{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,9]],"date-time":"2026-04-09T05:45:03Z","timestamp":1775713503405,"version":"3.50.1"},"reference-count":45,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T00:00:00Z","timestamp":1767830400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T00:00:00Z","timestamp":1767830400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100022221","name":"Sickkids Research Institute","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100022221","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["obgyn.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["BJOG"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Methods for effective patient engagement (PE) are continually emerging. Previous studies examining barriers, challenges and knowledge gaps for PE in research are not specific to women\/individuals with lived experiences of pregnancy or those trying to conceive.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To identify and describe methods used to engage patient partners in perinatal health research.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Search Strategy<\/jats:title>\n                    <jats:p>Ovid, Web of Science, CINAHL and grey literature were searched by a medical librarian from inception to October 2025.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Selection Criteria<\/jats:title>\n                    <jats:p>Included studies described the process of PE in perinatal health research. Patient partners were considered as individuals with lived experience of having conceived, been pregnant and\/or given birth to a child.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Data Collection and Analysis<\/jats:title>\n                    <jats:p>Of the 331 full\u2010text articles reviewed, 164 articles were included, with most studies (129\/164; 78.7%) conducted in the past 5\u2009years.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main Results<\/jats:title>\n                    <jats:p>\n                      Two\u2010thirds of studies reported compensation for patient partner engagement (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u2009111). The most commonly reported barriers to PE included language limitations, recruitment of diverse populations and lack of access to technology or barriers to using technology. Loss\u2010to\u2010follow\u2010up was the greatest limitation to effective patient partner engagement once recruited. Facilitators to PE included the provision of multiple mediums for engagement (e.g., virtual and in\u2010person), avoiding scientific jargon and training research teams in PE strategies.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This review highlights the need for greater awareness of PE reporting in perinatal health research. Further research is needed to assess approaches for measuring PE to accurately measure and evaluate its impact on study design, execution and findings.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/1471-0528.70145","type":"journal-article","created":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T11:51:21Z","timestamp":1767873081000},"page":"932-941","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Patients as Partners in Perinatal Health Research: A Scoping Review"],"prefix":"10.1111","volume":"133","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6703-8802","authenticated-orcid":false,"given":"Lucy","family":"Zhao","sequence":"first","affiliation":[{"name":"Child Health Evaluative Sciences (CHES) The Hospital for Sick Children  Toronto Ontario Canada"},{"name":"Temerty Faculty of Medicine University of Toronto  Toronto Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2085-8755","authenticated-orcid":false,"given":"Lauren S.","family":"Tailor","sequence":"additional","affiliation":[{"name":"Child Health Evaluative Sciences (CHES) The Hospital for Sick Children  Toronto Ontario Canada"},{"name":"Division of Epidemiology, Dalla Lana School of Public Health University of Toronto  Toronto Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yanara","family":"Marks","sequence":"additional","affiliation":[{"name":"Child Health Evaluative Sciences (CHES) The Hospital for Sick Children  Toronto Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Renee G.","family":"Fajardo","sequence":"additional","affiliation":[{"name":"Child Health Evaluative Sciences (CHES) The Hospital for Sick Children  Toronto Ontario Canada"},{"name":"Schulich School of Medicine and Dentistry Western University  London Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sabrina","family":"Chiodo","sequence":"additional","affiliation":[{"name":"Child Health Evaluative Sciences (CHES) The Hospital for Sick Children  Toronto Ontario Canada"},{"name":"Division of Epidemiology, Dalla Lana School of Public Health University of Toronto  Toronto Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Olivia M.","family":"Novosel","sequence":"additional","affiliation":[{"name":"Child Health Evaluative Sciences (CHES) The Hospital for Sick Children  Toronto Ontario Canada"},{"name":"Temerty Faculty of Medicine University of Toronto  Toronto Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jessie","family":"Cunningham","sequence":"additional","affiliation":[{"name":"Child Health Evaluative Sciences (CHES) The Hospital for Sick Children  Toronto Ontario Canada"},{"name":"Health Sciences Library The Hospital for Sick Children  Toronto Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sonia M.","family":"Grandi","sequence":"additional","affiliation":[{"name":"Child Health Evaluative Sciences (CHES) The Hospital for Sick Children  Toronto Ontario Canada"},{"name":"Division of Epidemiology, Dalla Lana School of Public Health University of Toronto  Toronto Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2026,1,8]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1186\/s41927\u2010023\u201000327\u2010w"},{"key":"e_1_2_12_3_1","unstructured":"Government of Canada CI of HR \u201cStrategy for Patient\u2010Oriented Research\u2014Patient Engagement Framework\u2014CIHR \u201dhttps:\/\/cihr\u2010irsc.gc.ca\/e\/48413.html."},{"key":"e_1_2_12_4_1","unstructured":"Canadian Institutes of Health Research \u201cStrategy for Patient\u2010Oriented Research\u2014Patient Engagement Framework\u2014CIHR \u201dhttps:\/\/cihr\u2010irsc.gc.ca\/e\/48413.html."},{"key":"e_1_2_12_5_1","unstructured":"\u201cCore Values Ethics Spectrum\u2014The 3 Pillars of Public Participation\u2014International Association for Public Participation \u201dhttps:\/\/www.iap2.org\/page\/pillars."},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13272"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472\u20106963\u201014\u201089"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40271\u2010014\u20100065\u20100"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900\u2010023\u201000488\u20105"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/1471\u20100528.18300"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/1471\u20100528.18213"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajog.2020.09.024"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/1471\u20100528.14419"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.bpobgyn.2013.04.006"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900\u2010021\u201000332\u20108"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.1093\/cid\/ciu726"},{"key":"e_1_2_12_17_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12884\u2010015\u20100431\u20105"},{"key":"e_1_2_12_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/17470161231189843"},{"key":"e_1_2_12_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.whi.2012.10.003"},{"key":"e_1_2_12_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wombi.2017.12.009"},{"key":"e_1_2_12_21_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900\u2010022\u201000381\u20107"},{"key":"e_1_2_12_22_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13272"},{"key":"e_1_2_12_23_1","unstructured":"\u201cSearch\u2014Grey Matters\u2014Canada's Drug Agency \u201dhttps:\/\/greymatters.cda\u2010amc.ca\/."},{"key":"e_1_2_12_24_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13643\u2010016\u20100249\u2010x"},{"key":"e_1_2_12_25_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900\u2010017\u20100062\u20102"},{"key":"e_1_2_12_26_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0193579"},{"key":"e_1_2_12_27_1","doi-asserted-by":"publisher","DOI":"10.5935\/1518\u20100557.20190077"},{"key":"e_1_2_12_28_1","doi-asserted-by":"publisher","DOI":"10.1111\/birt.12726"},{"key":"e_1_2_12_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2023.01.042"},{"key":"e_1_2_12_30_1","doi-asserted-by":"publisher","DOI":"10.3389\/fgwh.2025.1577568"},{"key":"e_1_2_12_31_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wombi.2024.101838"},{"key":"e_1_2_12_32_1","doi-asserted-by":"publisher","DOI":"10.3310\/hta19300"},{"key":"e_1_2_12_33_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00737\u2010012\u20100267\u20101"},{"key":"e_1_2_12_34_1","doi-asserted-by":"publisher","DOI":"10.3310\/hta23460"},{"key":"e_1_2_12_35_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606\u2010014\u20102878\u2010x"},{"key":"e_1_2_12_36_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13040"},{"key":"e_1_2_12_37_1","unstructured":"\u201cTaking Stock\u2014NIHR Public Involvement and Engagement \u201dhttps:\/\/www.nihr.ac.uk\/documents\/taking\u2010stock\u2010nihr\u2010public\u2010involvement\u2010and\u2010engagement\/20566."},{"key":"e_1_2_12_38_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2023.9043"},{"key":"e_1_2_12_39_1","unstructured":"Government of Canada CI of HR \u201cConsiderations When Paying Patient Partners in Research\u2014CIHR \u201dhttps:\/\/cihr\u2010irsc.gc.ca\/e\/51466.html."},{"key":"e_1_2_12_40_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13971"},{"key":"e_1_2_12_41_1","unstructured":"\u201cCompensation Framework|PCORI \u201d (2017) https:\/\/www.pcori.org\/resources\/compensation\u2010framework."},{"key":"e_1_2_12_42_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13063\u2010021\u201005305\u20106"},{"key":"e_1_2_12_43_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900\u2010020\u201000214\u20105"},{"key":"e_1_2_12_44_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900\u2010022\u201000388\u20100"},{"key":"e_1_2_12_45_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900\u2010023\u201000454\u20101"},{"key":"e_1_2_12_46_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2007.125757"}],"container-title":["BJOG: An International Journal of Obstetrics &amp; Gynaecology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/1471-0528.70145","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/1471-0528.70145","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/1471-0528.70145","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,9]],"date-time":"2026-04-09T04:46:50Z","timestamp":1775710010000},"score":1,"resource":{"primary":{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/10.1111\/1471-0528.70145"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1,8]]},"references-count":45,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2026,4]]}},"alternative-id":["10.1111\/1471-0528.70145"],"URL":"https:\/\/doi.org\/10.1111\/1471-0528.70145","archive":["Portico"],"relation":{},"ISSN":["1470-0328","1471-0528"],"issn-type":[{"value":"1470-0328","type":"print"},{"value":"1471-0528","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1,8]]},"assertion":[{"value":"2025-04-09","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-12-29","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-01-08","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}