{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,20]],"date-time":"2025-10-20T18:45:48Z","timestamp":1760985948211,"version":"3.40.5"},"reference-count":19,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2020,8,18]],"date-time":"2020-08-18T00:00:00Z","timestamp":1597708800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Int J of Rheum Dis"],"published-print":{"date-parts":[[2020,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>Patients with rheumatic diseases are increasingly using internet\u2010based information to inform healthcare utilization and make treatment decisions. Our aim was to assess the readability and quality of internet\u2010based information on dermatomyositis (DM) and polymyositis (PM).<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>Key words \u201cDermatomyositis\u201d and \u201cPolymyositis\u201d were searched on 3 commonly used search engines (Google, Yahoo and Bing). The first 3 pages (~30) of search results were examined from each search engine. Readability of information was assessed using 4 readability formulae (Flesch Reading Ease Score, Flesch\u2010Kincaid Grade Level, the Simplified Measure of Gobbledygook index, the Coleman\u2010Liau index). Quality of information was assessed using the DISCERN tool, <jats:italic>Journal of The American Medical Association<\/jats:italic> (<jats:italic>JAMA<\/jats:italic>) benchmark criteria and Health on The Net Code (HoN code). We also examined Google Trends<jats:sup>\u00ae<\/jats:sup> data to determine if there were obvious temporal search patterns.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Thirty\u2010two websites were included in the study after duplicates were removed and exclusion criteria were applied. The overall quality was low including DISCERN with a median overall score of 38\/80 (interquartile range 12.25), only 4\/32 (13%) websites fulfilled all 4 <jats:italic>JAMA<\/jats:italic> benchmark criteria, and 9\/32 (28%) had HoN code. Readability of information was assessed using 4 readability formulae (Flesch Reading Ease Score, Flesch\u2010Kincaid Grade Level, the Simplified Measure of Gobbledygook index, the Coleman\u2010Liau index. There was no obvious temporal trend in searches on analysis of Google Trends<jats:sup>\u00ae<\/jats:sup> data.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The overall quality and readability of internet\u2010based information relating to DM and PM is poor. Patients require appropriate information of high quality and readability throughout the course of their disease in order to make informed decisions on their condition including treatment.<\/jats:p><\/jats:sec>","DOI":"10.1111\/1756-185x.13929","type":"journal-article","created":{"date-parts":[[2020,8,28]],"date-time":"2020-08-28T02:30:02Z","timestamp":1598581802000},"page":"1613-1618","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["A systematic review of internet\u2010based information on dermatomyositis and polymyositis"],"prefix":"10.1111","volume":"23","author":[{"given":"Ashraful","family":"Haque","sequence":"first","affiliation":[{"name":"Department of Rheumatology Royal Hallamshire Hospital Sheffield Teaching Hospitals NHS Foundation Trust Sheffield UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Miriam","family":"Cox","sequence":"additional","affiliation":[{"name":"Department of Rheumatology Royal Hallamshire Hospital Sheffield Teaching Hospitals NHS Foundation Trust Sheffield UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Robert D.","family":"Sandler","sequence":"additional","affiliation":[{"name":"Department of Rheumatology Royal Hallamshire Hospital Sheffield Teaching Hospitals NHS Foundation Trust Sheffield UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3361-4909","authenticated-orcid":false,"given":"Michael","family":"Hughes","sequence":"additional","affiliation":[{"name":"Department of Rheumatology Royal Hallamshire Hospital Sheffield Teaching Hospitals NHS Foundation Trust Sheffield UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2020,8,18]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/psb.1762"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(03)14368-1"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/keu289"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.24702"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.3233\/JND-180308"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1136\/annrheumdis-2018-214161"},{"key":"e_1_2_7_8_1","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.190463"},{"key":"e_1_2_7_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10067-020-05023-5"},{"key":"e_1_2_7_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/keh498"},{"key":"e_1_2_7_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0090-4295(98)00662-1"},{"key":"e_1_2_7_12_1","doi-asserted-by":"publisher","DOI":"10.1136\/jech.53.2.105"},{"key":"e_1_2_7_13_1","unstructured":"HON code certification [Internet]. [cited 2020 Apr 1]. Available from:https:\/\/www.hon.ch\/en\/certification.html"},{"key":"e_1_2_7_14_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.1997.03540390074039"},{"key":"e_1_2_7_15_1","unstructured":"Readability Formulas [Internet]. [cited 2020 Mar 21]. Available from:https:\/\/www.readabilityformulas.com\/"},{"key":"e_1_2_7_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/13548509608400003"},{"key":"e_1_2_7_17_1","unstructured":"Google Trends [Internet]. [cited 2020 Mar 20]. Available from:https:\/\/trends.google.com\/trends\/?geo=US"},{"key":"e_1_2_7_18_1","unstructured":"Tom Hardy Dot Org [Internet]. [cited 2020 Apr 7]. Available from:https:\/\/tomhardydotorg.tumblr.com\/post\/161532868851\/i\u2010first\u2010saw\u2010woodstock\u2010running\u2010across\u2010a\u2010turnpike\u2010we"},{"key":"e_1_2_7_19_1","doi-asserted-by":"publisher","DOI":"10.1093\/her\/cyg123"},{"key":"e_1_2_7_20_1","doi-asserted-by":"publisher","DOI":"10.1038\/sj.bdj.2009.1137"}],"container-title":["International Journal of Rheumatic Diseases"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/1756-185X.13929","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/1756-185X.13929","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/1756-185X.13929","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,3]],"date-time":"2023-09-03T14:04:46Z","timestamp":1693749886000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/1756-185X.13929"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,8,18]]},"references-count":19,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2020,12]]}},"alternative-id":["10.1111\/1756-185X.13929"],"URL":"https:\/\/doi.org\/10.1111\/1756-185x.13929","archive":["Portico"],"relation":{},"ISSN":["1756-1841","1756-185X"],"issn-type":[{"type":"print","value":"1756-1841"},{"type":"electronic","value":"1756-185X"}],"subject":[],"published":{"date-parts":[[2020,8,18]]},"assertion":[{"value":"2020-04-23","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-07-12","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-08-18","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}