{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,27]],"date-time":"2025-05-27T18:26:25Z","timestamp":1748370385164,"version":"3.40.5"},"reference-count":43,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2021,3,10]],"date-time":"2021-03-10T00:00:00Z","timestamp":1615334400000},"content-version":"vor","delay-in-days":9,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Int J of Rheum Dis"],"published-print":{"date-parts":[[2021,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Self\u2010management programs have demonstrated significant health benefits in people with musculoskeletal diseases.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>To examine the benefits of a tailored ankylosing spondylitis self\u2010management program (ASSMP) delivered by trained health professionals for people with ankylosing spondylitis (AS) relative to health status, quality of life and disease activity.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>ASSMP was developed within a continuous quality improvement framework following a needs assessment and focus group discussions. Formal feedback from the group after each 6\u00a0week program cycle group by questionnaire helped refine the ASSMP. Patient health status, quality of life and disease activity were assessed at multiple time points up to 12\u00a0months.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Fifty\u2010five percent were female; mean age 48.5\u00a0\u00b1\u00a015.2\u00a0years. Median time to AS diagnosis was 4\u00a0years (interquartile range: 1\u201010). AS disease activity Bath Ankylosing Spondylitis Global Score scores improved at 3, 6 and 12\u00a0months (<jats:italic>P<\/jats:italic>\u00a0&lt;\u00a0.001). Bath Ankylosing Spondylitis Disease Activity Index improved at 6\u00a0weeks and was sustained at 3, 6 and 12\u00a0months (<jats:italic>P<\/jats:italic>\u00a0&lt;\u00a0.001). The Ankylosing Spondylitis Quality of Life improved at 3, 6 and 12\u00a0months (<jats:italic>P<\/jats:italic>\u00a0&lt;\u00a0.001). Bath Ankylosing Spondylitis Functional Index improved by 12\u00a0months (<jats:italic>P<\/jats:italic>\u00a0&lt;\u00a0.001). Participants reported less nocturnal back pain at 6\u00a0months and was sustained at 12\u00a0months (<jats:italic>P<\/jats:italic>\u00a0&lt;\u00a0.001). Patients Global Disease Activity improved by 6\u00a0months (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.012), Multi\u2010Dimensional Assessment of Fatigue and a Global Fatigue Index at 6\u00a0months (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.003), Hospital Anxiety and Depression Scale \u2010 Anxiety at 12\u00a0months (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.001), Evaluation Ankylosing Spondylitis Quality of Life at 6\u00a0months (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.001) and Pain Self\u2010Efficacy Questionnaire at 12\u00a0months (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.002).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>This ASSMP demonstrated significant and sustained benefit in symptoms, disease activity measures and quality of life in a condition that results in significant impairment, disability and poorer quality of life. The cost effectiveness and benefit of this program should be tested.<\/jats:p><\/jats:sec>","DOI":"10.1111\/1756-185x.14070","type":"journal-article","created":{"date-parts":[[2021,3,11]],"date-time":"2021-03-11T06:16:56Z","timestamp":1615443416000},"page":"434-444","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["Evaluation of an ankylosing spondylitis education and self\u2010management program: Beneficial effects on ankylosing spondylitis specific outcomes"],"prefix":"10.1111","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0535-963X","authenticated-orcid":false,"given":"Charles A.","family":"Inderjeeth","sequence":"first","affiliation":[{"name":"Arthritis and Osteoporosis WA Perth WA Australia"},{"name":"Sir Charles Gairdner and Osborne Park Hospital Group Perth WA Australia"},{"name":"School of Medicine &amp; Pharmacology The University of Western Australia Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Emma","family":"Boland","sequence":"additional","affiliation":[{"name":"Sir Charles Gairdner and Osborne Park Hospital Group Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Clara","family":"Connor","sequence":"additional","affiliation":[{"name":"Arthritis and Osteoporosis WA Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christina","family":"Johnson","sequence":"additional","affiliation":[{"name":"Arthritis and Osteoporosis WA Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Angela","family":"Jacques","sequence":"additional","affiliation":[{"name":"Sir Charles Gairdner and Osborne Park Hospital Group Perth WA Australia"},{"name":"Institute for Health Research The University of Notre Dame Australia Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jean","family":"McQuade","sequence":"additional","affiliation":[{"name":"Arthritis and Osteoporosis WA Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2021,3,10]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/key079"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.rdc.2012.09.003"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/17423953060020040401"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1136\/ard.2010.129270"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1207\/S15324796ABM2601_01"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1002\/1529-0131(199606)9:3<229::AID-ANR1790090312>3.0.CO;2-U"},{"key":"e_1_2_7_8_1","doi-asserted-by":"publisher","DOI":"10.1093\/her\/cyq077"},{"key":"e_1_2_7_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(04)17277-2"},{"key":"e_1_2_7_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.11210"},{"key":"e_1_2_7_11_1","doi-asserted-by":"publisher","DOI":"10.1001\/archinte.164.15.1641"},{"key":"e_1_2_7_12_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.mlr.0000118709.74348.65"},{"key":"e_1_2_7_13_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.23817"},{"key":"e_1_2_7_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.21604"},{"key":"e_1_2_7_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1741-6787.2009.00157.x"},{"issue":"2","key":"e_1_2_7_16_1","first-page":"362","article-title":"Does self\u2010management education benefit all populations with arthritis? 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