{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,26]],"date-time":"2026-09-26T00:34:30Z","timestamp":1790382870666,"version":"4.1.0"},"reference-count":29,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2020,4,14]],"date-time":"2020-04-14T00:00:00Z","timestamp":1586822400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100004359","name":"Vetenskapsr\u00e5det","doi-asserted-by":"publisher","award":["VR\u20102011\/3440"],"award-info":[{"award-number":["VR\u20102011\/3440"]}],"id":[{"id":"10.13039\/501100004359","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2020,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>Children with epilepsy often have concomitant diagnoses. Dried blood spot samples for drug monitoring can be collected by parents at home as an alternative to traditional sampling. This mixed\u2010method study aimed to understand the parents' perspectives on blood self\u2010sampling from their children and to identify factors contributing to successful sampling.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>Parents who had collected a sample from their child during a visit to the neuropediatric clinic were asked to fill in a questionnaire. To get in\u2010depth information and individual perspectives, parents and nurses participated in semi\u2010structured interviews and analysed with thematic analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The results from questionnaires (n\u00a0=\u00a064) and interviews (n\u00a0=\u00a09) were interpreted together. Watching an instruction video and practical training contributed to successful sampling. 97% of the parents managed to collect a sample, 72% thought it was easy to perform, and 80% found self\u2010sampling at home desirable. Factors for success were as follows: high motivation, prepared parents with pre\u2010understanding, a pragmatic attitude, flexible education, effective communication and willingness to take on the role as a performer. Risk factors were as follows: conflict, fear, unprepared parents, confused or worried children.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Voluntary self\u2010sampling at home for parents of children with epilepsy is feasible and can reduce stress factors in everyday life.<\/jats:p><\/jats:sec>","DOI":"10.1111\/apa.15264","type":"journal-article","created":{"date-parts":[[2020,3,21]],"date-time":"2020-03-21T09:05:05Z","timestamp":1584781505000},"page":"2789-2798","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["Parents' perspectives on dried blood spot self\u2010sampling from children with epilepsy: A mixed\u2010method study"],"prefix":"10.1111","volume":"109","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6832-6638","authenticated-orcid":false,"given":"Camilla","family":"Linder","sequence":"first","affiliation":[{"name":"Department of Laboratory Medicine Division of Clinical Pharmacology Karolinska Institutet Stockholm Sweden"},{"name":"Department of Clinical Pharmacology Karolinska University Hospital Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mirja","family":"Neideman","sequence":"additional","affiliation":[{"name":"Department of Paediatrics Sachsska Children's Hospital Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Miguel","family":"Gambell\u2010Barroso","sequence":"additional","affiliation":[{"name":"Department of Clinical Pharmacology Karolinska University Hospital Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lars L.","family":"Gustafsson","sequence":"additional","affiliation":[{"name":"Department of Laboratory Medicine Division of Clinical Pharmacology Karolinska Institutet Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katarina","family":"Wide","sequence":"additional","affiliation":[{"name":"Department of Clinical Science, Technology and Intervention (CLINTEC) Division of Paediatrics Karolinska Institutet Stockholm Sweden"},{"name":"Department of Paediatrics Karolinska University Hospital Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anton","family":"Pohanka","sequence":"additional","affiliation":[{"name":"Department of Laboratory Medicine Division of Clinical Pharmacology Karolinska Institutet Stockholm Sweden"},{"name":"Department of Clinical Pharmacology Karolinska University Hospital Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pia","family":"Bastholm\u2010Rahmner","sequence":"additional","affiliation":[{"name":"Department of Laboratory Medicine Division of Clinical Pharmacology Karolinska Institutet Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,4,14]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.4155\/bio.15.110"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0167433"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.4155\/bio.14.189"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2125.1998.00769.x"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1517\/14656566.2010.517194"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/petr.12983"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/epi.12126"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1097\/FTD.0000000000000422"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1097\/FTD.0000000000000605"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.2155"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.3310\/hta18200"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1097\/00024665-200701000-00009"},{"key":"e_1_2_9_14_1","first-page":"133","article-title":"Patient\u2010centered care","volume":"81","author":"Reynolds A","year":"2009","journal-title":"Radiol Technol"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1745-7599.2008.00360.x"},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1097\/MOP.0000000000000605"},{"key":"e_1_2_9_17_1","volume-title":"Designing and conducting mixed methods research","author":"Cresswell JW","year":"2011"},{"key":"e_1_2_9_18_1","unstructured":"LinderC GambellBM.Blodprovtagning p\u00e5 filterpapper Barn\uff5cL\u00e4kemedel [Internet]. https:\/\/www.youtube.com\/watch?v=LpJeyfoWsgA. 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