{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,5]],"date-time":"2026-01-05T21:51:27Z","timestamp":1767649887041},"reference-count":8,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2016,2,5]],"date-time":"2016-02-05T00:00:00Z","timestamp":1454630400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100005107","name":"Australasian Blistering Diseases Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100005107","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Aust J Dermatology"],"published-print":{"date-parts":[[2017,5]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background\/Objectives<\/jats:title><jats:p>Patients with epidermolysis bullosa (<jats:styled-content style=\"fixed-case\">EB<\/jats:styled-content>) require specialised medical care. In Australia this expertise is located in the major cities, with patients living in rural and remote areas having reduced access to these services. We aim to analyse the geographical distribution of patients with <jats:styled-content style=\"fixed-case\">EB<\/jats:styled-content> in Australia to determine the relevance of this potential geographical disadvantage for this population.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Using postal codes obtained from the Australian National Diagnostic Laboratory Database for EB and the Australasian <jats:styled-content style=\"fixed-case\">EB<\/jats:styled-content> Registry, living patients with <jats:styled-content style=\"fixed-case\">EB<\/jats:styled-content> in Australia were categorised using the Australian standard geographical classification, remoteness areas. An analysis of <jats:styled-content style=\"fixed-case\">EB<\/jats:styled-content> subtype, including severity was also performed.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 318 patients were categorised, of whom 221 lived in major cities, 65 in inner regional areas, 26 in outer regional areas, four in remote and two in very remote areas. Half the patients living in remote and very remote areas had severe forms of <jats:styled-content style=\"fixed-case\">EB<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>A significant proportion of patients with <jats:styled-content style=\"fixed-case\">EB<\/jats:styled-content> live outside the major cities in Australia. Half of the patients living in remote and very remote areas had severe forms of <jats:styled-content style=\"fixed-case\">EB<\/jats:styled-content>. Targeted strategies to improve access to <jats:styled-content style=\"fixed-case\">EB<\/jats:styled-content>\u2010specific medical care may be needed for patients living in rural and remote areas.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ajd.12431","type":"journal-article","created":{"date-parts":[[2016,2,5]],"date-time":"2016-02-05T06:28:12Z","timestamp":1454653692000},"page":"122-125","update-policy":"http:\/\/dx.doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["The distribution of epidermolysis bullosa in Australia with a focus on rural and remote areas"],"prefix":"10.1111","volume":"58","author":[{"given":"Adam G","family":"Harris","sequence":"first","affiliation":[{"name":"Department of Dermatology St George Hospital Sydney New South Wales Australia"},{"name":"Faculty of Medicine University of New South Wales Sydney New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nancy R","family":"Todes\u2010Taylor","sequence":"additional","affiliation":[{"name":"Department of Dermatology St George Hospital Sydney New South Wales Australia"},{"name":"The Poche Centre for Indigenous Health Sydney New South Wales Australia"},{"name":"Kaiser Permanente Medical Group San Rafael California USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nenad","family":"Petrovi\u0107","sequence":"additional","affiliation":[{"name":"Department of Dermatology St George Hospital Sydney New South Wales Australia"},{"name":"Melbourne Victoria Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dedee F","family":"Murrell","sequence":"additional","affiliation":[{"name":"Department of Dermatology St George Hospital Sydney New South Wales Australia"},{"name":"Faculty of Medicine University of New South Wales Sydney New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2016,2,5]]},"reference":[{"key":"e_1_2_8_2_1","unstructured":"Australian Institute of Health and Welfare 2008.Rural regional and remote health: indicators of health status and determinants of health. Rural Health Series no. 9. Cat. no. PHE 97.Canberra:AIHW.2008"},{"key":"e_1_2_8_3_1","unstructured":"Australian Institute of Health and Welfare 2008.Rural regional and remote health: indicators of health system performance. Rural Health Series no. 10. Cat. no. PHE 103.Canberra:AIHW.2008"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1186\/1478-4491-12-50"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2014.01.903"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.det.2010.02.009"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1001\/archdermatol.2010.109"},{"key":"e_1_2_8_8_1","unstructured":"Australian Institute of Health and Welfare. Rural Regional and Remote Health: A Guide to Remoteness Classifications(Cat. no. 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