{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,20]],"date-time":"2026-10-20T19:03:54Z","timestamp":1792523034139,"version":"4.5.0"},"reference-count":46,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2025,10,24]],"date-time":"2025-10-24T00:00:00Z","timestamp":1761264000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2025,10,24]],"date-time":"2025-10-24T00:00:00Z","timestamp":1761264000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100018695","name":"HORIZON EUROPE Research Infrastructures","doi-asserted-by":"publisher","award":["ISIDORe \/ grant agreement 101046133"],"award-info":[{"award-number":["ISIDORe \/ grant agreement 101046133"]}],"id":[{"id":"10.13039\/100018695","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Sociology Health &amp;amp; Illness"],"published-print":{"date-parts":[[2025,11]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>For many people living with long COVID (PWLC), self\u2010tracking has emerged as a valuable practice to monitor their illness. An examination of self\u2010tracking practices can, therefore, shed light on the ways in which individuals navigate their care, make sense of their experiences and advocate for their needs. This study investigates how PWLC engage in self\u2010tracking practices and how they utilise and negotiate the data generated. Based on 33 semi\u2010structured interviews with PWLC in the Netherlands, Austria and Switzerland, we found that PWLC use self\u2010tracking to recognise patterns and identify limits, triggers and effective interventions. The insights drawn from this are used to make informed decisions about health management strategies. Yet, self\u2010tracking may also reify symptoms and negatively influence the subjective illness experience, exacerbating stress and anxiety. Although PWLC themselves negotiate and question their tracking data, they find a variety of responses from healthcare providers in clinical interactions. Using the concept of \u2018trading zone\u2019 (Kj\u00e6rulff and Langstrup), we argue that although self\u2010tracking cannot replace treatment and good care, its integration into the healthcare experience as a valuable form of patient knowledge may improve the patient\u2013provider relationship.<\/jats:p>","DOI":"10.1111\/1467-9566.70102","type":"journal-article","created":{"date-parts":[[2025,10,24]],"date-time":"2025-10-24T17:10:38Z","timestamp":1761325838000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["\u2018I Do Take the Number Seriously, but I Don't Let My Moods Depend on It\u2019: Negotiating Self\u2010Tracking Data With People Living With Long COVID in the Netherlands, Austria and Switzerland"],"prefix":"10.1111","volume":"47","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1697-4144","authenticated-orcid":false,"given":"Ellen","family":"Algera","sequence":"first","affiliation":[{"name":"Amsterdam Institute of Global Health and Development  Amsterdam the Netherlands"},{"name":"Department of Anthropology University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-0980-7285","authenticated-orcid":false,"given":"Anna Christina","family":"Maukner","sequence":"additional","affiliation":[{"name":"Amsterdam Institute of Global Health and Development  Amsterdam the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jade","family":"van Dorth","sequence":"additional","affiliation":[{"name":"Department of Communication University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2787-8086","authenticated-orcid":false,"given":"Monique C.","family":"Alblas","sequence":"additional","affiliation":[{"name":"Department of Communication University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5111-4070","authenticated-orcid":false,"given":"Jonathan","family":"Sobel","sequence":"additional","affiliation":[{"name":"Department of Infection Prevention and Control University Hospital of Geneva  Geneva Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7455-0628","authenticated-orcid":false,"given":"Daniel H.","family":"de Vries","sequence":"additional","affiliation":[{"name":"Amsterdam Institute of Global Health and Development  Amsterdam the Netherlands"},{"name":"Department of Anthropology University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,10,24]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41591\u2010024\u201003173\u20106"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467\u20109566.13570"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/13634593251319920"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10840\u2010022\u201001138\u20108"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467\u20109566.13864"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.2196\/32193"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/capr.12360"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1145\/3686988"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/089826439100300101"},{"key":"e_1_2_11_11_1","first-page":"1","volume-title":"Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. Presented at the CHI \u201919: CHI Conference on Human Factors in Computing Systems","author":"Davies T.","year":"2019"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.eclinm.2021.101019"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.2196\/37674"},{"key":"e_1_2_11_14_1","first-page":"137","volume-title":"The Science Studies Reader","author":"Galison P.","year":"1999"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13063\u2010022\u201006578\u20101"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.5220\/0010972300003123"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0274469"},{"key":"e_1_2_11_18_1","first-page":"1","volume-title":"Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems. Presented at the CHI \u201923: CHI Conference on Human Factors in Computing Systems","author":"Homewood S.","year":"2023"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1145\/3643834.3661617"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0281884"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13518"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1080\/1369118X.2025.2483834"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.25300\/MISQ\/2020\/15108"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.3390\/bios13010062"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2023.115756"},{"key":"e_1_2_11_26_1","volume-title":"Supporting Activity Pacing with Continuous Feedback Using Smartwatches","author":"K\u00fcbler S.","year":"2023"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.1080\/17482631.2017.1392219"},{"key":"e_1_2_11_28_1","doi-asserted-by":"publisher","DOI":"10.1080\/09581596.2013.794931"},{"key":"e_1_2_11_29_1","doi-asserted-by":"publisher","DOI":"10.1057\/sth.2013.10"},{"key":"e_1_2_11_30_1","volume-title":"The Quantified Self: A Sociology of Self\u2010Tracking","author":"Lupton D.","year":"2016"},{"key":"e_1_2_11_31_1","volume-title":"Self\u2010Tracking, Health and Medicine: Sociological Perspectives","author":"Lupton D.","year":"2018"},{"key":"e_1_2_11_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/1329878X19844042"},{"key":"e_1_2_11_33_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467\u20109566.13795"},{"key":"e_1_2_11_34_1","doi-asserted-by":"publisher","DOI":"10.2196\/43113"},{"key":"e_1_2_11_35_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph19095268"},{"key":"e_1_2_11_36_1","volume-title":"Studies in Health Technology and Informatics","author":"Ruckser\u2010Scherb R.","year":"2022"},{"key":"e_1_2_11_37_1","doi-asserted-by":"publisher","DOI":"10.1101\/2023.08.30.23294831"},{"key":"e_1_2_11_38_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12967\u2010023\u201004587\u20105"},{"key":"e_1_2_11_39_1","first-page":"1","volume-title":"Extended Abstracts of the 2023 CHI Conference on Human Factors in Computing Systems. Presented at the CHI \u201923: CHI Conference on Human Factors in Computing Systems","author":"Sas C.","year":"2023"},{"key":"e_1_2_11_40_1","doi-asserted-by":"publisher","DOI":"10.2196\/36065"},{"key":"e_1_2_11_41_1","doi-asserted-by":"publisher","DOI":"10.3233\/SHTI230013"},{"key":"e_1_2_11_42_1","doi-asserted-by":"publisher","DOI":"10.1145\/3196709.3196738"},{"key":"e_1_2_11_43_1","doi-asserted-by":"publisher","DOI":"10.1177\/0022146509361185"},{"key":"e_1_2_11_44_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-031-28032-0_25"},{"key":"e_1_2_11_45_1","doi-asserted-by":"publisher","DOI":"10.23987\/sts.112027"},{"key":"e_1_2_11_46_1","doi-asserted-by":"publisher","DOI":"10.1177\/13634593231175321"},{"key":"e_1_2_11_47_1","unstructured":"WHO.2022.Post COVID\u201019 Condition (Long COVID). [WWW Document].https:\/\/www.who.int\/europe\/news\u2010room\/fact\u2010sheets\/item\/post\u2010covid\u201019\u2010condition."}],"container-title":["Sociology of Health &amp; Illness"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/1467-9566.70102","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/1467-9566.70102","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/1467-9566.70102","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,2,5]],"date-time":"2026-02-05T16:43:13Z","timestamp":1770309793000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/1467-9566.70102"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,10,24]]},"references-count":46,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2025,11]]}},"alternative-id":["10.1111\/1467-9566.70102"],"URL":"https:\/\/doi.org\/10.1111\/1467-9566.70102","archive":["Portico"],"relation":{},"ISSN":["0141-9889","1467-9566"],"issn-type":[{"value":"0141-9889","type":"print"},{"value":"1467-9566","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,10,24]]},"assertion":[{"value":"2024-12-13","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-08-18","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-10-24","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70102"}}