{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T15:01:27Z","timestamp":1790694087215,"version":"4.1.0"},"reference-count":65,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2026,9,7]],"date-time":"2026-09-07T00:00:00Z","timestamp":1788739200000},"content-version":"vor","delay-in-days":6,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Alcohol, Clinical and Experimental Research"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Caregivers of individuals with fetal alcohol spectrum disorder (FASD) experience unique challenges, stressors, and strengths, and there is growing understanding of the needs of these caregivers. However, less is known about how the broader caregiver context, including sociodemographic and ecological factors, may be associated with well\u2010being.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      Data for this study were collected between 2021 and 2025, gathered at baseline as part of an ongoing international longitudinal survey about caregiver experiences and perspectives of raising people with FASD (\n                      <jats:italic>N<\/jats:italic>\n                      \u2009=\u2009234). Information on sociodemographic factors, family characteristics, and caregiver well\u2010being was analyzed.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Participants predominantly identified as women (95%) and had a mean age of 54\u2009years (range 26\u201382); most (69%) were adoptive caregivers of children and adults with FASD and 67% were living in Canada. Family structure and composition varied across participants, and many caregivers reported financial challenges. Overall, caregivers reported high levels of stress and limited social support, along with strengths in their relationships with spouses\/partners and relatives. Self\u2010reported well\u2010being was highest among parents who were retired, did not experience employment disruptions because of parenting responsibilities, cared for adults (as opposed to young children) with FASD, and had only one (as opposed to multiple) dependent(s) with FASD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study provides insight into broad contextual factors (i.e., employment status, life stage) that may influence well\u2010being among caregivers of people with FASD. Understanding these factors can lead to more tailored and effective responses, interventions, and policies that support stability and thriving among caregivers, families, and communities of people with FASD.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/acer.70363","type":"journal-article","created":{"date-parts":[[2026,9,7]],"date-time":"2026-09-07T14:01:41Z","timestamp":1788789701000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Trends in Well\u2010Being and Opportunities to Support Caregivers of Individuals With Fetal Alcohol Spectrum Disorder Across the Lifespan"],"prefix":"10.1111","volume":"50","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7230-2532","authenticated-orcid":false,"given":"Katherine","family":"Flannigan","sequence":"first","affiliation":[{"name":"School and Clinical Child Psychology University of Alberta  Edmonton Alberta Canada"},{"name":"Canada Fetal Alcohol Spectrum Disorder Research Network  Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kelly D.","family":"Harding","sequence":"additional","affiliation":[{"name":"Canada Fetal Alcohol Spectrum Disorder Research Network  Vancouver British Columbia Canada"},{"name":"Department of Psychology &amp; School of Kinesiology and Health Sciences Laurentian University  Sudbury Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dorothy","family":"Reid","sequence":"additional","affiliation":[{"name":"Canada Fetal Alcohol Spectrum Disorder Research Network  Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Audrey","family":"McFarlane","sequence":"additional","affiliation":[{"name":"Canada Fetal Alcohol Spectrum Disorder Research Network  Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melissa","family":"Dobson","sequence":"additional","affiliation":[{"name":"Canada Fetal Alcohol Spectrum Disorder Research Network  Vancouver British Columbia Canada"},{"name":"JR Shaw School of Business Northern Alberta Institute of Technology  Edmonton Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathy","family":"Unsworth","sequence":"additional","affiliation":[{"name":"Canada Fetal Alcohol Spectrum Disorder Research Network  Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2268-2191","authenticated-orcid":false,"given":"Jacqueline","family":"Pei","sequence":"additional","affiliation":[{"name":"School and Clinical Child Psychology University of Alberta  Edmonton Alberta Canada"},{"name":"Canada Fetal Alcohol Spectrum Disorder Research Network  Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,9,7]]},"reference":[{"key":"e_1_2_8_2_1","first-page":"1","article-title":"Causal Effects of Education on Marriage","volume":"34","author":"Ahn K.","year":"2025","journal-title":"Education Economics"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12144"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1093\/phe\/phv012"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.2517-6161.1995.tb02031.x"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12671-020-01443-1"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1179\/2047387714Y.0000000043"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.childyouth.2025.108366"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ridd.2016.03.002"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1037\/0003-066X.32.7.513"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare9121690"},{"key":"e_1_2_8_12_1","first-page":"1","article-title":"COVID\u201019 Pandemic Challenges for Families of Children and Youth Impacted by Fetal Alcohol Spectrum Disorder","volume":"28","author":"Champagne M.","year":"2023","journal-title":"Journal on Developmental Disabilities"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1352\/1944-7558-115.5.406"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/cfs.12970"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1503\/cmaj.141593"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.3109\/13668250.2016.1156659"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.3109\/13668250.2016.1267718"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1080\/16066359.2018.1478413"},{"key":"e_1_2_8_19_1","unstructured":"Disability Without Poverty & Campaign 2000.2024.\u201cDisability Without Poverty: 2024 Disability Poverty Report Card.\u201d"},{"key":"e_1_2_8_20_1","unstructured":"Dwomoh R. andK.Harding.2023.\u201cGap Analysis: Sexual Orientation Gender Identity Gender Expression and Fetal Alcohol Spectrum Disorder.\u201dCanada FASD Research Network."},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10882-016-9515-z"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.13277"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0312692"},{"key":"e_1_2_8_24_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2021.778471"},{"key":"e_1_2_8_25_1","volume-title":"Encyclopedia of Quality of Life and Well\u2010Being Research","author":"Frisch M. 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