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This shift is a product of the intersection between paediatric and genetic medicine, where parents play a critical role in providing information about their child, family and ultimately, about themselves. To provide a context for this matrix, two broad areas of sociological inquiry are highlighted. The first is explanations of the role a parent plays in paediatric medicine and the second is the diagnostic process in paediatric genetics and the implications for parent and child identities. Drawing from an ethnographic study of clinical consultations, attention is paid to the changing role of parenthood and the extended role of patienthood in paediatric genetic medicine.<\/jats:p>","DOI":"10.1111\/1467-9566.12035","type":"journal-article","created":{"date-parts":[[2013,4,10]],"date-time":"2013-04-10T06:53:53Z","timestamp":1365576833000},"page":"1-14","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["Negotiating identity at the intersection of paediatric and genetic medicine: the parent as facilitator, narrator and patient"],"prefix":"10.1111","volume":"36","author":[{"given":"Rebecca","family":"Dimond","sequence":"first","affiliation":[{"name":"School of Social Sciences Cardiff University Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2013,4,10]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2007.12.022"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(98)00241-X"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(84)90324-1"},{"key":"e_1_2_11_5_1","article-title":"Medical Talk and Medical Work","author":"Atkinson P.","year":"1995","journal-title":"The Liturgy of the Clinic"},{"key":"e_1_2_11_6_1","author":"Atkinson P.","year":"1997","journal-title":"Qualitative Research: Theory, Method and Practice"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1080\/14636770125617"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.1992.tb00119.x"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.3399\/096016407782317892"},{"key":"e_1_2_11_10_1","article-title":"Children in Clinics:","author":"Davis A.G.","year":"1982","journal-title":"A Sociological Analysis of Medical Work with Children"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2005.08.021"},{"key":"e_1_2_11_12_1","volume-title":"Multiple meanings of a rare genetic disorder: 22q11 deletion syndrome","author":"Dimond","year":"2011"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2005.00456.x"},{"key":"e_1_2_11_14_1","author":"Featherstone K.","year":"2006","journal-title":"Risky Relations: Family, Kinship and the New Genetics"},{"key":"e_1_2_11_15_1","author":"Featherstone K.","year":"2007","journal-title":"New Genetics, New Identities, Oxford"},{"key":"e_1_2_11_16_1","author":"Foucault M.","year":"1973","journal-title":"The Birth of the Clinic: An Archaeology of Medical Perception"},{"key":"e_1_2_11_17_1","author":"Fox R.","year":"1959","journal-title":"Experiment Perilous: Physicians and Patients Facing the Unknown"},{"key":"e_1_2_11_18_1","author":"Freidson E.","year":"1970","journal-title":"Profession of Medicine: A Study of the Sociology of Applied Knowledge"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2003.09.035"},{"key":"e_1_2_11_20_1","author":"Goffman E.","year":"1959","journal-title":"The Presentation of Self in Everyday Life"},{"key":"e_1_2_11_21_1","author":"Goffman E.","year":"1968","journal-title":"Stigma. 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