{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T00:52:49Z","timestamp":1767833569130,"version":"3.49.0"},"reference-count":34,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2019,9,9]],"date-time":"2019-09-09T00:00:00Z","timestamp":1567987200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100005897","name":"Soci\u00e9t\u00e9 Fran\u00e7aise de Dermatologie et de Pathologie Sexuellement Transmissible","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100005897","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Sociology Health &amp; Illness"],"published-print":{"date-parts":[[2020,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Using the biographical disruption literature, this article examines how the experience of illness \u2013 in this case, pemphigus \u2013 reconfigures engagement in leisure activities, and how these activities are integrated into the biographies of persons with a rare chronic illness. Among the changes imposed by the illness, leisure activities are especially enlightening, as they primarily depend on the body. The article is based on a study of 50 interviews of persons with pemphigus, a rare and chronic dermatological disorder. The ways in which they relate to leisure activities give a new perspective on biographical disruption. The first striking observation is how diverse they are: illness does not level social differences or lived experience, and can even further consolidate commitment to engagements. We identified four types of engagement in leisure activities: disengagement, which reveals biographical disruption; adapted engagement, leading individuals toward low\u2010risk physical activities; engagement in medicalised normalisation; and salutary engagement.<\/jats:p>","DOI":"10.1111\/1467-9566.12987","type":"journal-article","created":{"date-parts":[[2019,9,9]],"date-time":"2019-09-09T15:29:02Z","timestamp":1568042942000},"page":"65-79","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Engagement in leisure and physical activities: analysing the biographical disruptions of a rare chronic disease in France"],"prefix":"10.1111","volume":"42","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3538-4385","authenticated-orcid":false,"given":"Yannick","family":"Le H\u00e9naff","sequence":"first","affiliation":[{"name":"Rouen Normandy University Mont\u2010Saint\u2010Aignan France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stephane","family":"H\u00e9as","sequence":"additional","affiliation":[{"name":"Rennes University Rennes France"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2019,9,9]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.2001.01767.x"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/07053436.2014.936163"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.3917\/spub.160.0153"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.ep11339939"},{"issue":"4","key":"e_1_2_10_6_1","first-page":"657","article-title":"The body, identity and self: adapting to impairment","volume":"36","author":"Charmaz K.","year":"1995","journal-title":"The Sociologica Quaterly"},{"key":"e_1_2_10_7_1","volume-title":"The Experience and Management of Chronic Illness: Research in the Sociology of Health Care","author":"Corbin J.","year":"1987"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2004.00388.x"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1080\/07053436.2014.936162"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1080\/07053436.2014.936161"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1123\/ssj.19.4.370"},{"key":"e_1_2_10_12_1","volume-title":"The Discovery of Grounded Theory: Strategies for Qualitative Research","author":"Glaser B.","year":"1967"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2009.01172.x"},{"key":"e_1_2_10_14_1","volume-title":"Anthropologie des relaxations des m\u00e9thodes modernes de loisirs, de soin et de gestion personnelle?","author":"H\u00e9as S.","year":"2004"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.7202\/039315ar"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.3917\/rsss.011.0099"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732311421179"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.annder.2011.01.016"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732318803590"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2014.05.037"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2009.01176.x"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732311421179"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.3917\/spub.160.0033"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.12301"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1080\/00222216.2012.11950272"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.3917\/spub.160.0141"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2010.01305.x"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.00292"},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2018.10.001"},{"key":"e_1_2_10_30_1","doi-asserted-by":"publisher","DOI":"10.1080\/01490400.2015.1057660"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.12754"},{"key":"e_1_2_10_32_1","doi-asserted-by":"publisher","DOI":"10.1093\/sw\/46.2.125"},{"key":"e_1_2_10_33_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732309337523"},{"key":"e_1_2_10_34_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/kel080"},{"key":"e_1_2_10_35_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.00191"}],"container-title":["Sociology of Health &amp; 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