{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,19]],"date-time":"2026-10-19T06:53:53Z","timestamp":1792392833116,"version":"4.4.0"},"reference-count":20,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2019,5,20]],"date-time":"2019-05-20T00:00:00Z","timestamp":1558310400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100005348","name":"Socialdepartementet","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100005348","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2019,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>To describe the Swedish Neonatal Quality Register (<jats:styled-content style=\"fixed-case\">SNQ<\/jats:styled-content>) and to determine its completeness and agreement with other registers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p><jats:styled-content style=\"fixed-case\">SNQ<\/jats:styled-content> collects data for infants admitted to neonatal units during the first four postnatal weeks. Completeness and registers\u2019 agreement were determined cross\u2010linking <jats:styled-content style=\"fixed-case\">SNQ<\/jats:styled-content> data with Swedish population registers (the Inpatient, Medical Birth and Cause of Death Registers) for a study period of five years.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>In total, 84\u00a0712 infants were hospitalised. A total of 52\u00a0806 infants occurred in both <jats:styled-content style=\"fixed-case\">SNQ<\/jats:styled-content> and the population registers; 28\u00a0692 were only found in the population registers, and 3214 infants were only found in <jats:styled-content style=\"fixed-case\">SNQ<\/jats:styled-content>. Between gestational weeks 24\u201334, completeness of <jats:styled-content style=\"fixed-case\">SNQ<\/jats:styled-content> was 98\u201399%. Below and above these gestational ages, completeness was lower. Infants missing in <jats:styled-content style=\"fixed-case\">SNQ<\/jats:styled-content> were term or near\u2010term in 99% of the cases, and their diagnoses indicated conditions managed in maternity units, or re\u2010admissions for acute infections, managed in paediatric units. For most diagnoses, the agreement between <jats:styled-content style=\"fixed-case\">SNQ<\/jats:styled-content> and population registers was high, but some (bronchopulmonary dysplasia and grade of hypoxic\u2010ischaemic encephalopathy) were often missing in the population registers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p><jats:styled-content style=\"fixed-case\">SNQ<\/jats:styled-content> completeness and agreement against other registers, especially for preterm infants, is excellent. <jats:styled-content style=\"fixed-case\">SNQ<\/jats:styled-content> is a valid tool for benchmarking, quality improvement and research.<\/jats:p><\/jats:sec>","DOI":"10.1111\/apa.14823","type":"journal-article","created":{"date-parts":[[2019,4,21]],"date-time":"2019-04-21T13:08:48Z","timestamp":1555852128000},"page":"1411-1418","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":87,"title":["The Swedish Neonatal Quality Register \u2013 contents, completeness and validity"],"prefix":"10.1111","volume":"108","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4191-3781","authenticated-orcid":false,"given":"Mikael","family":"Norman","sequence":"first","affiliation":[{"name":"Department of Clinical Science, Intervention and Technology Division of Pediatrics Karolinska Institutet Stockholm Sweden"},{"name":"Department of Neonatal Medicine Karolinska University Hospital Stockholm Sweden"},{"name":"Swedish Neonatal Quality Register (SNQ) V\u00e4sterbotten county council Ume\u00e5 Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karin","family":"K\u00e4ll\u00e9n","sequence":"additional","affiliation":[{"name":"Swedish Neonatal Quality Register (SNQ) V\u00e4sterbotten county council Ume\u00e5 Sweden"},{"name":"Centre for Reproductive Epidemiology Lund University Lund Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erik","family":"Wahlstr\u00f6m","sequence":"additional","affiliation":[{"name":"National Board of Health and Welfare Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stellan","family":"H\u00e5kansson","sequence":"additional","affiliation":[{"name":"Swedish Neonatal Quality Register (SNQ) V\u00e4sterbotten county council Ume\u00e5 Sweden"},{"name":"Department of Clinical Sciences Division of Pediatrics Ume\u00e5 University Ume\u00e5 Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"The SNQ Collaboration","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2019,5,20]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"crossref","first-page":"540","DOI":"10.1542\/peds.91.3.540","article-title":"The Vermont\u2010Oxford Trials Network: very low birth weight outcomes for 1990. 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