{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,5]],"date-time":"2026-06-05T03:05:21Z","timestamp":1780628721765,"version":"3.54.1"},"reference-count":26,"publisher":"Wiley","issue":"10","license":[{"start":{"date-parts":[[2024,9,10]],"date-time":"2024-09-10T00:00:00Z","timestamp":1725926400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["The Journal of Dermatology"],"published-print":{"date-parts":[[2024,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Psoriatic disease (PsD) is a chronic disease affecting skin (psoriasis) and joints (psoriatic arthritis, PsA) that has a significant impact on patients' quality of life (QOL). We report findings from the Japanese subgroup of patients included in Psoriasis and Beyond: The Global Psoriatic Disease Survey, a cross\u2010sectional, quantitative online survey of patients with self\u2010reported, healthcare professional (HCP)\u2010diagnosed, moderate\u2010to\u2010severe plaque psoriasis, with or without PsA. Eligible patients who were recruited online completed a 25\u2010min internet\u2010based survey in Japanese. We assessed patients' understanding of the systemic nature of PsD, disease burden, perception towards their HCPs, treatment expectations, and satisfaction with care. Of the 148 patients, 74% were females. In total, 65% of patients were aware of the systemic nature of their disease. A minority of patients (27%) were aware that PsA was related to their psoriasis, and 30% and 42% of patients were unaware of any manifestations and comorbidities, respectively, related to PsD. Overall, 21% of patients reported that their disease has a \u201cvery large\u201d to \u201cextremely large\u201d impact on their QOL (assessed by Dermatology Life Quality Index score), while the majority (61%) reported a \u201csmall\u201d effect or \u201cno effect\u201d at all on QOL. Patients experienced stigma and discrimination and had a negative impact on relationships due to PsD. More patients with psoriasis and concomitant PsA (66%) were satisfied with their current treatment than those with psoriasis alone (46%). Overall, 41% of patients were not involved in deciding their treatment goals. These results suggest that Japanese patients may not be fully aware of the systemic nature of PsD, its manifestations and comorbidities. While these patients were somewhat satisfied with their current treatment, they were only occasionally consulted in deciding treatment goals. Policy measures are required to address the stigma and discrimination experienced by patients. Increased patient participation in their care supports shared decision\u2010making and enhanced treatment outcomes.<\/jats:p>","DOI":"10.1111\/1346-8138.17424","type":"journal-article","created":{"date-parts":[[2024,9,10]],"date-time":"2024-09-10T13:01:23Z","timestamp":1725973283000},"page":"1298-1309","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Perspectives of Japanese patients on psoriatic disease burden: Results from \u201cPsoriasis and Beyond,\u201d the Global Psoriatic Disease Survey"],"prefix":"10.1111","volume":"51","author":[{"given":"Masanori","family":"Okuse","sequence":"first","affiliation":[{"name":"Japan Psoriasis Association  Tokyo Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Masayuki","family":"Soekawa","sequence":"additional","affiliation":[{"name":"Japan Psoriasis Association  Tokyo Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Asako","family":"Itakura","sequence":"additional","affiliation":[{"name":"Novartis Pharma K.K  Tokyo Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Taisuke","family":"Kawamura","sequence":"additional","affiliation":[{"name":"Novartis Pharma K.K  Tokyo Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sicily","family":"Mburu","sequence":"additional","affiliation":[{"name":"IFPA  Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan","family":"Frade","sequence":"additional","affiliation":[{"name":"Novartis Pharma AG  Basel Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9526-1259","authenticated-orcid":false,"given":"Yukari","family":"Okubo","sequence":"additional","affiliation":[{"name":"Department of Dermatology Tokyo Medical University  Tokyo Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,9,10]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1038\/nrdp.2016.82"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjmed.2009.06.021"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/09546634.2019.1605142"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41584-020-00507-9"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s13555-023-00929-9"},{"key":"e_1_2_7_7_1","unstructured":"IFPA.Psoriatic Disease Response Index \u2013 Western Pacific.2023. 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