{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,23]],"date-time":"2026-09-23T06:10:12Z","timestamp":1790143812332,"version":"4.0.1"},"reference-count":32,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2026,9,12]],"date-time":"2026-09-12T00:00:00Z","timestamp":1789171200000},"content-version":"vor","delay-in-days":11,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100000269","name":"Economic and Social Research Council","doi-asserted-by":"publisher","award":["ES\/X003515\/1"],"award-info":[{"award-number":["ES\/X003515\/1"]}],"id":[{"id":"10.13039\/501100000269","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Sociology Health &amp;amp; Illness"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>Migrant parents of children and young people (CYP) living with sickle cell disease (SCD) must manage complex care needs within unfamiliar healthcare systems. Drawing on qualitative interviews with migrant parents in England, this study examines how migration reshapes healthcare navigation. Using navigation as an analytical lens, the findings show that parents act as de facto navigators, coordinating services across healthcare, education and welfare domains without structured support. Beyond practical coordination, navigation involved sustained relational, emotional and identity work. Parents described learning to interpret new institutional rules, (re)negotiating expectations of \u2018good\u2019 parenting in a different national context and managing stigma linked to illness, ethnicity and immigration status. Migration intensified caregiving responsibilities through disrupted support networks, legal and economic constraints and uneven access to resources. Although UK services were valued for specialist expertise, parents reported the need for continual self\u2010advocacy within fragmented systems. The study extends navigation scholarship by foregrounding migrant parents' unpaid and often unrecognised labour and demonstrates how healthcare navigation is shaped by intersecting migration, policy and racialised contexts. The findings highlight the importance of embedding condition\u2010specific navigation support within existing specialist services.<\/jats:p>","DOI":"10.1111\/1467-9566.70262","type":"journal-article","created":{"date-parts":[[2026,9,12]],"date-time":"2026-09-12T09:16:01Z","timestamp":1789204561000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Invisible Navigators: Migrant Parents and the Everyday Labour of Managing Sickle Cell Disease in the UK"],"prefix":"10.1111","volume":"48","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2265-7041","authenticated-orcid":false,"given":"Brenda Agyeiwaa","family":"Poku","sequence":"first","affiliation":[{"name":"School of Sociology and Social Policy University of Nottingham  Nottingham UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9303-2033","authenticated-orcid":false,"given":"Natasha","family":"Nicholls","sequence":"additional","affiliation":[{"name":"School of Sociology and Social Policy University of Nottingham  Nottingham UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0987-8760","authenticated-orcid":false,"given":"Alison","family":"Pilnick","sequence":"additional","affiliation":[{"name":"School of Nursing and Public Health Manchester Metropolitan University  Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1070-8670","authenticated-orcid":false,"given":"Karl Michael","family":"Atkin","sequence":"additional","affiliation":[{"name":"Department of Sociology University of York  York UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,9,12]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365\u20102524.2000.00211.x"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/jech\u20102020\u2010SSMabstracts.92"},{"key":"e_1_2_13_4_1","volume-title":"Constructing Grounded Theory","author":"Charmaz K.","year":"2014"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/bf00989485"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467\u20109566.2010.01301.x"},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.7560\/326121"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/15532739.2025.2464235"},{"key":"e_1_2_13_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.26262"},{"key":"e_1_2_13_10_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913\u2010022\u201007617\u2010y"},{"key":"e_1_2_13_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467\u20109566.12161"},{"key":"e_1_2_13_12_1","volume-title":"Care Navigation: A Competency Framework","author":"Health Education England","year":"2016"},{"key":"e_1_2_13_13_1","doi-asserted-by":"publisher","DOI":"10.1002\/hem3.70175"},{"key":"e_1_2_13_14_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen\u20102019\u2010029478"},{"key":"e_1_2_13_15_1","doi-asserted-by":"publisher","DOI":"10.3310\/nihropenres.13385.1"},{"key":"e_1_2_13_16_1","doi-asserted-by":"publisher","DOI":"10.16993\/sjdr.1044"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467\u20109566.70143"},{"key":"e_1_2_13_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467\u20109566.13123"},{"key":"e_1_2_13_19_1","doi-asserted-by":"publisher","DOI":"10.5281\/zenodo.7017122"},{"key":"e_1_2_13_20_1","article-title":"How Can a Care Navigator Add Value to Patient Experience in Accessing Health and Care Services at the Right Time, Right Place With the Right Support and Input? A Rapid Review of Existing Evidence","author":"Mulimba A.","year":"2016","journal-title":"Transformation Partners"},{"key":"e_1_2_13_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2352\u20103026(25)00235\u20102"},{"key":"e_1_2_13_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/02610183231199661"},{"key":"e_1_2_13_23_1","doi-asserted-by":"publisher","DOI":"10.1186\/s44263\u2010025\u201000131\u20103"},{"key":"e_1_2_13_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467\u20109566.13742"},{"key":"e_1_2_13_25_1","unstructured":"Sickle Cell Society.2021.No One\u2019s Listening Report.https:\/\/www.sicklecellsociety.org\/no\u2010ones\u2010listening\/."},{"key":"e_1_2_13_26_1","unstructured":"Sickle Cell Society.2026.About Sickle Cell.https:\/\/www.sicklecellsociety.org\/about\u2010sicklecell\/."},{"key":"e_1_2_13_27_1","doi-asserted-by":"publisher","DOI":"10.1108\/ijmhsc\u201006\u20102023\u20100060"},{"key":"e_1_2_13_28_1","doi-asserted-by":"publisher","DOI":"10.9778\/cmajo.20210004"},{"key":"e_1_2_13_29_1","doi-asserted-by":"publisher","DOI":"10.1177\/14034948241277057"},{"key":"e_1_2_13_30_1","doi-asserted-by":"publisher","DOI":"10.3399\/bjgp19x705569"},{"key":"e_1_2_13_31_1","doi-asserted-by":"publisher","DOI":"10.1007\/s13158\u2010025\u201000435\u20103"},{"key":"e_1_2_13_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/0145721712445216"},{"key":"e_1_2_13_33_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12889\u2010022\u201014195\u20105"}],"container-title":["Sociology of Health &amp; Illness"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/1467-9566.70262","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/1467-9566.70262","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/1467-9566.70262","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,23]],"date-time":"2026-09-23T05:48:30Z","timestamp":1790142510000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/1467-9566.70262"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9]]},"references-count":32,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1111\/1467-9566.70262"],"URL":"https:\/\/doi.org\/10.1111\/1467-9566.70262","archive":["Portico"],"relation":{},"ISSN":["0141-9889","1467-9566"],"issn-type":[{"value":"0141-9889","type":"print"},{"value":"1467-9566","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,9]]},"assertion":[{"value":"2026-03-24","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-09-02","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-09-12","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70262"}}