{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,14]],"date-time":"2026-07-14T10:04:50Z","timestamp":1784023490838,"version":"3.55.0"},"reference-count":45,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2022,10,1]],"date-time":"2022-10-01T00:00:00Z","timestamp":1664582400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2022,10,1]],"date-time":"2022-10-01T00:00:00Z","timestamp":1664582400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["International Journal of Nursing Knowledge"],"published-print":{"date-parts":[[2022,10]]},"abstract":"<jats:sec>\n                    <jats:title>Purpose<\/jats:title>\n                    <jats:p>To present a case study with Epidermolysis bullosa (EB) in Cyprus and to determine the nursing care plan, explaining the nursing interventions and showing the importance of nursing care of patients with EB.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Literature review on EB and semi-structured interviews commenced through a direct discussion with open-ended questions to the research subject as well as to a close relative describing his feelings, experiences, and concerns about the disease.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>Thematic analysis approach was used to identify and analyze patterns in the data. Then, data were synthesized using the standardized nursing terminology of NANDA-I and the Nursing Interventions Classification. The accuracy of the diagnoses and the appropriateness of the nursing interventions were supported by the positive health outcomes of the patient.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Nurses should apply evidence-based practice interventions for EB wound care, pain management, nutrition, psychological and social support to these patients.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Implications for nursing practice<\/jats:title>\n                    <jats:p>Although EB is classified in the category of rare diseases, the presentation of a case study in Cyprus and the nursing care plan contribute further bibliographically to the holistic and at the same time individualized nursing practice.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/2047-3095.12364","type":"journal-article","created":{"date-parts":[[2022,3,18]],"date-time":"2022-03-18T09:22:28Z","timestamp":1647595348000},"page":"312-320","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Epidermolysis Bullosa: A case study in Cyprus and the nursing care plan"],"prefix":"10.1177","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4589-1260","authenticated-orcid":false,"given":"Evanthia","family":"Asimakopoulou","sequence":"first","affiliation":[{"name":"Nursing Department, School of Health Sciences, Frederick University, Nicosia, Cyprus"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aspasia","family":"Andreou","sequence":"additional","affiliation":[{"name":"Nursing Department, School of Health Sciences, Frederick University, Nicosia, Cyprus"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Athina","family":"Patelarou","sequence":"additional","affiliation":[{"name":"Department of Nursing, Faculty of Health Sciences, Hellenic Mediterranean University, Crete, Greece"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Evridiki","family":"Patelarou","sequence":"additional","affiliation":[{"name":"Department of Nursing, Faculty of Health Sciences, Hellenic Mediterranean University, Crete, Greece"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Idriz","family":"Sopjani","sequence":"additional","affiliation":[{"name":"School of Health Sciences, AAB College, Kosovo"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alexandros","family":"Argyriadis","sequence":"additional","affiliation":[{"name":"Nursing Department, School of Health Sciences, Frederick University, Nicosia, Cyprus"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2022,10,17]]},"reference":[{"key":"e_1_3_3_2_1","doi-asserted-by":"publisher","DOI":"10.12968\/bjon.2008.17.Sup3.28911"},{"issue":"4","key":"e_1_3_3_3_1","first-page":"349","article-title":"Pain assessment and management in intensive care unit: Pharmacological and non-pharmacological approaches","volume":"57","author":"Asimakopoulou E.","year":"2018","unstructured":"Asimakopoulou E., Theodosis-Nobelos P., Triantis C. 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