{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T22:26:51Z","timestamp":1777415211745,"version":"3.51.4"},"reference-count":39,"publisher":"Wiley","issue":"S1","license":[{"start":{"date-parts":[[2015,4,16]],"date-time":"2015-04-16T00:00:00Z","timestamp":1429142400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Services Research"],"published-print":{"date-parts":[[2015,8]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>To describe the use of a clinically enhanced maternal and child health (<jats:styled-content style=\"fixed-case\">MCH<\/jats:styled-content>) database to strengthen community\u2010engaged research activities, and to support the sustainability of data infrastructure initiatives.<\/jats:p><\/jats:sec><jats:sec><jats:title>Data Sources\/Study Setting<\/jats:title><jats:p>Population\u2010based, longitudinal database covering over 2.3\u00a0million mother\u2013infant dyads during a 12\u2010year period (1998\u20132009) in Florida. Setting: A community\u2010based participatory research (<jats:styled-content style=\"fixed-case\">CBPR<\/jats:styled-content>) project in a socioeconomically disadvantaged community in central Tampa, Florida.<\/jats:p><\/jats:sec><jats:sec><jats:title>Study Design<\/jats:title><jats:p>Case study of the use of an enhanced state database for supporting<jats:styled-content style=\"fixed-case\">CBPR<\/jats:styled-content>activities.<\/jats:p><\/jats:sec><jats:sec><jats:title>Principal Findings<\/jats:title><jats:p>A federal data infrastructure award resulted in the creation of an<jats:styled-content style=\"fixed-case\">MCH<\/jats:styled-content>database in which over 92 percent of all birth certificate records for infants born between 1998 and 2009 were linked to maternal and infant hospital encounter\u2010level data. The population\u2010based, longitudinal database was used to supplement data collected from focus groups and community surveys with epidemiological and health care cost data on important<jats:styled-content style=\"fixed-case\">MCH<\/jats:styled-content>disparity issues in the target community. Data were used to facilitate a community\u2010driven, decision\u2010making process in which the most important priorities for intervention were identified.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Integrating statewide all\u2010payer, hospital\u2010based databases into<jats:styled-content style=\"fixed-case\">CBPR<\/jats:styled-content>can empower underserved communities with a reliable source of health data, and it can promote the sustainability of newly developed data systems.<\/jats:p><\/jats:sec>","DOI":"10.1111\/1475-6773.12309","type":"journal-article","created":{"date-parts":[[2015,4,16]],"date-time":"2015-04-16T09:13:18Z","timestamp":1429175598000},"page":"1322-1338","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Transformative Use of an Improved All\u2010Payer Hospital Discharge Data Infrastructure for Community\u2010Based Participatory Research: A Sustainability Pathway"],"prefix":"10.1111","volume":"50","author":[{"given":"Jason L.","family":"Salemi","sequence":"first","affiliation":[{"name":"Department of Family and Community Medicine Baylor College of Medicine Houston TX"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Abraham A.","family":"Salinas\u2010Miranda","sequence":"additional","affiliation":[{"name":"The Maternal and Child Health Comparative Effectiveness Research Group Department of Epidemiology and Biostatistics College of Public Health University of South Florida Tampa FL"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rone\u00e9 E.","family":"Wilson","sequence":"additional","affiliation":[{"name":"The Maternal and Child Health Comparative Effectiveness Research Group Department of Epidemiology and Biostatistics College of Public Health University of South Florida Tampa FL"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hamisu M.","family":"Salihu","sequence":"additional","affiliation":[{"name":"Department of Family and Community Medicine Baylor College of Medicine Houston TX"},{"name":"The Maternal and Child Health Comparative Effectiveness Research Group Department of Epidemiology and Biostatistics College of Public Health University of South Florida Tampa FL"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2015,4,16]]},"reference":[{"key":"e_1_2_6_2_1","unstructured":"Agency for Healthcare Research and Quality.2012. \u201cData Innovations. Healthcare Cost and Utilization Project (HCUP)\u201d [accessed on April 8 2014 2012]. Available athttps:\/\/www.hcup-us.ahrq.gov\/datainnovations\/grants.jsp"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.12968\/bjcn.2004.9.3.12432"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1525-1497.2004.30359.x"},{"key":"e_1_2_6_5_1","unstructured":"Centers for Disease Control and Prevention.2013. \u201cBehavioral Risk Factor Surveillance System\u201d [accessed on April 10 2014]. Available athttp:\/\/www.cdc.gov\/brfss"},{"key":"e_1_2_6_6_1","first-page":"31","volume-title":"The Social Psychology of Health: Claremont Symposium on Applied Social Psychology","author":"Cohen S.","year":"1988"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.2307\/2136404"},{"key":"e_1_2_6_8_1","doi-asserted-by":"crossref","DOI":"10.1093\/oso\/9780195086416.001.0001","volume-title":"Measuring Stress: A Guide for Health and Social Scientists","author":"Cohen S.","year":"1995"},{"key":"e_1_2_6_9_1","volume-title":"Designing and Conducting Mixed Methods Research","author":"Creswell J. W.","year":"2007"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-11-100"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.2010.0666"},{"key":"e_1_2_6_12_1","doi-asserted-by":"publisher","DOI":"10.1097\/ACM.0b013e3181cd2ed3"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0749-3797(98)00017-8"},{"key":"e_1_2_6_14_1","volume-title":"\u201cSustainability, Partnerships, and Teamwork in Health IT Implementation: Essential Findings from the Transforming Healthcare Quality through IT Grant (Prepared by Mathematica Policy Research and Geisinger Health System, under Contract No. HHSA 290200900019I)","author":"Felt\u2010Lisk S.","year":"2012"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1440-172X.2012.02017.x"},{"key":"e_1_2_6_16_1","volume-title":"Initial National Priorities for Comparative Effectiveness Research","author":"Institute of Medicine","year":"2009"},{"key":"e_1_2_6_17_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2009.170506"},{"key":"e_1_2_6_18_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2009.165720"},{"key":"e_1_2_6_19_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2012.442"},{"key":"e_1_2_6_20_1","unstructured":"REACHUP Inc.2014. \u201cREACHUP Inc.: About Us\u201d [accessed on April 8 2014]. Available athttp:\/\/www.reachupincorporated.org\/"},{"issue":"1","key":"e_1_2_6_21_1","doi-asserted-by":"crossref","first-page":"329","DOI":"10.1542\/peds.103.SE1.329","article-title":"Measuring the Cost of Neonatal and Perinatal Care","volume":"103","author":"Rogowski J.","year":"1999","journal-title":"Pediatrics"},{"issue":"1","key":"e_1_2_6_22_1","first-page":"30","article-title":"The Relative Contribution of Data Sources to a Birth Defects Registry Utilizing Passive Multisource Ascertainment Methods: Does a Smaller Birth Defects Case Ascertainment Net Lead to Overall or Disproportionate Loss?","volume":"38","author":"Salemi J. L.","year":"2011","journal-title":"Journal of Registry Management"},{"key":"e_1_2_6_23_1","doi-asserted-by":"publisher","DOI":"10.1177\/003335491212700407"},{"key":"e_1_2_6_24_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40258-013-0040-2"},{"issue":"1","key":"e_1_2_6_25_1","first-page":"14","article-title":"Creation and Evaluation of a Multi\u2010Layered Maternal and Child Health Database for Comparative Effectiveness Research","volume":"40","author":"Salemi J. L.","year":"2013","journal-title":"Journal of Registry Management"},{"key":"e_1_2_6_26_1","doi-asserted-by":"publisher","DOI":"10.1155\/2015\/347501"},{"key":"e_1_2_6_27_1","doi-asserted-by":"publisher","DOI":"10.1093\/her\/13.1.87"},{"key":"e_1_2_6_28_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(91)90150-B"},{"key":"e_1_2_6_29_1","doi-asserted-by":"publisher","DOI":"10.1207\/S15324796ABM2303_5"},{"key":"e_1_2_6_30_1","doi-asserted-by":"publisher","DOI":"10.1258\/ebm.2009.009265"},{"key":"e_1_2_6_31_1","volume-title":"Mixed Methodology: Combining Qualitative and Quantitative Approaches\/Abbas Tashakkori, Charles Teddlie","author":"Tashakkori A.","year":"1998"},{"key":"e_1_2_6_32_1","volume-title":"Measuring Healthy Days Population Assessment of Health\u2010Related Quality of Life","author":"Taylor V. R.","year":"2000"},{"key":"e_1_2_6_33_1","volume-title":"Foundations of Mixed Methods Research: Integrating Quantitative and Qualitative Approaches in the Social and Behavioral Sciences","author":"Teddlie C.","year":"2009"},{"key":"e_1_2_6_34_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0034235"},{"issue":"6","key":"e_1_2_6_35_1","doi-asserted-by":"crossref","first-page":"1503","DOI":"10.1093\/ajcn\/71.6.1503","article-title":"Evaluation of 2 Brief Instruments and a Food\u2010Frequency Questionnaire to Estimate Daily Number of Servings of Fruit and Vegetables","volume":"71","author":"Thompson F. E.","year":"2000","journal-title":"American Journal of Clinical Nutrition"},{"key":"e_1_2_6_36_1","first-page":"1","article-title":"Community\u2010Based Participatory Research: Assessing the Evidence","volume":"99","author":"Viswanathan M.","year":"2004","journal-title":"Evidence Report\/Technology Assessment (Summary)"},{"key":"e_1_2_6_37_1","doi-asserted-by":"publisher","DOI":"10.1177\/1524839906289376"},{"key":"e_1_2_6_38_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2009.184036"},{"key":"e_1_2_6_39_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2008.140988"},{"key":"e_1_2_6_40_1","volume-title":"Case Study Research: Design and Methods","author":"Yin R. K.","year":"1994"}],"container-title":["Health Services Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2F1475-6773.12309","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/1475-6773.12309","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,6,8]],"date-time":"2024-06-08T12:26:56Z","timestamp":1717849616000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/1475-6773.12309"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,4,16]]},"references-count":39,"journal-issue":{"issue":"S1","published-print":{"date-parts":[[2015,8]]}},"alternative-id":["10.1111\/1475-6773.12309"],"URL":"https:\/\/doi.org\/10.1111\/1475-6773.12309","archive":["Portico"],"relation":{},"ISSN":["0017-9124","1475-6773"],"issn-type":[{"value":"0017-9124","type":"print"},{"value":"1475-6773","type":"electronic"}],"subject":[],"published":{"date-parts":[[2015,4,16]]},"assertion":[{"value":"2015-04-16","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}