{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,16]],"date-time":"2025-05-16T04:02:44Z","timestamp":1747368164171,"version":"3.40.5"},"reference-count":14,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2025,2,18]],"date-time":"2025-02-18T00:00:00Z","timestamp":1739836800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["ANZ Journal of Surgery"],"published-print":{"date-parts":[[2025,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Disease severity and treatment efficacy in salivary gland disorders can be gauged through quality\u2010of\u2010life (QoL) questionnaires. However, limited research has explored patient experience with these questionnaires. This cross\u2010sectional study assessed the usability of, and patient experience with, six validated QoL questionnaires.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This cross\u2010sectional study assessed the usability of and patient experience with the QoL\u201015D, Oral Health Impact Profile\u201014, Manukau Salivary Symptom Score, Chronic Obstructive Sialadenitis Symptoms, Multidisciplinary Salivary Gland Society, and Glasgow Benefit Index questionnaires. We measured the time to complete each questionnaire, patient\u2010perceived questionnaire coverage of symptoms and disease impact using a 5\u2010point Likert scale, patient experience with the questionnaires through open feedback, and which questionnaire patients most preferred. There were 30 participants in this study.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>All questionnaires tested could be completed in under 5 min each. The most preferred questionnaire was the Manukau Salivary Symptom Score (43%). Participants raised the following concerns regarding the questionnaires: unclear timeframes (90%), questions not being relevant (67%), initial questions not addressing their primary symptoms (40%), confusing or unclear question wording (37%), inconsistent response scale between questions (27%), and antibiotic use during flare\u2010ups assuming access to primary medical care (7%).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>No previous study has measured and analysed patient experience with the currently validated QoL questionnaires used in salivary gland disorders. This study's findings can be used to inform both questionnaire selection as well as the development of future QoL questionnaires for salivary gland disorders in order to achieve a better overall patient experience and reduce unintentional bias.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ans.19403","type":"journal-article","created":{"date-parts":[[2025,2,18]],"date-time":"2025-02-18T11:55:23Z","timestamp":1739879723000},"page":"733-738","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Patient experience with quality\u2010of\u2010life questionnaires for obstructive salivary gland disorders: a cross\u2010sectional study"],"prefix":"10.1111","volume":"95","author":[{"ORCID":"https:\/\/orcid.org\/0009-0009-5274-8241","authenticated-orcid":false,"given":"Saskia","family":"Boogaard","sequence":"first","affiliation":[{"name":"Department of Otolaryngology and Head and Neck Surgery Crest Hospital, ENTCENTRAL and Te Whatu Ora Palmerston North Hospital  Palmerston North New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8704-3270","authenticated-orcid":false,"given":"Naveed","family":"Basheeth","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology and Head and Neck Surgery Crest Hospital, ENTCENTRAL and Te Whatu Ora Palmerston North Hospital  Palmerston North New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,2,18]]},"reference":[{"doi-asserted-by":"publisher","key":"e_1_2_9_2_1","DOI":"10.1002\/lary.29731"},{"doi-asserted-by":"publisher","key":"e_1_2_9_3_1","DOI":"10.3109\/07853890109002086"},{"doi-asserted-by":"publisher","key":"e_1_2_9_4_1","DOI":"10.1111\/j.1600-0528.1997.tb00941.x"},{"doi-asserted-by":"publisher","key":"e_1_2_9_5_1","DOI":"10.1177\/000348949610500601"},{"doi-asserted-by":"publisher","key":"e_1_2_9_6_1","DOI":"10.1177\/01945998211017444"},{"doi-asserted-by":"publisher","key":"e_1_2_9_7_1","DOI":"10.1186\/s12893-021-01462-2"},{"doi-asserted-by":"publisher","key":"e_1_2_9_8_1","DOI":"10.1186\/1477-7525-1-24"},{"doi-asserted-by":"publisher","key":"e_1_2_9_9_1","DOI":"10.1097\/00005537-200409000-00009"},{"doi-asserted-by":"publisher","key":"e_1_2_9_10_1","DOI":"10.1016\/S0140-6736(07)61602-X"},{"volume-title":"How to Score and Interpret Single\u2010Item Health Status Measures: A Manual for Users of the SF\u20108 Health Survey","year":"2001","author":"Ware JE","key":"e_1_2_9_11_1"},{"doi-asserted-by":"publisher","key":"e_1_2_9_12_1","DOI":"10.1097\/00005650-199206000-00002"},{"doi-asserted-by":"publisher","key":"e_1_2_9_13_1","DOI":"10.1002\/lary.24343"},{"doi-asserted-by":"publisher","key":"e_1_2_9_14_1","DOI":"10.1186\/s40463-022-00555-z"},{"doi-asserted-by":"publisher","key":"e_1_2_9_15_1","DOI":"10.1002\/lary.30244"}],"container-title":["ANZ Journal of Surgery"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/ans.19403","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,5,15]],"date-time":"2025-05-15T06:51:30Z","timestamp":1747291890000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/ans.19403"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,2,18]]},"references-count":14,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2025,4]]}},"alternative-id":["10.1111\/ans.19403"],"URL":"https:\/\/doi.org\/10.1111\/ans.19403","archive":["Portico"],"relation":{},"ISSN":["1445-1433","1445-2197"],"issn-type":[{"type":"print","value":"1445-1433"},{"type":"electronic","value":"1445-2197"}],"subject":[],"published":{"date-parts":[[2025,2,18]]},"assertion":[{"value":"2024-07-14","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-01-08","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-02-18","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}