{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,27]],"date-time":"2026-02-27T02:39:56Z","timestamp":1772159996902,"version":"3.50.1"},"reference-count":40,"publisher":"Wiley","license":[{"start":{"date-parts":[[2024,5,6]],"date-time":"2024-05-06T00:00:00Z","timestamp":1714953600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Asia-Pac J Clncl Oncology"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>Previous research has shown patients and the public in Australia generally support medical researchers in making de\u2010identified research data available to other scientists. However, this research has focussed on certain types of data and recipients. We surveyed Australians affected by cancer to characterize their attitudes toward the sharing of research data with multiple third parties, including the public.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A short, anonymous online survey of Australians with a previous diagnosis of cancer was advertised between October 27, 2022, and February 27, 2023. Quantitative responses were analyzed with descriptive statistics. Free\u2010text responses were coded deductively and summarised using content analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>In total, 551 respondents contributed data to the survey. There was strong support for cancer researchers sharing non\u2010human and de\u2010identified human research data with clinicians (90% and 95%, respectively) and non\u2010profit researchers (both 94%). However, fewer participants supported sharing data with for\u2010profit researchers (both 64%) or publicly (both 61%). When asked if they would hypothetically consent to researchers at their treatment location using and sharing their de\u2010identified data publicly, only half agreed. In contrast, after being shown a visual representation of the de\u2010identified survey data, 80% of respondents supported sharing it publicly.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Australians affected by cancer support the sharing of research data, particularly with clinicians and non\u2010profit researchers. Our results also imply that visualization of the data to be shared may enhance support for making it publicly available. These results should help alleviate any concerns about research participants\u2019 attitudes toward data sharing, as well as boost researchers\u2019 motivation for sharing.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/ajco.14075","type":"journal-article","created":{"date-parts":[[2024,5,6]],"date-time":"2024-05-06T08:18:08Z","timestamp":1714983488000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["What do Australians affected by cancer think about oncology researchers sharing research data? A cross\u2010sectional survey"],"prefix":"10.1111","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8104-474X","authenticated-orcid":false,"given":"Daniel G.","family":"Hamilton","sequence":"first","affiliation":[{"name":"MetaMelb Research Group School of BioSciences University of Melbourne  Melbourne Australia"},{"name":"Melbourne Medical School Faculty of Medicine Dentistry and Health Sciences University of Melbourne  Melbourne Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sarah","family":"Everitt","sequence":"additional","affiliation":[{"name":"Sir Peter MacCallum Department of Oncology University of Melbourne  Melbourne Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Matthew J.","family":"Page","sequence":"additional","affiliation":[{"name":"Methods in Evidence Synthesis Unit School of Public Health and Preventive Medicine Monash University  Melbourne Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fiona","family":"Fidler","sequence":"additional","affiliation":[{"name":"MetaMelb Research Group School of BioSciences University of Melbourne  Melbourne Australia"},{"name":"School of History &amp; Philosophy of Sciences University of Melbourne  Melbourne Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,5,6]]},"reference":[{"key":"e_1_2_12_2_1","unstructured":"FoleyC.How the United Nations' new \u2018open science framework\u2019 could speed up the pace of discovery. 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