{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,27]],"date-time":"2026-09-27T12:45:42Z","timestamp":1790513142721,"version":"4.1.0"},"reference-count":53,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2016,9,6]],"date-time":"2016-09-06T00:00:00Z","timestamp":1473120000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Sociology Health &amp; Illness"],"published-print":{"date-parts":[[2016,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Studies about the psychosocial issues concerning organ donation and transplantation tend to focus on the experiences of donor or recipient families. Little is known about the part played by correspondence exchanged between these two groups; in particular how they perceive the agency of organ donation. This is the first analysis to address the representation of the act of donation from the viewpoint of both donor and recipient families through interrogation of archived correspondence data, using linguistic techniques. The data was drawn from a collection of letters, from four<jats:styled-content style=\"fixed-case\">USA<\/jats:styled-content>organ procurement organisations, exchanged between donor and transplant recipient families. Donor families consistently linguistically ascribed agency and accountability for donation to the person who died, the donor. For the recipient families, on the other hand, the \u2018giver\u2019 was mainly implied, ambiguous or ascribed to the donor family.<\/jats:p>","DOI":"10.1111\/1467-9566.12478","type":"journal-article","created":{"date-parts":[[2016,9,6]],"date-time":"2016-09-06T06:33:39Z","timestamp":1473143619000},"page":"1350-1363","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":12,"title":["Organ donation agency: A discourse analysis of correspondence between donor and organ recipient families"],"prefix":"10.1111","volume":"38","author":[{"given":"Dariusz","family":"Galasi\u0144ski","sequence":"first","affiliation":[{"name":"Faculty of Arts University of Wolverhampton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Magi","family":"Sque","sequence":"additional","affiliation":[{"name":"Centre for Health and Social Care Improvement Faculty of Education, Health and Wellbeing University of Wolverhampton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2016,9,6]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.7182\/prtr.1.9.4.75r22071pv3l1p06"},{"key":"e_1_2_13_3_1","volume-title":"Cultural Studies and Discourse Analysis","author":"Barker C.","year":"2001"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1017\/CBO9780511620935"},{"key":"e_1_2_13_5_1","volume-title":"Equivocal Communication","author":"Bavelas J.Beavin","year":"1990"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2006.09.006"},{"key":"e_1_2_13_7_1","doi-asserted-by":"crossref","DOI":"10.5040\/9798400693816","volume-title":"Organ Donation and Transplantation: Body Organs as an Exchangeable Socio\u2010cultural Resource","author":"Ben\u2010David O.B.","year":"2005"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1017\/CBO9780511813085"},{"key":"e_1_2_13_9_1","doi-asserted-by":"publisher","DOI":"10.1080\/07481180290106607"},{"key":"e_1_2_13_10_1","doi-asserted-by":"crossref","unstructured":"De Luca E. Poole J.M. Abbey S.A. Shildrick M. et\u00a0al. (2014).Heart transplants: Identity disruption bodily integrity and interconnectedness. Health published online: 30 Nov 2014. doi:10.1177\/1363459314560067","DOI":"10.1177\/1363459314560067"},{"key":"e_1_2_13_11_1","unstructured":"European Day for Organ Donation and Transplantation (EODD)(2015) Available athttps:\/\/www.edqm.eu\/en\/events\/european-day-organ-donation-eodd(Last accessed 2 February 2016)."},{"key":"e_1_2_13_12_1","volume-title":"Discourse and Social Change","author":"Fairclough N.","year":"1992"},{"key":"e_1_2_13_13_1","doi-asserted-by":"publisher","DOI":"10.1017\/CBO9780511973536"},{"key":"e_1_2_13_14_1","doi-asserted-by":"crossref","DOI":"10.1093\/oso\/9780195076509.001.0001","volume-title":"Spare Parts: Organ Replacement in American Society","author":"Fox R.","year":"1992"},{"key":"e_1_2_13_15_1","doi-asserted-by":"publisher","DOI":"10.1057\/9780230510128"},{"key":"e_1_2_13_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-8519.1994.tb00250.x"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2005.00433.x"},{"key":"e_1_2_13_18_1","volume-title":"An Introduction to Functional Grammar","author":"Halliday M.A.K.","year":"1994"},{"key":"e_1_2_13_19_1","volume-title":"Language as Ideology","author":"Hodge R.","year":"1993"},{"key":"e_1_2_13_20_1","volume-title":"Wrapped in Mourning: The Gift of Life and Organ Donor Family Trauma","author":"Holtkamp S.","year":"2002"},{"key":"e_1_2_13_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9655.00036"},{"issue":"1","key":"e_1_2_13_22_1","first-page":"1699","article-title":"Donor families\u2019 attitude toward organ donation","volume":"25","author":"La Spina F.","year":"1993","journal-title":"Transplantation Proceedings"},{"key":"e_1_2_13_23_1","doi-asserted-by":"crossref","unstructured":"Lauritzen P. McClure M. Smith M. L.andTrew A.(2001)The gift of life and the common good: The need for a communal approach to organ procurement Hastings Center Report January\u2013February 31 1 29\u201335.","DOI":"10.2307\/3528731"},{"key":"e_1_2_13_24_1","doi-asserted-by":"publisher","DOI":"10.4324\/9780203342763"},{"key":"e_1_2_13_25_1","volume-title":"Organ Transplants and the Reinvention of Death","author":"Lock M.","year":"2002"},{"key":"e_1_2_13_26_1","volume-title":"The Gift: The Form and Reason for Exchange in Archaic Societies","author":"Mauss M.","year":"1990"},{"key":"e_1_2_13_27_1","doi-asserted-by":"publisher","DOI":"10.7182\/pit2013410"},{"key":"e_1_2_13_28_1","doi-asserted-by":"publisher","DOI":"10.1076\/jmep.28.1.89.14175"},{"key":"e_1_2_13_29_1","unstructured":"NHS Blood and Transplant(2016) Available athttp:\/\/www.nhsbt.nhs.uk\/what-we-do\/organ-donation-transplantation(Last accessed 27 February 2016)."},{"key":"e_1_2_13_30_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216306072348"},{"key":"e_1_2_13_31_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.1992.tb01822.x"},{"issue":"2","key":"e_1_2_13_32_1","first-page":"63","article-title":"Emotions experienced and coping strategies used by family members of organ donors","volume":"25","author":"Pelletier M.","year":"1993","journal-title":"Canadian Journal of Nursing Research"},{"key":"e_1_2_13_33_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1600-6143.2005.01130.x"},{"key":"e_1_2_13_34_1","doi-asserted-by":"publisher","DOI":"10.1525\/9780520939615"},{"key":"e_1_2_13_35_1","doi-asserted-by":"crossref","unstructured":"Siminoff L.A.andChillag K.(1999).The fallacy of the \u2018gift of life\u2019 Hastings Center Report November\u2013December 29 6 34\u201341.","DOI":"10.2307\/3527870"},{"key":"e_1_2_13_36_1","unstructured":"Sque M.(2002)A story to tell\u2019: post bereavement correspondence between organ donor families recipients their OPOs and the National Donor Family Council \u2013 an American investigation. Final report of a study funded by The General Nursing Council for England & Wales Trust University of Surrey UK."},{"key":"e_1_2_13_37_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0963180112000382"},{"key":"e_1_2_13_38_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.transproceed.2004.11.038"},{"key":"e_1_2_13_39_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2007.04491.x"},{"key":"e_1_2_13_40_1","doi-asserted-by":"publisher","DOI":"10.1017\/CBO9780511973536.005"},{"key":"e_1_2_13_41_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(96)00002-0"},{"key":"e_1_2_13_42_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.1994.tb01049.x"},{"issue":"2","key":"e_1_2_13_43_1","first-page":"117","article-title":"Gift of life or sacrifice?","volume":"11","author":"Sque M.","year":"2006","journal-title":"Key discourses to understanding organ donor families\u2019 decision\u2010making, Mortality"},{"key":"e_1_2_13_44_1","unstructured":"Sque M. Walker W. Long\u2010Sutehall T. Morgan M. et\u00a0al. (2013)Bereaved families\u2019 experiences of organ and tissue donation and perceived influences on their decision making. University of Wolverhampton Final report of a study funded by the English Department of Health."},{"key":"e_1_2_13_45_1","doi-asserted-by":"publisher","DOI":"10.14318\/hau3.1.026"},{"key":"e_1_2_13_46_1","unstructured":"United Network for Organ Sharing (UNOS)(2016) Available athttps:\/\/www.unos.org\/data\/(Last accessed 27 February 2016)."},{"key":"e_1_2_13_47_1","doi-asserted-by":"publisher","DOI":"10.7182\/prtr.1.7.3.y71142l18j6k4067"},{"key":"e_1_2_13_48_1","doi-asserted-by":"publisher","DOI":"10.1177\/0957926593004002006"},{"key":"e_1_2_13_49_1","doi-asserted-by":"publisher","DOI":"10.1093\/acprof:oso\/9780195323306.001.0001"},{"key":"e_1_2_13_50_1","doi-asserted-by":"publisher","DOI":"10.1177\/1461445699001001005"},{"key":"e_1_2_13_51_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1547-5069.1990.tb00221.x"},{"key":"e_1_2_13_52_1","doi-asserted-by":"publisher","DOI":"10.1525\/california\/9780520076037.001.0001"},{"issue":"2","key":"e_1_2_13_53_1","first-page":"73","article-title":"Nurses\u2019 experiences giving post\u2010mortem care to patients who have donated organs: A phenomenological study","volume":"5","author":"Wolf Z.R.","year":"1991","journal-title":"Scholarly Inquiry for Nursing Practice"},{"key":"e_1_2_13_54_1","volume-title":"Transplanting Human Tissue: Ethics, Policy, and Practice","author":"Youngner S.","year":"2004"}],"container-title":["Sociology of Health &amp; Illness"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2F1467-9566.12478","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2F1467-9566.12478","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/1467-9566.12478","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,6,19]],"date-time":"2024-06-19T06:31:55Z","timestamp":1718778715000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/1467-9566.12478"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,9,6]]},"references-count":53,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2016,11]]}},"alternative-id":["10.1111\/1467-9566.12478"],"URL":"https:\/\/doi.org\/10.1111\/1467-9566.12478","archive":["Portico"],"relation":{},"ISSN":["0141-9889","1467-9566"],"issn-type":[{"value":"0141-9889","type":"print"},{"value":"1467-9566","type":"electronic"}],"subject":[],"published":{"date-parts":[[2016,9,6]]},"assertion":[{"value":"2016-09-06","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}