{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T23:17:19Z","timestamp":1792019839287,"version":"4.4.0"},"reference-count":24,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2014,6,4]],"date-time":"2014-06-04T00:00:00Z","timestamp":1401840000000},"content-version":"vor","delay-in-days":3,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Int J of Rheum Dis"],"published-print":{"date-parts":[[2014,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>To assess parental stress levels of mothers of children with juvenile idiopathic arthritis (<jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content>) aged between 2\u201312\u00a0years and compare with those reported for other chronic childhood illnesses.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methodology<\/jats:title><jats:p>Mothers of children aged between 2\u201312\u00a0years with <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content> were recruited from hospital\u2010based outpatient clinics. Maternal stress was measured by using the Parenting Stress Index Long Form (<jats:styled-content style=\"fixed-case\">PSI<\/jats:styled-content>). The physician assessing the child completed an active joint count, a physician's global assessment and recorded the C\u2010reactive protein and\/or erythrocyte sedimentation rate if one was clinically indicated.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The mothers recruited had children with a mean age of 6\u00a0years. The mean total stress score of mothers of children with <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content> measured by the <jats:styled-content style=\"fixed-case\">PSI<\/jats:styled-content> was 235.4 (95% <jats:styled-content style=\"fixed-case\">CI<\/jats:styled-content> 218.5\u2013252.3) was greater than the mean total stress scores for mothers of normal children at 222.8 (95% <jats:styled-content style=\"fixed-case\">CI<\/jats:styled-content> 221.4\u2013224.2). It was also greater than children with other chronic disorders such as insulin\u2010dependent diabetes mellitus (<jats:styled-content style=\"fixed-case\">IDDM<\/jats:styled-content>), 218.1 (95% <jats:styled-content style=\"fixed-case\">CI<\/jats:styled-content> 204.7\u2013231.6) and profound deafness, 221.7 (95% <jats:styled-content style=\"fixed-case\">CI<\/jats:styled-content> 206.4\u2013237.0). One third of mothers had total <jats:styled-content style=\"fixed-case\">PSI<\/jats:styled-content> scores that were in the clinical range (Total <jats:styled-content style=\"fixed-case\">PSI<\/jats:styled-content>\u00a0&gt;\u00a0260), indicating a need for intervention.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p><jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content> should be regarded as a significant illness in which maternal stress is at least equivalent to that associated with the care of children with other chronic diseases of childhood.<\/jats:p><\/jats:sec>","DOI":"10.1111\/1756-185x.12394","type":"journal-article","created":{"date-parts":[[2014,6,4]],"date-time":"2014-06-04T07:21:33Z","timestamp":1401866493000},"page":"541-547","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":12,"title":["Maternal stress associated with juvenile idiopathic arthritis"],"prefix":"10.1111","volume":"17","author":[{"given":"Angela","family":"Cox","sequence":"first","affiliation":[{"name":"Monash Children's Hospital  Melbourne Victoria Australia"},{"name":"The Royal Children's Hospital Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Genevieve","family":"Ostring","sequence":"additional","affiliation":[{"name":"The Children's Hospital at Westmead  Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan","family":"Piper","sequence":"additional","affiliation":[{"name":"Monash Children's Hospital  Melbourne Victoria Australia"},{"name":"Monash University Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane","family":"Munro","sequence":"additional","affiliation":[{"name":"The Royal Children's Hospital Melbourne Victoria Australia"},{"name":"Murdoch Children's Research Institute Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Davinder","family":"Singh\u2010Grewal","sequence":"additional","affiliation":[{"name":"The Sydney Children's Hospital Sydney New South Wales Australia"},{"name":"The Children's Hospital at Westmead  Sydney New South Wales Australia"},{"name":"The John Hunter Children's Hospital  Sydney New South Wales Australia"},{"name":"The University of Sydney  Sydney New South Wales Australia"},{"name":"The University of New South Wales Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2014,6,4]]},"reference":[{"key":"e_1_2_6_2_1","first-page":"390","article-title":"International league of associations for rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001","volume":"31","author":"Petty RE","year":"2004","journal-title":"J Rheumatol"},{"key":"e_1_2_6_3_1","first-page":"1520","article-title":"Worldwide prevalence of juvenile arthritis. 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