{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,28]],"date-time":"2025-10-28T15:08:51Z","timestamp":1761664131569,"version":"3.40.5"},"reference-count":46,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2020,9,25]],"date-time":"2020-09-25T00:00:00Z","timestamp":1600992000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["APP1094708","1054146"],"award-info":[{"award-number":["APP1094708","1054146"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Int J of Rheum Dis"],"published-print":{"date-parts":[[2021,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>To measure the direct and indirect out\u2010of\u2010pocket (OOP) costs borne by Australians with gout.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A cross\u2010sectional, Australia\u2010wide, web\u2010based survey was conducted over 12\u00a0months between May 2017 and April 2018. Participants were recruited via advertisements in doctors\u2019 clinics and healthcare organizations\u2019 websites, and social media platforms such as Facebook and Twitter. Survey questions collected information about participants\u2019 OOP spending on direct medical and non\u2010medical gout\u2010related healthcare costs. Participant demographics, gout status, healthcare sought, workdays lost to due gout and health\u2010related quality of life were also collected.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Seventy\u2010nine patients with gout completed the survey; 70 (89%) were male, and on average were 56 (SD 16) years of age and had gout for 14 (SD 12) years. For this cohort, the median total OOP direct medical cost was AU$200 per year (interquartile range [IQR]: AU$60\u2010AU$570). Sixty (76%) people with gout reported being affected by gout during work; however, only 0.25 (IQR: 0\u20103) days of work (approximately $60) were lost due to gout in a year. Nine percent (n\u00a0=\u00a07) of participants experienced cost\u2010related treatment attrition and 33% reported economic hardship (n\u00a0=\u00a026). Participants who experienced economic hardship or cost\u2010related treatment attrition had higher median total gout\u2010related direct costs than those who did not.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>In Australia, gout has an OOP financial cost and reduces work productivity. The presence of cost\u2010related treatment attrition among people with gout indicates that financial costs may be a significant barrier to seeking treatment for a subset of patients with gout.<\/jats:p><\/jats:sec>","DOI":"10.1111\/1756-185x.13979","type":"journal-article","created":{"date-parts":[[2020,9,25]],"date-time":"2020-09-25T15:06:57Z","timestamp":1601046417000},"page":"327-334","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Out\u2010of\u2010pocket spending among a cohort of Australians living with gout"],"prefix":"10.1111","volume":"24","author":[{"given":"Nicholas","family":"Nathan","sequence":"first","affiliation":[{"name":"St Vincent\u2019s Clinical School UNSW Sydney  Sydney NSW Australia"},{"name":"Department of Clinical Pharmacology &amp; Toxicology St Vincent\u2019s Hospital  Sydney NSW Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4603-564X","authenticated-orcid":false,"given":"Amy D.","family":"Nguyen","sequence":"additional","affiliation":[{"name":"St Vincent\u2019s Clinical School UNSW Sydney  Sydney NSW Australia"},{"name":"Centre for Health Systems and Safety Research Australian Institute of Health Innovation Macquarie University  Sydney NSW Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sophie","family":"Stocker","sequence":"additional","affiliation":[{"name":"St Vincent\u2019s Clinical School UNSW Sydney  Sydney NSW Australia"},{"name":"Department of Clinical Pharmacology &amp; Toxicology St Vincent\u2019s Hospital  Sydney NSW Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tracey\u2010Lea","family":"Laba","sequence":"additional","affiliation":[{"name":"Centre for Health Economics Research and Evaluation University of Technology Sydney  Sydney NSW Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Melissa T.","family":"Baysari","sequence":"additional","affiliation":[{"name":"Discipline of Biomedical Informatics and Digital Health Faculty of Medicine and Health The University of Sydney  Sydney NSW Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Richard O.","family":"Day","sequence":"additional","affiliation":[{"name":"St Vincent\u2019s Clinical School UNSW Sydney  Sydney NSW Australia"},{"name":"Department of Clinical Pharmacology &amp; Toxicology St Vincent\u2019s Hospital  Sydney NSW Australia"},{"name":"Centre for Health Systems and Safety Research Australian Institute of Health Innovation Macquarie University  Sydney NSW Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2020,9,25]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(16)00346-9"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/annrheumdis-2013-204647"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(16)31678-6"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1445-5994.2012.02794.x"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.150310"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(09)60883-7"},{"key":"e_1_2_7_8_1","first-page":"238","article-title":"Clinical features of gout","volume":"63","author":"Grassi W","year":"2011","journal-title":"Reumatismo"},{"key":"e_1_2_7_9_1","doi-asserted-by":"publisher","DOI":"10.1097\/RHU.0b013e318204a8f9"},{"key":"e_1_2_7_10_1","doi-asserted-by":"publisher","DOI":"10.1136\/annrheumdis-2016-209707"},{"key":"e_1_2_7_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.healthpol.2015.03.010"},{"key":"e_1_2_7_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.sapharm.2014.06.006"},{"key":"e_1_2_7_13_1","doi-asserted-by":"publisher","DOI":"10.1258\/jhsrp.2011.010159"},{"key":"e_1_2_7_14_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2369-14-5"},{"key":"e_1_2_7_15_1","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.150607"},{"key":"e_1_2_7_16_1","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.140679"},{"volume-title":"Australia\u2019s Health 2012","year":"2012","author":"Australian Institute of Health and Welfare (AIHW)","key":"e_1_2_7_17_1"},{"key":"e_1_2_7_18_1","doi-asserted-by":"publisher","DOI":"10.1093\/ije\/dym184"},{"key":"e_1_2_7_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpsychores.2005.10.020"},{"key":"e_1_2_7_20_1","first-page":"620","article-title":"The health assessment questionnaire disability index is a valid measure of physical function in gout","volume":"26","author":"Taylor W","year":"2008","journal-title":"Clin Exp Rheumatol"},{"key":"e_1_2_7_21_1","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-10-117"},{"key":"e_1_2_7_22_1","unstructured":"Australian Rheumatology Association.2017.https:\/\/rheumatology.org.au\/patients\/find-a-rheumatologist.asp. 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