{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T20:23:15Z","timestamp":1790713395541,"version":"4.1.0"},"reference-count":45,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2020,1,9]],"date-time":"2020-01-09T00:00:00Z","timestamp":1578528000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000133","name":"Agency for Healthcare Research and Quality","doi-asserted-by":"publisher","award":["U18HS025292"],"award-info":[{"award-number":["U18HS025292"]}],"id":[{"id":"10.13039\/100000133","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000050","name":"National Heart, Lung, and Blood Institute","doi-asserted-by":"publisher","award":["K01HL132057"],"award-info":[{"award-number":["K01HL132057"]}],"id":[{"id":"10.13039\/100000050","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Services Research"],"published-print":{"date-parts":[[2020,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>To develop, test, and validate the performance of ICD\u201010\u2010CM claims\u2010based case definitions for identifying children with sickle cell anemia (SCA).<\/jats:p><\/jats:sec><jats:sec><jats:title>Data Sources<\/jats:title><jats:p>Medicaid administrative claims (2016) for children &lt;18\u00a0years with potential SCA (any D57x diagnosis code) and newborn screening records from Michigan and New York State.<\/jats:p><\/jats:sec><jats:sec><jats:title>Study Design<\/jats:title><jats:p>This study is a secondary data analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Data Collection\/Extraction Methods<\/jats:title><jats:p>Using specific SCA\u2010related (D5700, D5701, and D5702) and nonspecific (D571) diagnosis codes, 23 SCA case definitions were applied to Michigan Medicaid claims (2016) to identify children with SCA. Measures of performance (sensitivity, specificity, area under the ROC curve) were calculated using newborn screening results as the gold standard. A parallel analysis was conducted using New York State Medicaid claims and newborn screening data.<\/jats:p><\/jats:sec><jats:sec><jats:title>Principal Findings<\/jats:title><jats:p>In Michigan Medicaid, 1597 children had \u22651 D57x claim; 280 (18 percent) were diagnosed with SCA. Measures of performance varied, with sensitivities from 0.02 to 0.97 and specificities from 0.88 to 1.0. The case definition of \u22651 outpatient visit with a SCA\u2010related or D571 code had the highest area under the ROC curve, with a sensitivity of 95 percent and specificity of 92 percent. The same definition also had the highest performance in New York Medicaid (n\u00a0=\u00a02454), with a sensitivity of 94 percent and specificity of 86 percent.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Children with SCA can be accurately identified in administrative claims using this straightforward case definition. This methodology can be used to monitor trends and use of health services after transition to ICD\u201010\u2010CM.<\/jats:p><\/jats:sec>","DOI":"10.1111\/1475-6773.13257","type":"journal-article","created":{"date-parts":[[2020,1,9]],"date-time":"2020-01-09T09:25:00Z","timestamp":1578561900000},"page":"310-317","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":19,"title":["Performance of ICD\u201010\u2010CM diagnosis codes for identifying children with Sickle Cell Anemia"],"prefix":"10.1111","volume":"55","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9145-0183","authenticated-orcid":false,"given":"Sarah L.","family":"Reeves","sequence":"first","affiliation":[{"name":"Susan B Meister Child Health Evaluation and Research Center Department of Pediatrics University of Michigan Ann Arbor Michigan"},{"name":"Department of Epidemiology University of Michigan Ann Arbor Michigan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brian","family":"Madden","sequence":"additional","affiliation":[{"name":"Susan B Meister Child Health Evaluation and Research Center Department of Pediatrics University of Michigan Ann Arbor Michigan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Meng","family":"Wu","sequence":"additional","affiliation":[{"name":"New York State Department of Health Office of Quality and Patient Safety Albany New York"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2335-4074","authenticated-orcid":false,"given":"Lauren S.","family":"Miller","sequence":"additional","affiliation":[{"name":"New York State Department of Health Office of Quality and Patient Safety Albany New York"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Anders","sequence":"additional","affiliation":[{"name":"New York State Department of Health Office of Quality and Patient Safety Albany New York"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michele","family":"Caggana","sequence":"additional","affiliation":[{"name":"New York State Department of Health Office of Quality and Patient Safety Albany New York"},{"name":"Wadsworth Center, New York State Department of Health Albany New York"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lindsay W.","family":"Cogan","sequence":"additional","affiliation":[{"name":"New York State Department of Health Office of Quality and Patient Safety Albany New York"},{"name":"Department of Health Policy Management &amp; Behavior School of Public Health University at Albany Albany New York"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary","family":"Kleyn","sequence":"additional","affiliation":[{"name":"Michigan Department of Health and Human Services Lansing Michigan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Isabel","family":"Hurden","sequence":"additional","affiliation":[{"name":"Michigan Department of Health and Human Services Lansing Michigan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gary L.","family":"Freed","sequence":"additional","affiliation":[{"name":"Susan B Meister Child Health Evaluation and Research Center Department of Pediatrics University of Michigan Ann Arbor Michigan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kevin J.","family":"Dombkowski","sequence":"additional","affiliation":[{"name":"Susan B Meister Child Health Evaluation and Research Center Department of Pediatrics University of Michigan Ann Arbor Michigan"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,1,9]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2009.12.022"},{"key":"e_1_2_8_3_1","unstructured":"National Heart Lung and Blood Institute. 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