{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,10]],"date-time":"2026-07-10T04:19:38Z","timestamp":1783657178411,"version":"3.55.0"},"reference-count":50,"publisher":"Emerald","issue":"2","license":[{"start":{"date-parts":[[2021,12,6]],"date-time":"2021-12-06T00:00:00Z","timestamp":1638748800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.emerald.com\/insight\/site-policies"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["AJIM"],"published-print":{"date-parts":[[2022,2,23]]},"abstract":"<jats:sec><jats:title content-type=\"abstract-subheading\">Purpose<\/jats:title><jats:p>This paper aims to investigate user health information seeking and sharing patterns and content in an online diabetes community and explore the similarities and differences in the ways and themes they expressed.<\/jats:p><\/jats:sec><jats:sec><jats:title content-type=\"abstract-subheading\">Design\/methodology\/approach<\/jats:title><jats:p>Multiple methods are applied to analyze the expressions and themes that users seek and share based on large-scale text data in an online diabetes community. First, a text classifier using deep learning method is performed based on the expression category this study developed. Second, statistical and social network analyses are used to measure the popularity and compare differences between expressions. Third, topic modeling, manual coding and similarity analysis are used to mining topics and thematic similarity between seeking and sharing threads.<\/jats:p><\/jats:sec><jats:sec><jats:title content-type=\"abstract-subheading\">Findings<\/jats:title><jats:p>There are four different ways users seek and share in online health communities (OHCs) including informational seeking, situational seeking, objective information sharing and experiential information sharing. The results indicate that threads with self-disclosure could receive more replies and attract more users to contribute. This study also examines the 10 topics that were discussed for information seeking and 14 topics for information sharing. They shared three discussion themes: self-management, medication and symptoms. Information about symptoms can be largely matched between seeking and sharing threads while there is less overlap in self-management and medication categories.<\/jats:p><\/jats:sec><jats:sec><jats:title content-type=\"abstract-subheading\">Originality\/value<\/jats:title><jats:p>Being different from previous studies that mainly describe one type of health information behavior, this paper analyzes user health information seeking and sharing behaviors in OHCs and investigates whether there is a correspondence or discrepancy between expressions and information users spontaneously seek and share in OHCs.<\/jats:p><\/jats:sec>","DOI":"10.1108\/ajim-08-2021-0214","type":"journal-article","created":{"date-parts":[[2021,12,2]],"date-time":"2021-12-02T12:05:23Z","timestamp":1638446723000},"page":"311-331","source":"Crossref","is-referenced-by-count":14,"title":["What users seek and share in online diabetes communities: examining similarities and differences in expressions and themes"],"prefix":"10.1108","volume":"74","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4234-5125","authenticated-orcid":false,"given":"Zhizhen","family":"Yao","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5591-7874","authenticated-orcid":false,"given":"Bin","family":"Zhang","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1422-2168","authenticated-orcid":false,"given":"Zhenni","family":"Ni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0187-0131","authenticated-orcid":false,"given":"Feicheng","family":"Ma","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"140","published-online":{"date-parts":[[2021,12,6]]},"reference":[{"issue":"1","key":"key2022022205324598600_ref001","doi-asserted-by":"crossref","first-page":"64","DOI":"10.1108\/13673270310463626","article-title":"Motivation and barriers to participation in virtual knowledge\u2010sharing communities of practice","volume":"7","year":"2003","journal-title":"Journal of Knowledge Management"},{"issue":"4","key":"key2022022205324598600_ref002","doi-asserted-by":"crossref","first-page":"e92","DOI":"10.2196\/jmir.6668","article-title":"Gender-specific determinants and patterns of online health information seeking: results from a representative German health survey","volume":"19","year":"2017","journal-title":"Journal of Medical Internet Research"},{"key":"key2022022205324598600_ref003","volume-title":"National Consumer Health Privacy Survey 2005: Executive Summary","year":"2005"},{"key":"key2022022205324598600_ref004","volume-title":"Exchange and Power in Social Life","year":"2017"},{"key":"key2022022205324598600_ref005","first-page":"993","article-title":"Latent dirichlet allocation","volume":"3","year":"2003","journal-title":"The Journal of Machine Learning Research"},{"issue":"10","key":"key2022022205324598600_ref006","doi-asserted-by":"crossref","first-page":"P10008","DOI":"10.1088\/1742-5468\/2008\/10\/P10008","article-title":"Fast unfolding of communities in large networks","volume":"2008","year":"2008","journal-title":"Journal of Statistical Mechanics: Theory and Experiment"},{"issue":"2","key":"key2022022205324598600_ref007","doi-asserted-by":"publisher","first-page":"250","DOI":"10.1016\/j.pec.2011.08.017","article-title":"Exploring online support spaces: using cluster analysis to examine breast cancer, diabetes and fibromyalgia support groups","volume":"87","year":"2012","journal-title":"Patient Education and Counseling"},{"issue":"6","key":"key2022022205324598600_ref008","doi-asserted-by":"crossref","first-page":"580","DOI":"10.1089\/cpb.2005.8.580","article-title":"Receiving social support online: an analysis of a computer-mediated support group for individuals living with irritable bowel syndrome","volume":"8","year":"2005","journal-title":"Cyberpsychology and Behavior"},{"issue":"1","key":"key2022022205324598600_ref009","doi-asserted-by":"crossref","first-page":"60","DOI":"10.1080\/10410236.2014.936336","article-title":"Sharing health information and influencing behavioral intentions: the role of health literacy, information overload, and the Internet in the diffusion of healthy heart information","volume":"31","year":"2016","journal-title":"Health Communication"},{"key":"key2022022205324598600_ref010","article-title":"Seeking and sharing health information online: comparing search engines and social media","year":"2014"},{"key":"key2022022205324598600_ref011","doi-asserted-by":"crossref","first-page":"98","DOI":"10.1016\/j.ijmedinf.2017.05.014","article-title":"Understanding consumer health information-seeking behavior from the perspective of the risk perception attitude framework and social support in mobile social media websites","volume":"105","year":"2017","journal-title":"International Journal of Medical Informatics"},{"key":"key2022022205324598600_ref012","first-page":"4171","article-title":"BERT: pre-training of deep bidirectional transformers for language understanding","volume-title":"Proceedings of the 2019 Conference of the NAACL","year":"2019"},{"issue":"5","key":"key2022022205324598600_ref013","doi-asserted-by":"crossref","first-page":"e126","DOI":"10.2196\/jmir.2684","article-title":"Anonymity versus privacy: selective information sharing in online cancer communities","volume":"16","year":"2014","journal-title":"Journal of Medical Internet Research"},{"issue":"7","key":"key2022022205324598600_ref014","doi-asserted-by":"crossref","first-page":"e17338","DOI":"10.2196\/17338","article-title":"Assessment of adaptive engagement and support model for people with chronic health conditions in online health communities: combined content analysis","volume":"22","year":"2020","journal-title":"Journal of Medical Internet Research"},{"issue":"3","key":"key2022022205324598600_ref015","doi-asserted-by":"crossref","first-page":"738","DOI":"10.2337\/diacare.26.3.738","article-title":"How well do patients' assessments of their diabetes self-management correlate with actual glycemic control and receipt of recommended diabetes services?","volume":"26","year":"2003","journal-title":"Diabetes Care"},{"key":"key2022022205324598600_ref051","volume-title":"Social Behavior: Its Elementary Forms","year":"1974","edition":"Revised ed."},{"key":"key2022022205324598600_ref055","first-page":"616","article-title":"Sharing sensitive personal health information through Facebook: the unintended consequences","volume":"169","year":"2011","journal-title":"Studies in Health Technology and Informatics"},{"issue":"1","key":"key2022022205324598600_ref017","doi-asserted-by":"crossref","first-page":"91","DOI":"10.1037\/h0043357","article-title":"Some factors in self-disclosure","volume":"56","year":"1958","journal-title":"The Journal of Abnormal and Social Psychology"},{"issue":"4","key":"key2022022205324598600_ref018","doi-asserted-by":"crossref","first-page":"484","DOI":"10.1197\/jamia.M2449","article-title":"Consumer health information seeking as hypothesis testing","volume":"15","year":"2008","journal-title":"Journal of the American Medical Informatics Association"},{"issue":"5","key":"key2022022205324598600_ref019","doi-asserted-by":"crossref","first-page":"361","DOI":"10.1002\/(SICI)1097-4571(199106)42:5<361::AID-ASI6>3.0.CO;2-#","article-title":"Inside the search process: information seeking from the user's perspective","volume":"42","year":"1991","journal-title":"Journal of the American Society for Information Science"},{"issue":"2","key":"key2022022205324598600_ref020","doi-asserted-by":"crossref","first-page":"182","DOI":"10.1093\/heapro\/dax074","article-title":"Sharing health information online in South Korea: motives, topics, and antecedents","volume":"34","year":"2019","journal-title":"Health Promotion International"},{"issue":"8","key":"key2022022205324598600_ref021","doi-asserted-by":"crossref","first-page":"1006","DOI":"10.1177\/1049732307305199","article-title":"Health information\u2014seeking behavior","volume":"17","year":"2007","journal-title":"Qualitative Health Research"},{"key":"key2022022205324598600_ref022","doi-asserted-by":"crossref","first-page":"102586","DOI":"10.1016\/j.midw.2019.102586","article-title":"Neonatal outcomes and its association among gestational diabetes mellitus with and without depression, anxiety and stress symptoms in Malaysia: a cross-sectional study","volume":"81","year":"2020","journal-title":"Midwifery"},{"issue":"6","key":"key2022022205324598600_ref023","doi-asserted-by":"crossref","first-page":"495","DOI":"10.1023\/A:1020288508362","article-title":"Health benefits and risks of the Internet","volume":"26","year":"2002","journal-title":"Journal of Medical Systems"},{"key":"key2022022205324598600_ref024","doi-asserted-by":"crossref","first-page":"28","DOI":"10.1016\/j.techfore.2016.07.021","article-title":"Seeking and sharing health information on social media: a net valence model and cross-cultural comparison","volume":"126","year":"2018","journal-title":"Technological Forecasting and Social Change"},{"issue":"5","key":"key2022022205324598600_ref026","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph17051508","article-title":"Study on differences between patients with physiological and psychological diseases in online health communities: topic analysis and sentiment analysis","volume":"17","year":"2020","journal-title":"International Journal of Environmental Research and Public Health"},{"issue":"1","key":"key2022022205324598600_ref025","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1016\/j.im.2015.08.006","article-title":"Self-disclosure in Chinese micro-blogging: a social exchange theory perspective","volume":"53","year":"2016","journal-title":"Information and Management"},{"key":"key2022022205324598600_ref027","doi-asserted-by":"publisher","first-page":"110","DOI":"10.1016\/j.copsyc.2019.08.019","article-title":"Self-disclosure and social media: motivations, mechanisms and psychological well-being","volume":"31","year":"2020","journal-title":"Current Opinion in Psychology"},{"issue":"1","key":"key2022022205324598600_ref028","doi-asserted-by":"crossref","first-page":"58","DOI":"10.1007\/s10897-014-9736-1","article-title":"Information-seeking and sharing behavior following genomic testing for diabetes risk","volume":"24","year":"2015","journal-title":"Journal of Genetic Counseling"},{"issue":"6","key":"key2022022205324598600_ref029","doi-asserted-by":"publisher","first-page":"e18441","DOI":"10.2196\/18441","article-title":"Diabetes self-management in the age of social media: large-scale Analysis of peer interactions using semiautomated methods","volume":"8","year":"2020","journal-title":"JMIR Medical Informatics"},{"issue":"2","key":"key2022022205324598600_ref030","doi-asserted-by":"crossref","first-page":"153","DOI":"10.1080\/10410230701454189","article-title":"Examining the dimensions of cancer-related information seeking and scanning behavior","volume":"22","year":"2007","journal-title":"Health Communication"},{"key":"key2022022205324598600_ref031","doi-asserted-by":"crossref","first-page":"98","DOI":"10.1016\/j.chb.2017.09.001","article-title":"Examining thematic similarity, difference, and membership in three online mental health communities from Reddit: a text mining and visualization approach","volume":"78","year":"2018","journal-title":"Computers in Human Behavior"},{"issue":"4","key":"key2022022205324598600_ref032","doi-asserted-by":"crossref","first-page":"1428","DOI":"10.1111\/j.1083-6101.2007.00380.x","article-title":"Anonymity and self-disclosure on weblogs","volume":"12","year":"2007","journal-title":"Journal of Computer-Mediated Communication"},{"issue":"5","key":"key2022022205324598600_ref033","first-page":"e4048","article-title":"Seeking health information online: association with young Australian women's physical, mental, and reproductive health","volume":"17","year":"2015","journal-title":"Journal of Medical Internet Research"},{"issue":"1","key":"key2022022205324598600_ref034","first-page":"1","article-title":"Things my doctor never told me\u201d: bridging information gaps in an online community","volume":"49","year":"2012","journal-title":"Proceedings of the American Society for Information Science and Technology"},{"issue":"8","key":"key2022022205324598600_ref035","doi-asserted-by":"crossref","first-page":"985","DOI":"10.1002\/asi.24024","article-title":"Relationships, environment, health and development: the information needs expressed online by young first\u2010time mothers","volume":"69","year":"2018","journal-title":"Journal of the Association for Information Science and Technology"},{"key":"key2022022205324598600_ref037","first-page":"212","volume-title":"Self-Disclosure and Psychological Well-Being","year":"2010"},{"issue":"4","key":"key2022022205324598600_ref038","doi-asserted-by":"crossref","first-page":"413","DOI":"10.1080\/07347332.2010.484830","article-title":"Crisis, social support, and the family response: exploring the narratives of young breast cancer survivors","volume":"28","year":"2010","journal-title":"Journal of Psychosocial Oncology"},{"issue":"2","key":"key2022022205324598600_ref039","doi-asserted-by":"crossref","first-page":"159","DOI":"10.1086\/267786","article-title":"Mass media flow and differential growth in knowledge","volume":"34","year":"1970","journal-title":"Public Opinion Quarterly"},{"issue":"4","key":"key2022022205324598600_ref040","doi-asserted-by":"crossref","first-page":"1465","DOI":"10.1016\/j.chb.2013.01.033","article-title":"Mediated disclosure on Twitter: the roles of gender and identity in boundary impermeability, valence, disclosure, and stage","volume":"29","year":"2013","journal-title":"Computers in Human Behavior"},{"key":"key2022022205324598600_ref054","article-title":"User self-disclosure on health social networks: a social exchange perspective","year":"2012","journal-title":"Paper Presented at the International Conference on Information Systems (ICIS)"},{"issue":"8","key":"key2022022205324598600_ref042","doi-asserted-by":"crossref","first-page":"931","DOI":"10.1093\/jamia\/ocy012","article-title":"Can online social support be detrimental in stigmatized chronic diseases? A quadratic model of the effects of informational and emotional support on self-care behavior of HIV patients","volume":"25","year":"2018","journal-title":"Journal of the American Medical Informatics Association"},{"key":"key2022022205324598600_ref043","unstructured":"Wikipedia (2019), \u201cBaidu tieba\u201d, available at: https:\/\/en.wikipedia.org\/wiki\/Baidu_Tieba (accessed 31 Mar 2021)."},{"issue":"2","key":"key2022022205324598600_ref044","doi-asserted-by":"publisher","first-page":"145","DOI":"10.1007\/s11892-002-0074-6","article-title":"Patient-centered diabetes self-management education","volume":"2","year":"2002","journal-title":"Current Diabetes Reports"},{"key":"key2022022205324598600_ref045","doi-asserted-by":"crossref","first-page":"797","DOI":"10.1016\/j.chb.2017.06.028","article-title":"Knowledge sharing motivations in online health communities: a comparative study of health professionals and normal users","volume":"75","year":"2017","journal-title":"Computers in Human Behavior"},{"issue":"4","key":"key2022022205324598600_ref046","doi-asserted-by":"crossref","first-page":"268","DOI":"10.1111\/hir.12192","article-title":"Consumer health information seeking in social media: a literature review","volume":"34","year":"2017","journal-title":"Health Information and Libraries Journal"},{"issue":"1","key":"key2022022205324598600_ref047","doi-asserted-by":"publisher","first-page":"37","DOI":"10.2478\/dim-2018-0002","article-title":"An investigation on the evolution of diabetes data in social Q&A logs","volume":"2","year":"2018","journal-title":"Data and Information Management"},{"issue":"4","key":"key2022022205324598600_ref048","doi-asserted-by":"crossref","first-page":"442","DOI":"10.1108\/DTA-03-2019-0044","article-title":"Examining users\u2019 knowledge sharing behaviour in online health communities","volume":"53","year":"2019","journal-title":"Data Technologies and Applications"},{"issue":"1","key":"key2022022205324598600_ref049","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1080\/10810730.2017.1411996","article-title":"Assessing the reproductive health-related information-seeking behavior of low-income women: describing a two-step information-seeking process","volume":"23","year":"2018","journal-title":"Journal of Health Communication"},{"issue":"4","key":"key2022022205324598600_ref052","first-page":"1037","article-title":"Experiences of self-disclosure among tuberculosis patients in rural Southern Malawi","volume":"8","year":"2008","journal-title":"Rural and Remote Health"}],"container-title":["Aslib Journal of Information Management"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.emerald.com\/insight\/content\/doi\/10.1108\/AJIM-08-2021-0214\/full\/xml","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.emerald.com\/insight\/content\/doi\/10.1108\/AJIM-08-2021-0214\/full\/html","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,7,24]],"date-time":"2025-07-24T23:01:07Z","timestamp":1753398067000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.emerald.com\/ajim\/article\/74\/2\/311-331\/60843"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,12,6]]},"references-count":50,"journal-issue":{"issue":"2","published-online":{"date-parts":[[2021,12,6]]},"published-print":{"date-parts":[[2022,2,23]]}},"alternative-id":["10.1108\/AJIM-08-2021-0214"],"URL":"https:\/\/doi.org\/10.1108\/ajim-08-2021-0214","relation":{},"ISSN":["2050-3806"],"issn-type":[{"value":"2050-3806","type":"print"}],"subject":[],"published":{"date-parts":[[2021,12,6]]}}}