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There is no known cause or cure for <jats:styled-content style=\"fixed-case\">MND<\/jats:styled-content>, and expected survival is 2\u20135\u00a0years, but several interventions may improve or prolong life. This study draws on qualitative interview data with health professionals in hospitals and primary care, and family carers, in Norway. The actors emphasised chronic and terminal aspects in subtly different ways along the entire illness trajectory, also when recounting the trajectory in retrospect. As a consequence of improved health services and medical technology the distinction between chronicity and terminality has become more vague and sometimes ambiguous. We suggest the concept unstable terminality to describe this ambiguity. While <jats:styled-content style=\"fixed-case\">MND<\/jats:styled-content> is a fatal diagnosis; it may be contested, as contingencies and interventions create an indefinite time scope. The instability creates challenges for primary care which is dependent on prognostic information to organise their effort; hospitals tackle the instability by pre\u2010scheduled consultations allowing for avoidance of an explicit prognosis. Some carers experienced what we understand as a disruption within the disruption, living with chronic and terminal illness simultaneously, which made the limbo phase more challenging to overcome.<\/jats:p>","DOI":"10.1111\/1467-9566.12182","type":"journal-article","created":{"date-parts":[[2015,1,20]],"date-time":"2015-01-20T17:37:40Z","timestamp":1421775460000},"page":"81-96","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":23,"title":["Unstable terminality: negotiating the meaning of chronicity and terminality in motor neurone disease"],"prefix":"10.1111","volume":"37","author":[{"given":"Sverre Vigeland","family":"Lerum","sequence":"first","affiliation":[{"name":"Institute of Health and Society University of Oslo Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kari Nyheim","family":"Solbr\u00e6kke","sequence":"additional","affiliation":[{"name":"Institute of Health and Society University of Oslo Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Trygve","family":"Holm\u00f8y","sequence":"additional","affiliation":[{"name":"Institute of Clinical Medicine University of Oslo Norway"},{"name":"Department of Neurology Akershus University Hospital Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jan C.","family":"Frich","sequence":"additional","affiliation":[{"name":"Institute of Health and Society University of Oslo Norway"},{"name":"Department of Neurology Oslo University Hospital Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2015,1,20]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2004.05.002"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-1331.2011.03501.x"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1525\/9780520919242"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.7551\/mitpress\/6352.001.0001"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1191\/1463423603pc151oa"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.ep11339939"},{"key":"e_1_2_7_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.ep10491512"},{"key":"e_1_2_7_9_1","volume-title":"Death Foretold: Prophecy and Prognosis in Medical Care","author":"Christakis N. 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