{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,27]],"date-time":"2026-06-27T03:15:12Z","timestamp":1782530112481,"version":"3.54.5"},"reference-count":30,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2017,8,3]],"date-time":"2017-08-03T00:00:00Z","timestamp":1501718400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2018,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>This study examines parental satisfaction with care received in the context of a life\u2010limiting foetal diagnosis and subsequent birth.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Survey methods were utilised to embed the <jats:italic>Quality Indicators<\/jats:italic> (<jats:italic><jats:styled-content style=\"fixed-case\">QI<\/jats:styled-content><\/jats:italic>) <jats:italic>and Parental Satisfaction of Perinatal Palliative Care Instrument<\/jats:italic> in a survey: \u2018The Voice of Parents\u2019.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The web\u2010based survey had a final sample of N = 405 parent responders. Overall, parents reported satisfaction with care (80.2%; n = 393). Parents satisfied with care reported higher agreement with quality indicator items for all subscales. In total, 17 items from the 41\u2010item instrument revealed the ability to predict higher parental satisfaction when particular <jats:styled-content style=\"fixed-case\">QI<\/jats:styled-content> are reported.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>This study has led to credible insights into parental satisfaction with care given after the birth of an infant with a life\u2010limiting condition. The findings contribute to development of a model with a good fit in ascertaining the importance of compassion, unhurried provider\u2013patient communication and bereavement interventions.<\/jats:p><\/jats:sec>","DOI":"10.1111\/apa.13980","type":"journal-article","created":{"date-parts":[[2017,7,11]],"date-time":"2017-07-11T08:32:39Z","timestamp":1499761959000},"page":"276-282","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":19,"title":["Quality predictors of parental satisfaction after birth of infants with life\u2010limiting conditions"],"prefix":"10.1111","volume":"107","author":[{"given":"Charlotte","family":"Wool","sequence":"first","affiliation":[{"name":"Department of Nursing York College of Pennsylvania York PA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8801-0040","authenticated-orcid":false,"given":"Victoria J.","family":"Kain","sequence":"additional","affiliation":[{"name":"Griffith University and Menzies Health Institute Brisbane QLD Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joana","family":"Mendes","sequence":"additional","affiliation":[{"name":"Sao Francisco Xavier Hospital Lisbon Portugal"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brian S.","family":"Carter","sequence":"additional","affiliation":[{"name":"University of Missouri\u2010Kansas City School of Medicine Kansas City MO USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2017,8,3]]},"reference":[{"key":"e_1_2_12_2_1","unstructured":"AndersonJ.The roles responsibilities and rights of parents. 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