{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T23:37:55Z","timestamp":1788219475324,"version":"build-2803163510"},"reference-count":40,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2025,9,4]],"date-time":"2025-09-04T00:00:00Z","timestamp":1756944000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100001030","name":"National Heart Foundation of Australia","doi-asserted-by":"publisher","award":["GNT102055"],"award-info":[{"award-number":["GNT102055"]}],"id":[{"id":"10.13039\/501100001030","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Aus Occup Therapy J"],"published-print":{"date-parts":[[2025,10]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Post\u2010stroke spasticity can cause serious impairment, activity limitation, and participation restrictions for survivors, leading to stroke\u2010related disability. While there are hundreds of qualitative studies regarding stroke survivor experience, the phenomenon of what it is like to have post\u2010stroke spasticity is not well understood.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Ten community\u2010dwelling adults with chronic stroke and upper limb spasticity who had recently participated in an intensive upper limb rehabilitation programme were interviewed. A descriptive phenomenological approach using thematic analysis was used to identify patterns in the data to construct an understanding of the experience of what it is like to have upper limb spasticity.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Consumer and Community Involvement<\/jats:title>\n                    <jats:p>There was consumer review of the information and consent form; there was no further consumer and community involvement.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>Having upper limb spasticity was an embodied experience. Participants created strategies to manage the spasticity and keep active and engaged in valued everyday activities. Some strategies arose from rehabilitation experience, but most were perceived by survivors to be personally developed by them and unique to their everyday activities. These self\u2010management strategies were patterns of action in everyday life that were anchored in time and their access to and use of health and home\u2010care services and assistive technology. Self\u2010management strategies involved expecting, learning, practising, evaluating, and moving forward.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Findings from this study indicate that stroke survivors who have upper limb spasticity engage in a daily process of adaptation and adjustment to stay active and engaged in valued everyday activities. Further, they use their experience in rehabilitation, access home, and health services as much as they can and develop unique strategies to self\u2010manage upper limb spasticity to reduce impairment and engage in activity. Strategies in this study provide insights for stroke survivors, families, and therapists on ways self\u2010management can be enacted from a survivor perspective.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/1440-1630.70045","type":"journal-article","created":{"date-parts":[[2025,9,4]],"date-time":"2025-09-04T08:29:37Z","timestamp":1756974577000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["What stroke survivors say about living with upper limb spasticity and how they manage it"],"prefix":"10.1111","volume":"72","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5293-6247","authenticated-orcid":false,"given":"Shannon","family":"Pike","sequence":"first","affiliation":[{"name":"School of Allied Health, Human Services and Sport (Occupational Therapy) La Trobe University  Melbourne Victoria Australia"},{"name":"Wagga Wagga Ambulatory Rehabilitation Service Murrumbidgee Local Health District  Wagga Wagga New South Wales Australia"},{"name":"School of Clinical Medicine, University of New South Wales Medicine and Health Rural Clinical Campus  Wagga Wagga New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2066-8345","authenticated-orcid":false,"given":"Natasha A.","family":"Lannin","sequence":"additional","affiliation":[{"name":"School of Allied Health, Human Services and Sport (Occupational Therapy) La Trobe University  Melbourne Victoria Australia"},{"name":"Department of Neurosciences Monash University Melbourne  Melbourne Victoria Australia"},{"name":"Rehabilitation, Aged and Community Care Alfred Health  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7029-8437","authenticated-orcid":false,"given":"Lisa","family":"Cameron","sequence":"additional","affiliation":[{"name":"Rehabilitation, Aged and Community Care Alfred Health  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6683-7354","authenticated-orcid":false,"given":"Mithu","family":"Palit","sequence":"additional","affiliation":[{"name":"Rehabilitation, Aged and Community Care Alfred Health  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9645-5429","authenticated-orcid":false,"given":"Emma","family":"Schneider","sequence":"additional","affiliation":[{"name":"Department of Neurosciences Monash University Melbourne  Melbourne Victoria Australia"},{"name":"Rehabilitation, Aged and Community Care Alfred Health  Melbourne Victoria Australia"},{"name":"School of Health Sciences, Department of Allied Health Swinburne University of Technology  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9614-1462","authenticated-orcid":false,"given":"Anne","family":"Cusick","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health The University of Sydney  Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,9,4]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2016.1198432"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_13_4_1","volume-title":"Thematic analysis a practical guide","author":"Braun V.","year":"2021"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2019.1679897"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2022.2032411"},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-018-8759-1"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.CD010442.pub2"},{"key":"e_1_2_13_9_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.1997.t01-19-00999.x"},{"key":"e_1_2_13_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269215516671013"},{"key":"e_1_2_13_11_1","unstructured":"Joanna Briggs Institute. 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