{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,28]],"date-time":"2026-10-28T07:42:32Z","timestamp":1793173352208,"version":"4.5.0"},"reference-count":55,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2024,1,2]],"date-time":"2024-01-02T00:00:00Z","timestamp":1704153600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100006692","name":"Universit\u00e0 degli Studi di Torino","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100006692","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Sociology Health &amp;amp; Illness"],"published-print":{"date-parts":[[2024,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>This article aims to advance knowledge related to the concept of the \u2018shame\u2013blame complex\u2019 by analysing the accounts and experiences of parents with cognitively disabled children. It draws on 29 interviews with parents of children with Down syndrome and shadowing sessions with one family, carried out in Italy. Results show how the feeling of shame as a consequence of being associated with a disabled child is turned into blame for bad parenting. The sources of this blaming process are twofold: firstly, neoliberalism has disseminated an intensive parenting model based on the imperative of individual responsibility and risk avoidance. Secondly, ableism acts as a network of processes and beliefs that produce a particular kind of self and body as the perfect and complete human being. Participants have been held responsible for their children\u2019s condition because they avoided prenatal screening or continued a pregnancy after receiving a positive result. Consequently, parents\u2019 moral culpability for their children\u2019s diversity and their social marginalisation were enhanced. Although the interviewees resist the shame of being associated with a cognitively disabled child and the blame for bad parenting, they seem unable to escape from the grips of the shame\u2013blame complex. The latter has structural and cultural underpinnings. In an age of \u2018neoliberal\u2010ableism\u2019, this complex is indeed a powerful weapon to erode the rights of families with cognitively disabled members.<\/jats:p>","DOI":"10.1111\/1467-9566.13742","type":"journal-article","created":{"date-parts":[[2024,1,2]],"date-time":"2024-01-02T21:39:53Z","timestamp":1704231593000},"page":"966-983","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":18,"title":["The shame\u2013blame complex of parents with cognitively disabled children in Italy"],"prefix":"10.1111","volume":"46","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0972-318X","authenticated-orcid":false,"given":"Alice","family":"Scavarda","sequence":"first","affiliation":[{"name":"Universit\u00e0 di Torino  Torino Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,1,2]]},"reference":[{"key":"e_1_2_15_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/1363459311416832"},{"key":"e_1_2_15_3_1","volume-title":"Exploring disability","author":"Barnes C.","year":"2010"},{"issue":"5","key":"e_1_2_15_4_1","first-page":"265","article-title":"Courtesy stigma revisited","volume":"30","author":"Birenbaum A.","year":"1992","journal-title":"Mental Retardation"},{"key":"e_1_2_15_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/0891243206298178"},{"key":"e_1_2_15_6_1","doi-asserted-by":"publisher","DOI":"10.1057\/9781137023001_13"},{"key":"e_1_2_15_7_1","doi-asserted-by":"publisher","DOI":"10.4324\/9780429464232"},{"key":"e_1_2_15_8_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11013\u2010015\u20109450\u2010y"},{"key":"e_1_2_15_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/symb.432"},{"key":"e_1_2_15_10_1","volume-title":"Shadowing: And other techniques for doing fieldwork in modern societies","author":"Czarniawska B.","year":"2007"},{"key":"e_1_2_15_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2017.11.030"},{"key":"e_1_2_15_12_1","first-page":"3","volume-title":"Negotiating at the margins","author":"Davis K.","year":"1993"},{"key":"e_1_2_15_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467\u20109566.2009.01174.x"},{"key":"e_1_2_15_14_1","doi-asserted-by":"publisher","DOI":"10.1086\/320004"},{"key":"e_1_2_15_15_1","doi-asserted-by":"publisher","DOI":"10.1080\/13648470301264"},{"key":"e_1_2_15_16_1","unstructured":"Fondazione Serono e Censis. 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