{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T11:15:03Z","timestamp":1788347703261,"version":"build-2803163510"},"reference-count":18,"publisher":"Wiley","issue":"7-8","license":[{"start":{"date-parts":[[2026,6,11]],"date-time":"2026-06-11T00:00:00Z","timestamp":1781136000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,6,11]],"date-time":"2026-06-11T00:00:00Z","timestamp":1781136000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["ANZ Journal of Surgery"],"published-print":{"date-parts":[[2026,7]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The data elements and indicators in a clinical quality registry (CQR) contribute towards the utility of its output and should be informed by stakeholder input. In Australia and Aotearoa New Zealand (AANZ), there is no CQR for pancreatic cancer surgery. This study aimed to select data elements and registry aims with stakeholder input.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A three\u2010round modified Delphi consensus process was conducted involving clinicians and consumers. An initial list of data elements was generated through a review of literature, existing international registries, and guidelines. Participants rated the importance of each element using the RAND\/UCLA method. In the final round, \u2265\u200975% consensus was needed for an element to be accepted. Participants rated potential registry aims.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Consumers and clinicians from across AANZ were involved. A total of 66 participants were involved asynchronously across the three rounds (Round 1,\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200933; Round 2,\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200940; Round 3,\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200963), with representatives from consumers, surgery, medical oncology, nutrition, nursing, public health and a consumer organisation. After three rounds, 121 data elements were accepted, and all 9 registry aims were rated with high importance. Of these elements, 54 were classified as quality indicators (structure\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20093, process\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200911, outcome\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200940).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The utility of a registry relies on having meaningful and feasible data elements and indicators. Through involvement of key stakeholders in a systematic process, this study has selected data elements and indicators for a proposed AANZ pancreatic cancer surgery CQR. This is an essential step towards establishing such a registry. The next steps will be to pilot the dataset with pancreatic surgery centres across the region, and to establish baseline benchmarks.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/ans.70789","type":"journal-article","created":{"date-parts":[[2026,6,11]],"date-time":"2026-06-11T13:05:51Z","timestamp":1781183151000},"page":"1969-1977","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Stakeholder Consensus Selection of Data Elements and Indicators for a Pancreatic Cancer Surgical Outcomes Registry in Australia and Aotearoa New Zealand: Modified Delphi Process"],"prefix":"10.1111","volume":"96","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5223-5958","authenticated-orcid":false,"given":"Elizabeth","family":"Lockie","sequence":"first","affiliation":[{"name":"Department of General Surgical Specialities Royal Melbourne Hospital  Parkville Victoria Australia"},{"name":"Department of Medicine, Dentistry and Health Sciences The University of Melbourne  Parkville Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anita","family":"Skandarajah","sequence":"additional","affiliation":[{"name":"Department of General Surgical Specialities Royal Melbourne Hospital  Parkville Victoria Australia"},{"name":"Department of Medicine, Dentistry and Health Sciences The University of Melbourne  Parkville Victoria Australia"},{"name":"Peter MacCallum Cancer Centre  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6624-0782","authenticated-orcid":false,"given":"John","family":"Zalcberg","sequence":"additional","affiliation":[{"name":"Department of Medicine, Dentistry and Health Sciences The University of Melbourne  Parkville Victoria Australia"},{"name":"School of Public Health, Faculty of Medicine Monash University  Melbourne Victoria Australia"},{"name":"Department of Medical Oncology Alfred Health  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9649-7343","authenticated-orcid":false,"given":"Kai","family":"Brown","sequence":"additional","affiliation":[{"name":"The University of Sydney  Sydney Australia"},{"name":"Royal North Shore Hospital  Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4826-5038","authenticated-orcid":false,"given":"Manju","family":"Chandrasegaram","sequence":"additional","affiliation":[{"name":"Prince Charles Hospital  Brisbane Australia"},{"name":"The University of Queensland  Brisbane Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8833-5603","authenticated-orcid":false,"given":"Jonathan","family":"Koea","sequence":"additional","affiliation":[{"name":"Waitemata District Health Board North Shore Hospital  Auckland New Zealand"},{"name":"University of Auckland  Auckland New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-6336-7293","authenticated-orcid":false,"given":"Elaine","family":"Kuri","sequence":"additional","affiliation":[{"name":"Peter MacCallum Cancer Centre  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5742-8417","authenticated-orcid":false,"given":"David","family":"Watters","sequence":"additional","affiliation":[{"name":"University Hospital Geelong, Barwon Health  Geelong Victoria Australia"},{"name":"Deakin University  Geelong Victoria Australia"},{"name":"Safer Care Victoria  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1544-7783","authenticated-orcid":false,"given":"Andrew","family":"Metz","sequence":"additional","affiliation":[{"name":"Department of Medicine, Dentistry and Health Sciences The University of Melbourne  Parkville Victoria Australia"},{"name":"Peter MacCallum Cancer Centre  Melbourne Victoria Australia"},{"name":"Department of Gastroenterology Royal Melbourne Hospital  Parkville Victoria Australia"},{"name":"Epworth Healthcare  Richmond Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8179-2182","authenticated-orcid":false,"given":"Benjamin P. T.","family":"Loveday","sequence":"additional","affiliation":[{"name":"Department of General Surgical Specialities Royal Melbourne Hospital  Parkville Victoria Australia"},{"name":"Department of Medicine, Dentistry and Health Sciences The University of Melbourne  Parkville Victoria Australia"},{"name":"Peter MacCallum Cancer Centre  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"PaCaSO Consensus Group","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,6,11]]},"reference":[{"key":"e_1_2_10_2_1","unstructured":"The Australian Commission on Safety and Quality in Health Care \u201cPrioritised List of Clinical Domains for Clinical Quality Registry Development\u2013Final Report \u201dSydney 2016 http:\/\/www.safetyandquality.gov.au."},{"key":"e_1_2_10_3_1","unstructured":"ACSQHC \u201cAustralian Framework for National Clinical Quality Registries 2024 \u201dSydney 2024 http:\/\/www.safetyandquality.gov.au."},{"key":"e_1_2_10_4_1","unstructured":"Upper Gastrointestinal Cancer Registry2024 https:\/\/ugicr.org.au."},{"key":"e_1_2_10_5_1","unstructured":"PURPLE Translational Registry \u201cPURPLE Translational Registry \u201d2025 https:\/\/purplepancreas.pixo.com.au\/page\/69\/purple\u2010translational\u2010registry."},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/ans.19265"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.hpb.2018.08.016"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0251395"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1097\/j.pain.0000000000002729"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12630"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjd.16714"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216317690685"},{"key":"e_1_2_10_13_1","first-page":"109","volume-title":"The Rand\/UCLA Appropriateness Method User's Manual","author":"Fitch K.","year":"2001"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.2307\/3348969"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/0021\u20109681(87)90171\u20108"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzab107"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejso.2016.03.011"},{"key":"e_1_2_10_18_1","unstructured":"American College of Surgeons National Surgical Quality Improvement Program \u201cUser Guide for the 2022 ACS NSQIP Participated Use Data File \u201d2023."},{"key":"e_1_2_10_19_1","unstructured":"American College of Surgeons National Surgical Quality Improvement Program \u201cUser Guide for the 2022 ACS NSQIP Procedure Targeted Participated Use Data File \u201d2023."}],"container-title":["ANZ Journal of Surgery"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/ans.70789","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/ans.70789","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/ans.70789","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T10:33:50Z","timestamp":1788345230000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/ans.70789"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,6,11]]},"references-count":18,"journal-issue":{"issue":"7-8","published-print":{"date-parts":[[2026,7]]}},"alternative-id":["10.1111\/ans.70789"],"URL":"https:\/\/doi.org\/10.1111\/ans.70789","archive":["Portico"],"relation":{},"ISSN":["1445-1433","1445-2197"],"issn-type":[{"value":"1445-1433","type":"print"},{"value":"1445-2197","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,6,11]]},"assertion":[{"value":"2026-04-13","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-06-01","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-06-11","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}