Adult consequences of spina bifida: a cohort study","volume":"469","author":"Roach","year":"2010","journal-title":"Clin Orthop Relat Res"},{"issue":"6","key":"R25-20230826","doi-asserted-by":"crossref","first-page":"521","DOI":"10.1097\/WON.0000000000000476","article-title":"Intermittent catheterization and urinary tract infection: a comparative study between Germany and Brazil","volume":"45","author":"Faleiros","year":"2018","journal-title":"J Wound Ostomy Continence Nurs"},{"issue":"1","key":"R26-20230826","doi-asserted-by":"crossref","first-page":"88","DOI":"10.1002\/ddrr.92","article-title":"Urologic management of spina bifida","volume":"16","author":"Clayton","year":"2010","journal-title":"Dev Disabil Res Rev"},{"issue":"1","key":"R27-20230826","doi-asserted-by":"crossref","first-page":"289","DOI":"10.1590\/S0080-62342011000100041","article-title":"Autocateterismo vesical intermitente na les\u00e3o medular Clean intermittent self catheterization in spinal cord injury Autocateterismo vesical intermitente en la lesi\u00f3n medular","volume":"45","author":"Assis","journal-title":"Rev Esc Enferm USP"},{"issue":"5","key":"R28-20230826","doi-asserted-by":"crossref","first-page":"343","DOI":"10.1111\/1440-1630.12052","article-title":"Predictors of time to complete toileting for children with spina bifida","volume":"60","author":"Gribble","year":"2013","journal-title":"Aust Occup Ther J"},{"issue":"4","key":"R29-20230826","doi-asserted-by":"crossref","first-page":"280","DOI":"10.1080\/20469047.2017.1351745","article-title":"The management of paediatric neurogenic bladder: an approach in a resource-poor setting","volume":"37","author":"Maison","year":"2017","journal-title":"Paediatr Int Child Health"},{"issue":"1","key":"R30-20230826","doi-asserted-by":"crossref","first-page":"63","DOI":"10.1186\/s12879-016-2166-y","article-title":"The influence of antibiotic prophylaxis on bacterial resistance in urinary tract infections in children with spina bifida","volume":"17","author":"Zegers","year":"2017","journal-title":"BMC Infect Dis"},{"issue":"5","key":"R31-20230826","doi-asserted-by":"crossref","first-page":"e38484","DOI":"10.5812\/numonthly.38484","article-title":"Discontinuation of antimicrobial prophylaxis (AP) in children with spina bifida: a case series analysis","volume":"8","author":"Couloures","year":"2016","journal-title":"Nephrourol Mon"},{"issue":"2","key":"R32-20230826","doi-asserted-by":"crossref","first-page":"288","DOI":"10.1016\/j.juro.2015.03.107","article-title":"Update on urological management of spina bifida from prenatal diagnosis to adulthood","volume":"194","author":"Snow-Lisy","year":"2015","journal-title":"J Urol"},{"issue":"4","key":"R33-20230826","doi-asserted-by":"crossref","first-page":"253","DOI":"10.1017\/S0012162206000569","article-title":"Acquisition of autonomy skills in adolescents with myelomeningocele","volume":"48","author":"Davis","year":"2006","journal-title":"Dev Med Child Neurol"},{"issue":"2","key":"R34-20230826","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1002\/j.2048-7940.2007.tb00153.x","article-title":"The experience of adolescent women living with spina bifida part I: self-concept and family relationships","volume":"32","author":"Sawin","year":"2007","journal-title":"Rehabil Nurs"},{"issue":"1","key":"R35-20230826","doi-asserted-by":"crossref","first-page":"60","DOI":"10.1002\/ddrr.98","article-title":"Transition to adult health care for adolescents with spina bifida: research issues","volume":"16","author":"Sawyer","year":"2010","journal-title":"Dev Disabil Res Rev"},{"issue":"3","key":"R36-20230826","first-page":"135","article-title":"Intellectual disability, sexuality and sexual abuse prevention\u2014a study of family members and support workers","volume":"41","author":"Eastgate","year":"2012","journal-title":"Aust Fam Physician"},{"issue":"3","key":"R37-20230826","doi-asserted-by":"crossref","first-page":"301","DOI":"10.1016\/0145-2134(90)90002-B","article-title":"Sexual abuse and exploitation of children and adults with mental retardation and other handicaps","volume":"14","author":"Tharinger","year":"1990","journal-title":"Child Abuse Negl"},{"issue":"4","key":"R38-20230826","doi-asserted-by":"crossref","first-page":"959","DOI":"10.1016\/j.urology.2014.12.019","article-title":"Transition of urologic patients from pediatric to adult care: a preliminary assessment of readiness in spina bifida patients","volume":"85","author":"Stephany","year":"2015","journal-title":"Urology"},{"issue":"8","key":"R39-20230826","doi-asserted-by":"crossref","first-page":"859","DOI":"10.1093\/jpepsy\/jst047","article-title":"Discrepancies in mother and child perceptions of spina bifida medical responsibilities during the transition to adolescence: associations with family conflict and medical adherence","volume":"38","author":"Psihogios","year":"2013","journal-title":"J Pediatr Psychol"}],"container-title":["Journal of Wound, Ostomy &amp; Continence Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.lww.com\/00152192-201907000-00013","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,7,20]],"date-time":"2024-07-20T18:56:39Z","timestamp":1721501799000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.lww.com\/00152192-201907000-00013"}},"subtitle":["A Comparative Study"],"short-title":[],"issued":{"date-parts":[[2019,7]]},"references-count":35,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2019]]}},"URL":"https:\/\/doi.org\/10.1097\/won.0000000000000545","relation":{},"ISSN":["1071-5754"],"issn-type":[{"value":"1071-5754","type":"print"}],"subject":[],"published":{"date-parts":[[2019,7]]}}}