{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,10]],"date-time":"2025-12-10T05:54:12Z","timestamp":1765346052173,"version":"3.46.0"},"reference-count":67,"publisher":"Emerald","issue":"7","license":[{"start":{"date-parts":[[2025,9,6]],"date-time":"2025-09-06T00:00:00Z","timestamp":1757116800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licences\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,12,15]]},"abstract":"<jats:sec>\n                    <jats:title>Purpose<\/jats:title>\n                    <jats:p>This study examines the role of the right-of-access principle in investigating research misconduct, focusing on its implications for transparency and privacy. By comparing two Swedish cases, it explores how public access to research data can facilitate accountability but also raise ethical concerns regarding confidentiality.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design\/methodology\/approach<\/jats:title>\n                    <jats:p>A qualitative case study using document analysis was conducted, collecting public records such as court rulings and government decisions. Data were analysed from the outset of Nissenbaum\u2019s theory of contextual integrity, combined with data protection legislation\u2019s interest-balancing requirements. An integrated analytical model was developed to assess the balance between public transparency and the protection of personal privacy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>The findings indicate a conflict among confidentiality, privacy intrusion and patient safety, suggesting that, in some instances, intruding on personal privacy may be necessary to protect research participants. Researchers are urged to avoid unfeasible confidentiality promises and to clarify data-handling practices to maintain contextual integrity. Current protective measures, such as masking, pseudonymisation and informed consent, appear insufficient, highlighting the need for ethical interest-balancing and further research on safeguarding the privacy of both research subjects and researchers while ensuring oversight in cases of suspected misconduct.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Originality\/value<\/jats:title>\n                    <jats:p>This study fills a research gap by examining how Freedom of Information legislation can be used to request research data, thereby elucidating its dual role as both a protective mechanism and a potential source of privacy infringement.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1108\/jd-04-2025-0096","type":"journal-article","created":{"date-parts":[[2025,9,6]],"date-time":"2025-09-06T09:17:14Z","timestamp":1757150234000},"page":"355-375","source":"Crossref","is-referenced-by-count":0,"title":["The public right of access to research data \u2013 an ethical dilemma?"],"prefix":"10.1108","volume":"81","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7510-2955","authenticated-orcid":true,"given":"Charlotte","family":"Borgerud","sequence":"first","affiliation":[{"name":"Uppsala Universitet Department of ALM, , Uppsala,","place":["Sweden"]}]}],"member":"140","published-online":{"date-parts":[[2025,9,9]]},"reference":[{"issue":"8","key":"2025121000511695600_ref052","first-page":"636","article-title":"Forskare och psykiatrer till f\u00f6rsvar f\u00f6r Gillbergs ADHD-forskning: K\u00e4rfves kampanj har karakt\u00e4r av personf\u00f6rf\u00f6ljelse och saknar vetenskaplig grund","volume":"100","author":"Adolfsson","year":"2003","journal-title":"L\u00e4kartidningen"},{"article-title":"Fallet Macchiarini: Utredning Av Verksamheten Med Transplantationer Av Syntetiska Luftstrupar Vid Karolinska Universitetssjukhuset","year":"2016","author":"Asplund","key":"2025121000511695600_ref053"},{"volume-title":"Strider under hj\u00e4rn\u00e5ldern: om ADHD, biologism, sociologism","year":"2007","author":"Beckman","key":"2025121000511695600_ref054"},{"key":"2025121000511695600_ref055","article-title":"Staten ser ingen grund f\u00f6r fall med Macchiarini-visselbl\u00e5sare","author":"Cederberg","year":"2024","journal-title":"Lakartidningen"},{"key":"2025121000511695600_ref056","unstructured":"Kindbom, M.\n           (2018), \u201cVisselbl\u00e5sarna p\u00e5 KI: Vi \u00e4r d\u00f6df\u00f6rklarade som forskare\u201d, 17 December, available at:\u00a0https:\/\/www.lag-avtal.se\/nyheter\/visselblasarna-pa-ki-vi-ar-dodforklarade-som-forskare\/1479826 (accessed\u00a01 April 2025)."},{"article-title":"Hj\u00e4rnsp\u00f6ken: DAMP och hotet mot folkh\u00e4lsan","year":"2000","author":"K\u00e4rfve","key":"2025121000511695600_ref057"},{"key":"2025121000511695600_ref058","article-title":"Vad h\u00e4nde med visselbl\u00e5sarna?","author":"Nordin","year":"2023","journal-title":"Sjukhusl\u00e4karen"},{"issue":"4","key":"2025121000511695600_ref059","doi-asserted-by":"crossref","first-page":"90","DOI":"10.37062\/sf.43.19321","article-title":"Om konflikten mellan Gillberg och K\u00e4rfve","volume":"43","author":"V\u00e5ger\u00f6s","year":"2006","journal-title":"Sociologisk Forskning"},{"key":"2025121000511695600_ref001","unstructured":"Aarhus University\n           (2021), \u201cFreedom of research and publishing rights must Be protected with respect to special interest organisations\u201d, 23 March, available at:\u00a0https:\/\/tech.au.dk\/en\/about-the-faculty\/news\/show\/artikel\/forskningsfrihed-og-publiceringsrettigheder-skal-beskyttes-i-forhold-til-interesseorganisationer-1 (accessed\u00a01 April 2025)."},{"issue":"7","key":"2025121000511695600_ref002","doi-asserted-by":"publisher","first-page":"770","DOI":"10.1177\/1753193420905263","article-title":"Publication ethics","volume":"45","author":"Boeckstyns","year":"2020","journal-title":"The Journal of Hand Surgery, European"},{"volume-title":"Offentlighet och Sekretess i Myndighets Forskningsverksamhet","year":"1997","author":"Bohlin","key":"2025121000511695600_ref003"},{"issue":"2","key":"2025121000511695600_ref004","doi-asserted-by":"publisher","first-page":"27","DOI":"10.3316\/QRJ0902027","article-title":"Document analysis as a qualitative research method","volume":"9","author":"Bowen","year":"2009","journal-title":"Qualitative Research Journal"},{"issue":"4","key":"2025121000511695600_ref005","doi-asserted-by":"publisher","first-page":"454","DOI":"10.1177\/0098303986014004005","article-title":"Legal intrusion and the politics of fieldwork. 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