{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T16:08:35Z","timestamp":1791994115444,"version":"4.4.0"},"reference-count":42,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2025,7,25]],"date-time":"2025-07-25T00:00:00Z","timestamp":1753401600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2025,7,25]],"date-time":"2025-07-25T00:00:00Z","timestamp":1753401600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Intl J Lang &amp;amp; Comm Disor"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Appropriate management of chronic oropharyngeal dysphagia (OD) requires a family\u2010centred approach. However, limited information is available on the challenges and resources perceived by informal caregivers who assist individuals with chronic OD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>To investigate the daily challenges and resources reported by informal caregivers of persons with chronic OD, in order to identify critical aspects requiring implementation through healthcare services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Eighteen Italian informal caregivers (age 54.2 \u00b1 12.9; 61% female) assisting adults with chronic OD participated in a qualitative study based on a modified framework analysis approach. Care\u2010related challenges and resources were investigated through semi\u2010structured interviews. Two clinical researchers transcribed and coded the interviews, elaborated a working analytical framework, indexed and charted the data. Discrepancies were solved through negotiated agreement and discussion with a third academic researcher. Proportion agreement on extracted quotations was computed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Interviews generated 360 quotations (86% agreement). Specific OD\u2010related challenges emerged in various domains: practical (meal management, food availability and preparation, daily planning), informational, psychological (coping strategies, caring burden, acceptance of their care recipients\u2019 condition, psychological support) and social (change in social roles, care recipient's well\u2010being, social acceptance of OD, social support). The majority of participants identified OD\u2010related problems (\n                      <jats:italic>n<\/jats:italic>\n                      = 17, 94%) and obstacles in healthcare services use (\n                      <jats:italic>n<\/jats:italic>\n                      = 12, 67%); almost half reported care needs (\n                      <jats:italic>n<\/jats:italic>\n                      = 8, 44%). Regarding resources, most participants referred to coping strategies (\n                      <jats:italic>n<\/jats:italic>\n                      = 17, 94%), personal capabilities (\n                      <jats:italic>n<\/jats:italic>\n                      = 17, 94%), support from family (\n                      <jats:italic>n<\/jats:italic>\n                      = 14, 82%) and healthcare services (\n                      <jats:italic>n<\/jats:italic>\n                      = 14, 78%).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Findings suggest that caring for a person with chronic OD prompts personal and social challenges and resources, besides practical and informational issues. Further research is needed to better understand the determinants and dynamics of caregivers\u2019 positive adjustment and promote a comprehensive family\u2010centred care, overcoming the disease\u2010centred view of caring, primarily focussed on providing information about meal management, clinical issues and related aspects.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>WHAT THIS PAPER ADDS<\/jats:title>\n                    <jats:p>\n                      <jats:italic>What is already known on the subject<\/jats:italic>\n                      <jats:list list-type=\"bullet\">\n                        <jats:list-item>\n                          <jats:p>Family\u2010centred approaches involving informal caregivers have been advocated for chronic oropharyngeal dysphagia care. However, limited information is available on informal caregivers\u2019 daily challenges and resources.<\/jats:p>\n                        <\/jats:list-item>\n                      <\/jats:list>\n                    <\/jats:p>\n                    <jats:p>\n                      <jats:italic>What this paper adds to the existing knowledge<\/jats:italic>\n                      <jats:list list-type=\"bullet\">\n                        <jats:list-item>\n                          <jats:p>Caring for a person with chronic oropharyngeal dysphagia may prompt personal and social challenges and needs beyond those related to clinical and practical knowledge about effective management of the care recipients\u2019 condition.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>A broad set of personal and social resources was identified in adjusting to the caring role.<\/jats:p>\n                        <\/jats:list-item>\n                      <\/jats:list>\n                    <\/jats:p>\n                    <jats:p>\n                      <jats:italic>What are the potential or actual clinical implications of this work?<\/jats:italic>\n                      <jats:list list-type=\"bullet\">\n                        <jats:list-item>\n                          <jats:p>Positive adjustment to the caring role was observed in chronic oropharyngeal dysphagia care, but its determinants and dynamics require further investigation.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Family\u2010centred care approaches for chronic oropharyngeal dysphagia should assess informal caregivers\u2019 multifaceted challenges and address them building on caregivers\u2019 personal and environmental resources.<\/jats:p>\n                        <\/jats:list-item>\n                      <\/jats:list>\n                    <\/jats:p>\n                  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