{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,9]],"date-time":"2025-10-09T13:19:54Z","timestamp":1760015994435},"reference-count":52,"publisher":"Institute of Electrical and Electronics Engineers (IEEE)","issue":"2","license":[{"start":{"date-parts":[[2019,6,1]],"date-time":"2019-06-01T00:00:00Z","timestamp":1559347200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/ieeexplore.ieee.org\/Xplorehelp\/downloads\/license-information\/IEEE.html"},{"start":{"date-parts":[[2019,6,1]],"date-time":"2019-06-01T00:00:00Z","timestamp":1559347200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2019,6,1]],"date-time":"2019-06-01T00:00:00Z","timestamp":1559347200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IEEE Technol. Soc. Mag."],"published-print":{"date-parts":[[2019,6]]},"DOI":"10.1109\/mts.2019.2913072","type":"journal-article","created":{"date-parts":[[2019,6,11]],"date-time":"2019-06-11T00:18:07Z","timestamp":1560212287000},"page":"62-70","source":"Crossref","is-referenced-by-count":4,"title":["Reconsidering Dynamic Consent in Biobanking: Ethical and Political Consequences of Transforming Research Participants Into ICT Users"],"prefix":"10.1109","volume":"38","author":[{"given":"Alexandra","family":"Soulier","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"263","reference":[{"key":"ref39","doi-asserted-by":"publisher","DOI":"10.1186\/s40504-015-0024-0"},{"key":"ref38","first-page":"1","article-title":"Optimizing the user experience for online consent in biobank research","author":"tsai","year":"2015"},{"key":"ref33","doi-asserted-by":"publisher","DOI":"10.1089\/gtmb.2013.1550"},{"key":"ref32","doi-asserted-by":"publisher","DOI":"10.1177\/0163443712449499"},{"key":"ref31","first-page":"88","article-title":"‘This is not a national biobank…’ The politics of local biobanks in Germany","author":"schneider","year":"2008","journal-title":"Governance in Comparative Perspective"},{"key":"ref30","doi-asserted-by":"publisher","DOI":"10.7208\/chicago\/9780226216874.001.0001"},{"key":"ref37","doi-asserted-by":"publisher","DOI":"10.1177\/2055207615605644"},{"key":"ref36","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.d5647"},{"key":"ref35","doi-asserted-by":"publisher","DOI":"10.1186\/s40504-015-0032-0"},{"key":"ref34","doi-asserted-by":"publisher","DOI":"10.1038\/ejhg.2012.282"},{"key":"ref28","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2005.00442.x"},{"key":"ref27","doi-asserted-by":"publisher","DOI":"10.1089\/bio.2014.0017"},{"key":"ref29","doi-asserted-by":"publisher","DOI":"10.3325\/cmj.2013.54.496"},{"key":"ref2","doi-asserted-by":"publisher","DOI":"10.1038\/nrg1473"},{"key":"ref1","doi-asserted-by":"publisher","DOI":"10.1186\/s12910-016-0162-9"},{"key":"ref20","doi-asserted-by":"publisher","DOI":"10.1057\/biosoc.2013.23"},{"key":"ref22","doi-asserted-by":"publisher","DOI":"10.1186\/1746-5354-3-1-17"},{"key":"ref21","doi-asserted-by":"publisher","DOI":"10.1038\/nmeth.2142"},{"key":"ref24","author":"morozov","year":"2013","journal-title":"To Save Everything Click Here"},{"key":"ref23","doi-asserted-by":"publisher","DOI":"10.1177\/0162243909340267"},{"key":"ref26","article-title":"OECD guidelines on human biobanks and genetic research databases","year":"2009"},{"key":"ref25","author":"noveck","year":"2009","journal-title":"Wiki Government How Technology Can Make Government Better Democracy Stronger and Citizens More Powerful"},{"key":"ref50","author":"surowiecki","year":"2004","journal-title":"The Wisdom of Crowds Why the Many Are Smarter Than the Few and How Collective Wisdom Shapes Business Economies Societies and Nations"},{"key":"ref51","author":"holiday","year":"2013","journal-title":"Trust Me I’m Lying Confessions of a Media Manipulator"},{"key":"ref52","doi-asserted-by":"publisher","DOI":"10.1016\/j.tibtech.2004.04.007"},{"key":"ref10","first-page":"1","article-title":"Publics and biobanks: Pan-European diversity and the challenge of responsible innovation","author":"gaskell","year":"2011","journal-title":"European J Human Genetics"},{"key":"ref11","doi-asserted-by":"publisher","DOI":"10.1016\/S1470-2045(06)70618-0"},{"key":"ref40","author":"biobank","year":"2007","journal-title":"U K Biobank Ethics and Governance Framework"},{"key":"ref12","doi-asserted-by":"publisher","DOI":"10.5324\/nje.v21i2.1496"},{"key":"ref13","doi-asserted-by":"publisher","DOI":"10.1136\/jme.2008.024851"},{"key":"ref14","doi-asserted-by":"publisher","DOI":"10.5661\/bger-25-429"},{"key":"ref15","doi-asserted-by":"publisher","DOI":"10.1111\/bioe.12254"},{"key":"ref16","doi-asserted-by":"publisher","DOI":"10.1007\/s00439-011-1063-0"},{"key":"ref17","doi-asserted-by":"publisher","DOI":"10.1038\/ejhg.2014.71"},{"key":"ref18","author":"lafontaine","year":"2014","journal-title":"Le Corps-Marché La Marchandisation de La Vie Humaine À L’ère de La Bioéconomie"},{"key":"ref19","doi-asserted-by":"publisher","DOI":"10.1089\/bio.2016.0103"},{"key":"ref4","doi-asserted-by":"publisher","DOI":"10.1177\/096853320901000201"},{"key":"ref3","first-page":"139","article-title":"Governing biobanks through a European infrastructure","author":"cambon-thomsen","year":"2015","journal-title":"Ethics Law and Governance of Biobanking"},{"key":"ref6","doi-asserted-by":"publisher","DOI":"10.1080\/14636770701218191"},{"key":"ref5","doi-asserted-by":"publisher","DOI":"10.1046\/j.1467-9566.2003.00369.x"},{"key":"ref8","article-title":"Community engagement with genetics: Public perceptions and expectations about genetics research","author":"etchegary","year":"2013","journal-title":"Health Expectations"},{"key":"ref7","doi-asserted-by":"publisher","DOI":"10.1038\/sj.embor.7400740"},{"key":"ref49","first-page":"91","article-title":"Transparency, publicity, accountability – The missing links","volume":"12","author":"naurin","year":"2006","journal-title":"Swiss Political Science Rev"},{"key":"ref9","doi-asserted-by":"publisher","DOI":"10.1080\/14636778.2014.999153"},{"key":"ref46","author":"legrand","year":"2007","journal-title":"Les Normes Chez Foucault"},{"key":"ref45","doi-asserted-by":"publisher","DOI":"10.14375\/NP.9782070729685"},{"key":"ref48","author":"cassin","year":"2007","journal-title":"Google-Moi La Deuxième Mission de l’Amérique"},{"key":"ref47","author":"sunstein","year":"2007","journal-title":"Republic com"},{"key":"ref42","first-page":"45","author":"nomper","year":"2005","journal-title":"Open consent - A New Form of Informed Consent for Population Genetic Databases"},{"key":"ref41","doi-asserted-by":"publisher","DOI":"10.1186\/s40504-014-0016-5"},{"key":"ref44","article-title":"Young people are not ‘digitally competent’, EC warns","author":"espiner","year":"2012","journal-title":"ZDNet"},{"key":"ref43","doi-asserted-by":"publisher","DOI":"10.1038\/nrg3218"}],"container-title":["IEEE Technology and Society Magazine"],"original-title":[],"link":[{"URL":"http:\/\/xplorestaging.ieee.org\/ielx7\/44\/8733776\/08733941.pdf?arnumber=8733941","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,7,13]],"date-time":"2022-07-13T20:45:11Z","timestamp":1657745111000},"score":1,"resource":{"primary":{"URL":"https:\/\/ieeexplore.ieee.org\/document\/8733941\/"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,6]]},"references-count":52,"journal-issue":{"issue":"2"},"URL":"https:\/\/doi.org\/10.1109\/mts.2019.2913072","relation":{},"ISSN":["0278-0097","1937-416X"],"issn-type":[{"value":"0278-0097","type":"print"},{"value":"1937-416X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,6]]}}}