{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,12]],"date-time":"2025-11-12T14:08:18Z","timestamp":1762956498519,"version":"3.41.0"},"reference-count":23,"publisher":"Ovid Technologies (Wolters Kluwer Health)","issue":"2","content-domain":{"domain":["lww.com","ovid.com"],"crossmark-restriction":true},"short-container-title":[],"published-print":{"date-parts":[[2021,3]]},"abstract":"<jats:sec>\n            <jats:title>Purpose of review<\/jats:title>\n            <jats:p>This review discusses the coronavirus disease-2019 (COVID-19) Global Rheumatology Alliance (GRA), the reason for its formation, the challenges with running the registry, and future opportunities for global collaborative research in rheumatology.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Recent findings<\/jats:title>\n            <jats:p>The GRA has been successful in collecting and publishing a large volume of case data on patients with rheumatic disease with COVID-19. In addition, the GRA has published reviews, opinion pieces, and patient-directed summaries of research to further assist in disseminating timely and accurate information about COVID-19 in rheumatic diseases. There have been numerous challenges in the journey but they have been addressed through a collaborative problem-solving approach.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Summary<\/jats:title>\n            <jats:p>The initial objectives of the GRA to describe the outcomes in patients with rheumatic disease who developed COVID-19 have been achieved. There has been extensive use of the data in the clinic and also to try and understand the mechanisms of disease and opportunities for drug repurposing. There remain numerous important areas for research which the GRA will continue to pursue as the pandemic evolves.<\/jats:p>\n          <\/jats:sec>","DOI":"10.1097\/bor.0000000000000783","type":"journal-article","created":{"date-parts":[[2021,1,1]],"date-time":"2021-01-01T03:04:11Z","timestamp":1609470251000},"page":"111-116","update-policy":"https:\/\/doi.org\/10.1097\/lww.0000000000001000","source":"Crossref","is-referenced-by-count":17,"title":["Global research collaboration in a pandemic-challenges and opportunities: the COVID-19 Global Rheumatology Alliance"],"prefix":"10.1097","volume":"33","author":[{"given":"Philip C.","family":"Robinson","sequence":"first","affiliation":[{"name":"University of Queensland Faculty of Medicine, Brisbane, Australia"}]},{"given":"Jinoos","family":"Yazdany","sequence":"additional","affiliation":[{"name":"Division of Rheumatology, University of California, San Francisco, California, USA"}]},{"given":"Pedro M.","family":"Machado","sequence":"additional","affiliation":[{"name":"Centre for Rheumatology & Department of Neuromuscular Diseases, University College London"},{"name":"National Institute for Health Research (NIHR), Biomedical Research Centre (BRC), University College London Hospitals (UCLH), NHS Foundation Trust"},{"name":"Department of Rheumatology, Northwick Park Hospital, London North West University, Healthcare NHS Trust, London, UK"}]}],"member":"276","published-online":{"date-parts":[[2020,12,30]]},"reference":[{"key":"R1-20250526","doi-asserted-by":"crossref","first-page":"293","DOI":"10.1038\/s41584-020-0418-0","article-title":"The COVID-19 Global Rheumatology Alliance: collecting data in a pandemic","volume":"16","author":"Robinson","year":"2020","journal-title":"Nat Rev Rheumatol"},{"key":"R2-20250526","article-title":"The COVID-19 Global Rheumatology Alliance: evaluating the rapid design and implementation of an international registry against best practice","author":"Liew","year":"2020","journal-title":"Rheumatology"},{"key":"R3-20250526","doi-asserted-by":"crossref","first-page":"1204","DOI":"10.1093\/rheumatology\/keaa191","article-title":"The Rheumatology Community responds to the COVID-19 pandemic: the establishment of the COVID-19 global rheumatology alliance","volume":"59","author":"Wallace","year":"2020","journal-title":"Rheumatology"},{"key":"R4-20250526","doi-asserted-by":"crossref","first-page":"e250","DOI":"10.1016\/S2665-9913(20)30095-3","article-title":"COVID-19 Global Rheumatology Alliance Steering Committee Rheumatic disease and COVID-19: initial data from the COVID-19 Global Rheumatology Alliance provider registries","volume":"2","author":"Gianfrancesco","year":"2020","journal-title":"Lancet Rheumatol"},{"key":"R5-20250526","doi-asserted-by":"crossref","first-page":"859","DOI":"10.1136\/annrheumdis-2020-217871","article-title":"Characteristics associated with hospitalisation for COVID-19 in people with rheumatic disease: data from the COVID-19 Global Rheumatology Alliance physician-reported registry","volume":"79","author":"Gianfrancesco","year":"2020","journal-title":"Ann Rheum Dis"},{"key":"R6-20250526","doi-asserted-by":"crossref","first-page":"434","DOI":"10.1097\/BOR.0000000000000725","article-title":"Epidemiology and outcomes of novel coronavirus 2019 in patients with immune-mediated inflammatory diseases","volume":"32","author":"Gianfrancesco","year":"2020","journal-title":"Curr Opin Rheumatol"},{"key":"R8-20250526","doi-asserted-by":"crossref","first-page":"1386","DOI":"10.1136\/annrheumdis-2020-217690","article-title":"Baseline use of hydroxychloroquine in systemic lupus erythematosus does not preclude SARS-CoV-2 infection and severe COVID-19","volume":"79","author":"Konig","year":"2020","journal-title":"Ann Rheum Dis"},{"key":"R9-20250526","article-title":"Race\/ethnicity association with COVID-19 outcomes in rheumatic disease: data from the COVID-19 Global Rheumatology Alliance Physician Registry","author":"Gianfrancesco","year":"2020","journal-title":"Arthritis Rheumatol"},{"key":"R10-20250526","article-title":"Antirheumatic disease therapies for the treatment of COVID-19: a systematic review and meta-analysis","author":"Putman","year":"2020","journal-title":"Arthritis Rheumatol"},{"key":"R11-20250526","doi-asserted-by":"crossref","first-page":"1191","DOI":"10.1016\/j.semarthrit.2020.07.007","article-title":"Acute respiratory viral adverse events during use of antirheumatic disease therapies: a scoping review","volume":"50","author":"Kilian","year":"2020","journal-title":"Semin Arthritis Rheum"},{"key":"R12-20250526","doi-asserted-by":"crossref","DOI":"10.1080\/1744666X.2021.1847084","article-title":"Coronavirus disease 2019: investigational therapies in the prevention and treatment of hyperinflammation","author":"Amigues","year":"2020","journal-title":"Expert Rev Clin Immunol"},{"key":"R13-20250526","doi-asserted-by":"crossref","first-page":"819","DOI":"10.7326\/M20-1223","article-title":"A rush to judgment? Rapid reporting and dissemination of results and its consequences regarding the use of hydroxychloroquine for COVID-19","volume":"172","author":"Kim","year":"2020","journal-title":"Ann Intern Med"},{"key":"R15-20250526","doi-asserted-by":"crossref","first-page":"659","DOI":"10.1080\/1744666X.2020.1792778","article-title":"Swinging the pendulum: lessons learned from public discourse concerning hydroxychloroquine and COVID-19","volume":"16","author":"Sattui","year":"2020","journal-title":"Expert Rev Clin Immunol"},{"key":"R16-20250526","doi-asserted-by":"crossref","first-page":"734","DOI":"10.1136\/annrheumdis-2020-217480","article-title":"Festina lente: hydroxychloroquine, COVID-19 and the role of the rheumatologist","volume":"79","author":"Graef","year":"2020","journal-title":"Ann Rheum Dis"},{"key":"R17-20250526","doi-asserted-by":"crossref","first-page":"871","DOI":"10.1002\/acr.24257","article-title":"Capturing patient-reported outcomes during the COVID-19 pandemic: development of the COVID-19 Global Rheumatology Alliance Patient Experience Survey","volume":"72","author":"Sirotich","year":"2020","journal-title":"Arthritis Care Res"},{"key":"R18-20250526","doi-asserted-by":"crossref","first-page":"851","DOI":"10.1136\/annrheumdis-2020-217877","article-title":"EULAR provisional recommendations for the management of rheumatic and musculoskeletal diseases in the context of SARS-CoV-2","volume":"79","author":"Landew\u00e9","year":"2020","journal-title":"Ann Rheum Dis"},{"key":"R19-20250526","article-title":"SARS CoV-2 infection among patients using immunomodulatory therapies","author":"Winthrop","year":"2020","journal-title":"Ann Rheum Dis"},{"key":"R20-20250526","doi-asserted-by":"crossref","first-page":"1156","DOI":"10.1136\/annrheumdis-2020-217888","article-title":"Clinical characteristics and outcomes of patients with coronavirus disease 2019 (COVID-19) and rheumatic disease: a comparative cohort study from a US \u2018hot spot\u2019","volume":"79","author":"D'Silva","year":"2020","journal-title":"Ann Rheum Dis"},{"key":"R21-20250526","article-title":"Coronavirus disease 2019 outcomes among patients with rheumatic diseases 6 months into the pandemic","author":"Serling-Boyd","year":"2020","journal-title":"Ann Rheum Dis"},{"key":"R22-20250526","doi-asserted-by":"crossref","DOI":"10.1016\/S2665-9913(20)30309-X","article-title":"Accumulating evidence suggests anti-TNF therapy needs to be given trial priority in COVID-19 treatment","author":"Robinson","year":"2020","journal-title":"Lancet Rheumatol"},{"key":"R23-20250526","article-title":"The potential for repurposing anti-TNF as a therapy for the treatment of COVID-19","author":"Robinson","year":"2020","journal-title":"Med (NY)"},{"issue":"(Suppl 2)","key":"R24-20250526","doi-asserted-by":"crossref","first-page":"S85","DOI":"10.5152\/eurjrheum.2020.2066","article-title":"Conducting research in a pandemic: the power of social media","volume":"7","author":"Hausmann","year":"2020","journal-title":"Eur J Rheumatol"},{"key":"R25-20250526","doi-asserted-by":"crossref","first-page":"1596","DOI":"10.1002\/art.41447","article-title":"COVID-19 in rheumatic diseases: a research agenda","volume":"72","author":"Yazdany","year":"2020","journal-title":"Arthritis Rheumatol"}],"container-title":["Current Opinion in Rheumatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.lww.com\/10.1097\/BOR.0000000000000783","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,5,26]],"date-time":"2025-05-26T21:22:03Z","timestamp":1748294523000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.lww.com\/10.1097\/BOR.0000000000000783"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,12,30]]},"references-count":23,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2021]]}},"URL":"https:\/\/doi.org\/10.1097\/bor.0000000000000783","relation":{},"ISSN":["1040-8711","1531-6963"],"issn-type":[{"type":"print","value":"1040-8711"},{"type":"electronic","value":"1531-6963"}],"subject":[],"published":{"date-parts":[[2020,12,30]]}}}