{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,29]],"date-time":"2026-03-29T01:26:43Z","timestamp":1774747603716,"version":"3.50.1"},"reference-count":14,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2024,12,17]],"date-time":"2024-12-17T00:00:00Z","timestamp":1734393600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100015069","name":"South Eastern Sydney Local Health District","doi-asserted-by":"publisher","award":["RES\u2010ON Grant Round 2"],"award-info":[{"award-number":["RES\u2010ON Grant Round 2"]}],"id":[{"id":"10.13039\/100015069","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001773","name":"University of New South Wales","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100001773","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["ANZ Journal of Surgery"],"published-print":{"date-parts":[[2025,5]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Degenerative\u00a0Cervical Myelopathy (DCM) is the most common cause of non\u2010traumatic, chronic spinal cord dysfunction worldwide, causing debilitating disability with a diminishing quality of life. The natural history of DCM is poorly understood. This is a preliminary report of the first 60 patients recruited to the MYelopathy NAtural History (MYNAH) Registry.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>MYNAH Registry is an investigator\u2010initiated, multicenter, prospective, non\u2010interventional, longitudinal, national observational study (Registry ID ACSQHC\u2010ARCR\u2010258). Given the observational nature of the Registry, participants' clinical management plan is neither changed nor affected. Participants are recruited via an opt\u2010in approach. A patient with DCM diagnosed by a spine\/neurosurgeon after 1st January 2018 onwards is eligible to participate regardless of their surgical status. The Patient\u2010Reported Outcome Measures (PROMs) are NDI, EQ5D5L and EQ\u2010VAS; and the Practitioner\u2010Reported Outcome Measures (PrROMs) are mJOA Score and Nurick Grade.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Sixty participants (<jats:italic>n<\/jats:italic>\u2009=\u200960) have now been recruited of which male participants 34 (56.7%) and females are 26 (43.3%), with a mean age of 62.3\u2009years (SD 14.1) and biospecimens for Proteomics have been collected from 33 (66%) participants. The median mJOA Score was 16.5 (8\u201318), with myelopathy severity recorded as mild in 42 (70%), moderate in 13 (21.7%) and severe in 5 (8.3%) participants. Median Nurick Grade 0 (0\u20135), NDI 14 (0\u201345), EQ5D5L Score 0.850 (\u22120.288\u20131) and EQ\u2010VAS 70 (10\u201396).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The MYNAH National DCM Registry in Australia is a novel spinal surgical initiative, that will inform the decision(s) to proceed with the scientific, evidence\u2010based and personalised management of DCM globally in the future.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ans.19354","type":"journal-article","created":{"date-parts":[[2024,12,17]],"date-time":"2024-12-17T12:03:38Z","timestamp":1734437018000},"page":"979-984","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Baseline characteristics of patients with degenerative cervical myelopathy in Australia: analysis from the <scp>MYelopathy NAtural History<\/scp> registry"],"prefix":"10.1111","volume":"95","author":[{"given":"Nashwa","family":"Najib","sequence":"first","affiliation":[{"name":"University of New South Wales (UNSW)  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alper","family":"Yataganbaba","sequence":"additional","affiliation":[{"name":"Royal Melbourne Hospital  Melbourne Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nancy E.","family":"Briggs","sequence":"additional","affiliation":[{"name":"University of New South Wales (UNSW)  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ali","family":"Ghahreman","sequence":"additional","affiliation":[{"name":"St George Private Hospital  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ralph","family":"Mobbs","sequence":"additional","affiliation":[{"name":"Neurospine Clinic  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Prashant J.","family":"Rao","sequence":"additional","affiliation":[{"name":"Brain and Spine Surgery  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mitchell","family":"Hansen","sequence":"additional","affiliation":[{"name":"Newcastle Brain and Spine  Newcastle Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mark","family":"Davies","sequence":"additional","affiliation":[{"name":"St George Private Hospital  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Saeed","family":"Kohan","sequence":"additional","affiliation":[{"name":"St George Private Hospital  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Vinay","family":"Kulkarni","sequence":"additional","affiliation":[{"name":"St George Private Hospital  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alisha","family":"Sial","sequence":"additional","affiliation":[{"name":"University of New South Wales (UNSW)  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anuruthran","family":"Ambikaipalan","sequence":"additional","affiliation":[{"name":"Epworth Hospital  Melbourne Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1037-8421","authenticated-orcid":false,"given":"Ashish D.","family":"Diwan","sequence":"additional","affiliation":[{"name":"University of New South Wales (UNSW)  Sydney Australia"},{"name":"St George Private Hospital  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,12,17]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.3390\/jcm10061214"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wneu.2016.12.124"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/2192568217701914"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1097\/BRS.0000000000000988"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1038\/sc.2012.61"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/2192568219847439"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1177\/2192568219832855"},{"key":"e_1_2_9_9_1","unstructured":"National arrangements for clinical quality registries: Australian Commission on Safety and Quality in Health care. 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