{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T00:36:50Z","timestamp":1747183010751,"version":"3.40.5"},"reference-count":46,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2023,6,19]],"date-time":"2023-06-19T00:00:00Z","timestamp":1687132800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Australian J Rural Health"],"published-print":{"date-parts":[[2023,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>A growing body of research has examined the physical, psychological, social and financial impacts of living kidney donation. However, little is known about the unique experiences or additional burdens faced by living donors from regional or remote locations.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>To explore the experiences of living kidney donors who live outside metropolitan centres and to determine how support services could be orientated to better meet their unique needs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design\/Setting\/Participants<\/jats:title><jats:p>Seventeen living kidney donors participated in semistructured telephone interviews. Qualitative data were analysed using thematic analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Findings<\/jats:title><jats:p>Eight themes were identified: (1) donor's emotional well\u2010being is influenced by the recipient's outcome, (2) varied levels of access to medical support and other important services in rural areas, (3) travel takes a toll on time, finances and well\u2010being, (4) varied level of financial impact, (5) medical, emotional and social challenges, (6) both lay and health professional support is valued, (7) varied levels of knowledge and experiences accessing information and (8) a worthwhile experience overall.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Despite many challenges, and travel adding to the complexity, rural living kidney donors generally consider it to be a worthwhile experience. The provision of additional emotional, practical and educational support would be welcomed by this group.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ajr.13008","type":"journal-article","created":{"date-parts":[[2023,6,19]],"date-time":"2023-06-19T18:15:00Z","timestamp":1687198500000},"page":"866-877","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["\u2018It is a life changing experience\u2019: The experiences of living kidney donors who live in rural Australia"],"prefix":"10.1111","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0715-3563","authenticated-orcid":false,"given":"Gemma","family":"Skaczkowski","sequence":"first","affiliation":[{"name":"Department of Rural Health, Allied Health and Human Performance University of South Australia  Adelaide South Australia Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1134-3266","authenticated-orcid":false,"given":"Alison","family":"Barrett","sequence":"additional","affiliation":[{"name":"Department of Rural Health, Allied Health and Human Performance University of South Australia  Adelaide South Australia Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5478-1576","authenticated-orcid":false,"given":"Ian","family":"Olver","sequence":"additional","affiliation":[{"name":"School of Psychology University of Adelaide  Adelaide South Australia Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6427-2115","authenticated-orcid":false,"given":"James","family":"Dollman","sequence":"additional","affiliation":[{"name":"Alliance for Research in Exercise, Nutrition and Activity, Allied Health and Human Performance University of South Australia  Adelaide Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0837-6814","authenticated-orcid":false,"given":"Kate M.","family":"Gunn","sequence":"additional","affiliation":[{"name":"Department of Rural Health, Allied Health and Human Performance University of South Australia  Adelaide South Australia Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,6,19]]},"reference":[{"volume-title":"2021 Australian donation and transplantation activity report","year":"2021","author":"Organ and Tissue Authority","key":"e_1_2_10_2_1"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1523-1755.2002.00424.x"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1097\/SLA.0000000000003463"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1681\/ASN.2017111160"},{"key":"e_1_2_10_6_1","unstructured":"Australian Healthcare Associates.Factors contributing to the decline of living organ donations.2013[cited 2022 Sept 11]. Available from:https:\/\/www1.health.gov.au\/internet\/main\/publishing.nsf\/Content\/B53FBF39515864A5CA257D030015B708\/$File\/Final%20Report%20\u2010%20Factors%20contributing%20to%20the%20decline%20in%20living%20organ%20donations%20(D14\u2010290678).PDF"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.2215\/CJN.11220918"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/lt.23966"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1177\/2054358118789366"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.e1203"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1097\/TP.0000000000002222"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/ctr.12344"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-0012.2007.00726.x"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1093\/hsw\/33.2.93"},{"issue":"4","key":"e_1_2_10_15_1","first-page":"423","article-title":"An exploration of experiences of living renal donors following donation","volume":"36","author":"Williams AM","year":"2009","journal-title":"Nephrol Nurs J"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/jorc.12233"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2008.03.004"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.TP.0000087833.48999.3D"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/0261018314538795"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1600-6143.2006.01567.x"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1093\/ndt\/gfr584"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.bbmt.2016.03.019"},{"volume-title":"2071.0 \u2013 census of population and housing: reflecting Australia \u2013 stories from the census, 2016","year":"2018","author":"Australian Bureau of Statistics","key":"e_1_2_10_23_1"},{"key":"e_1_2_10_24_1","first-page":"2144","article-title":"It's a regional thing': financial impact of renal transplantation on live donors","volume":"12","author":"McGrath P","year":"2012","journal-title":"Rural Remote Health"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2020-037529"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.1111\/ajr.12693"},{"volume-title":"1270.0.55.005 \u2013 Australian statistical geography standard (ASGS): volume 5 \u2013 remoteness structure, July 2016","year":"2018","author":"Australian Bureau of Statistics","key":"e_1_2_10_27_1"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.ajkd.2011.11.043"},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.1177\/1747016115579532"},{"volume-title":"Qualitative research in health: an introduction","year":"1999","author":"Grbich C","key":"e_1_2_10_30_1"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_10_32_1","first-page":"255","article-title":"Qualitative descriptive research: an acceptable design","volume":"16","author":"Lambert VA","year":"2012","journal-title":"Pac Rim Int J Nurs Res Thail"},{"key":"e_1_2_10_33_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-13-117"},{"key":"e_1_2_10_34_1","doi-asserted-by":"publisher","DOI":"10.5694\/j.1326-5377.2008.tb01595.x"},{"key":"e_1_2_10_35_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_2_10_36_1","doi-asserted-by":"publisher","DOI":"10.2215\/CJN.13441217"},{"volume-title":"Rural and remote health","year":"2019","author":"Australian Institute of Health and Welfare","key":"e_1_2_10_37_1"},{"key":"e_1_2_10_38_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ekir.2020.08.017"},{"key":"e_1_2_10_39_1","doi-asserted-by":"publisher","DOI":"10.61658\/jnsw.v40i2.70"},{"key":"e_1_2_10_40_1","doi-asserted-by":"publisher","DOI":"10.1080\/15228830802462063"},{"key":"e_1_2_10_41_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2017-019481"},{"key":"e_1_2_10_42_1","doi-asserted-by":"publisher","DOI":"10.1111\/nep.13205"},{"key":"e_1_2_10_43_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jval.2020.10.005"},{"key":"e_1_2_10_44_1","doi-asserted-by":"publisher","DOI":"10.1681\/ASN.2018040398"},{"key":"e_1_2_10_45_1","unstructured":"Western Australia Department of Health.PATS subsidies.2022[cited 2023 Feb 3]. Available from:https:\/\/www.wacountry.health.wa.gov.au\/Our\u2010patients\/Patient\u2010Assisted\u2010Travel\u2010Scheme\u2010PATS\/PATS\u2010subsidies"},{"key":"e_1_2_10_46_1","unstructured":"NSW Government.Isolated Patients Travel and Accommodation Assistance Scheme.2023[cited 2023 Feb 23]. Available from:https:\/\/www.iptaas.health.nsw.gov.au\/faq#Am\u2010I\u2010eligible"},{"key":"e_1_2_10_47_1","unstructured":"Australian Government Organ and Tissue Authority.Living donation: organ and tissue authority.2021[cited 2022 Sept 12]. Available from:https:\/\/www.donatelife.gov.au\/about\u2010donation\/living\u2010donation"}],"container-title":["Australian Journal of Rural Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/ajr.13008","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,1,4]],"date-time":"2024-01-04T18:04:03Z","timestamp":1704391443000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/ajr.13008"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,6,19]]},"references-count":46,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2023,10]]}},"alternative-id":["10.1111\/ajr.13008"],"URL":"https:\/\/doi.org\/10.1111\/ajr.13008","archive":["Portico"],"relation":{},"ISSN":["1038-5282","1440-1584"],"issn-type":[{"type":"print","value":"1038-5282"},{"type":"electronic","value":"1440-1584"}],"subject":[],"published":{"date-parts":[[2023,6,19]]},"assertion":[{"value":"2022-10-15","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-05-28","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-06-19","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}