{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T05:49:58Z","timestamp":1780552198377,"version":"3.54.1"},"reference-count":40,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2018,3,1]],"date-time":"2018-03-01T00:00:00Z","timestamp":1519862400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Sociology Health &amp; Illness"],"published-print":{"date-parts":[[2019,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The aim of this paper is to examine the meaning of the concept of donation in health research. Drawing on a set of narrative interviews with people invited to donate biosamples for research and a range of other studies, we identify several conceptual themes that speak to the complexity of the current landscape of critical thinking about donation. These conceptual themes are: the language of \u2018donation\u2019; a hierarchy of biosamples; alternative informational value; narratives as donation; coincidental donation, convenience and degree of invasiveness; and rights, consent and benefits of research participation. We call for a reconceptualisation of research donation to encompass not only the numerous types of sample readily classed as donations, but also other types of data and contributions, including narrative interviews, psychometric data, patient\u2010reported outcome measures, record\u2010linkage, and time and effort. We argue for the development of a pluralist sociology of research donations, and suggest that a \u2018sociology of research contributions\u2019 might better capture this complexity.<\/jats:p>","DOI":"10.1111\/1467-9566.12715","type":"journal-article","created":{"date-parts":[[2018,3,1]],"date-time":"2018-03-01T10:51:01Z","timestamp":1519901461000},"page":"585-600","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["From waste product to blood, brains and narratives: developing a pluralist sociology of contributions to health research"],"prefix":"10.1111","volume":"41","author":[{"given":"Anne\u2010Marie R.","family":"Boylan","sequence":"first","affiliation":[{"name":"Health Experiences Research Group (HERG), Nuffield Department of Primary Care, Health Sciences University of Oxford UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Louise","family":"Locock","sequence":"additional","affiliation":[{"name":"Health Services Research Unit University of Aberdeen UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Machin","sequence":"additional","affiliation":[{"name":"Lancaster Medical School Lancaster University UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2018,3]]},"reference":[{"key":"e_1_2_13_2_1","volume-title":"Body bazaar: the market for human tissues in the biotechnology age","author":"Andrews L.","year":"2001"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.rbmo.2010.10.001"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1086\/674424"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12479"},{"key":"e_1_2_13_6_1","volume-title":"The body","author":"Fox N.J.","year":"2012"},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781849209878"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/1463677032000147199"},{"key":"e_1_2_13_9_1","volume-title":"Genetic databases: Socio\u2010ethical issues in the collection and use of DNA","author":"Hoeyer K.","year":"2004"},{"key":"e_1_2_13_10_1","doi-asserted-by":"publisher","DOI":"10.5661\/bger-25-429"},{"key":"e_1_2_13_11_1","doi-asserted-by":"publisher","DOI":"10.1159\/000262329"},{"key":"e_1_2_13_12_1","doi-asserted-by":"publisher","DOI":"10.1038\/500141a"},{"key":"e_1_2_13_13_1","volume-title":"Principles and practice in biobank governance","author":"Kanellopoulou N.","year":"2009"},{"key":"e_1_2_13_14_1","doi-asserted-by":"publisher","DOI":"10.1038\/ejhg.2014.71"},{"key":"e_1_2_13_15_1","volume-title":"The absent body","author":"Leder D.","year":"1990"},{"key":"e_1_2_13_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2011.01342.x"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12376"},{"key":"e_1_2_13_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12519"},{"key":"e_1_2_13_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2011.06.002"},{"key":"e_1_2_13_20_1","doi-asserted-by":"publisher","DOI":"10.1177\/1740774510392257"},{"key":"e_1_2_13_21_1","doi-asserted-by":"publisher","DOI":"10.1055\/s-0033-1343492"},{"key":"e_1_2_13_22_1","doi-asserted-by":"publisher","DOI":"10.7590\/221354015X14488767262750"},{"key":"e_1_2_13_23_1","unstructured":"Mahon\u2010Daly P.(2012)Blood society and the gift: An ethnography of change in the gift relationship. 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