{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,27]],"date-time":"2026-04-27T08:19:13Z","timestamp":1777277953276,"version":"3.51.4"},"reference-count":19,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2020,7,24]],"date-time":"2020-07-24T00:00:00Z","timestamp":1595548800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100010342","name":"Gillbergska stiftelsen","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010342","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2021,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>The knowledge is limited about how parents experience the time when their infant is receiving therapeutic hypothermia (TH) after severe perinatal asphyxia. The aim of this study was to explore parents\u2019 experience of closeness and involvement in their infant's care while in the neonatal intensive care unit (NICU) with their newborn undergoing TH.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Face\u2010to\u2010face, semi\u2010structured interviews were conducted with parents (n\u00a0=\u00a011) whose infants (n\u00a0=\u00a08, aged 3\u20105\u00a0years at the time of the study) underwent TH at a level III Swedish NICU during 2013\u20102016. The interviews were analysed using qualitative content analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>All the parents shared the trauma of being both physically and psychologically separated from their infant. They all described a need for information and emotional support, and reported that the NICU staff had influenced the extent to which they as parents had been able to be near and actively participate in the care. Parents described the wish to be closer to their infant and to be more actively involved in their infant's care.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Strategies to enable parent\u2010infant closeness and active guidance from staff might help alleviate the emotional stress of parents and promote their participation during TH.<\/jats:p><\/jats:sec>","DOI":"10.1111\/apa.15431","type":"journal-article","created":{"date-parts":[[2020,6,21]],"date-time":"2020-06-21T10:19:30Z","timestamp":1592734770000},"page":"480-486","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":23,"title":["When all I wanted was to hold my baby\u2014The experiences of parents of infants who received therapeutic hypothermia"],"prefix":"10.1111","volume":"110","author":[{"given":"Pyrola","family":"B\u00e4cke","sequence":"first","affiliation":[{"name":"Neonatal Intensive Care Unit University Children's Hospital Uppsala Sweden"},{"name":"Department of Women's and Children's Health Uppsala University Uppsala Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Beatrice","family":"Hjelte","sequence":"additional","affiliation":[{"name":"Neonatal Intensive Care Unit University Children's Hospital Uppsala Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lena","family":"Hellstr\u00f6m Westas","sequence":"additional","affiliation":[{"name":"Neonatal Intensive Care Unit University Children's Hospital Uppsala Sweden"},{"name":"Department of Women's and Children's Health Uppsala University Uppsala Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9510-048X","authenticated-orcid":false,"given":"Johan","family":"\u00c5gren","sequence":"additional","affiliation":[{"name":"Neonatal Intensive Care Unit University Children's Hospital Uppsala Sweden"},{"name":"Department of Women's and Children's Health Uppsala University Uppsala Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5955-1278","authenticated-orcid":false,"given":"Ylva","family":"Thernstr\u00f6m Blomqvist","sequence":"additional","affiliation":[{"name":"Neonatal Intensive Care Unit University Children's Hospital Uppsala Sweden"},{"name":"Department of Women's and Children's Health Uppsala University Uppsala Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2020,7,24]]},"reference":[{"key":"e_1_2_9_2_1","unstructured":"Swedish Agency for Health Technology Assessment and Assessment of Social Services (SBU).Kylbehandling av nyf\u00f6dda med syrebrist (Hypotermisk behandling vid f\u00f6rlossningsasfyx);2014.https:\/\/www.sbu.se\/sv\/publikationer\/sbu\u2010kommentar\/kylbehandling\u2010av\u2010nyfodda\u2010med\u2010syrebrist\u2010hypotermisk\u2010behandling\u2010vid\u2010forlossningsasfyxi\/. Accessed September 18 2018."},{"issue":"1","key":"e_1_2_9_3_1","first-page":"CD003311","article-title":"Cooling for newborns with hypoxic ischaemic encephalopathy","volume":"2013","author":"Jacobs SE","year":"2013","journal-title":"Cochrane Database Syst Rev"},{"issue":"166","key":"e_1_2_9_4_1","first-page":"558","article-title":"Hypothermia for neonatal hypoxic ischemic encephalopathy: an updated systematic review and meta\u2010analysis","volume":"1","author":"Tagin MA","year":"2012","journal-title":"Arch Pediatr Adolesc Med"},{"key":"e_1_2_9_5_1","unstructured":"Swedish Paediatric Society; the Neonatology section.Recommendations for hypothermia treatment of newborn infants with birth asphyxia.https:\/\/neo.barnlakarforeningen.se\/wp\u2010content\/uploads\/sites\/14\/2014\/03\/hypotermi_20xx.pdf. Accessed September 18 2018."},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.3402\/qhw.v8i0.20539"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1552-6909.2012.01429.x"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/14767058.2017.1346074"},{"key":"e_1_2_9_9_1","first-page":"1","article-title":"Parental perceptions of neonatal therapeutic hypothermia; emotional and healing experiences","volume":"20","author":"Craig AK","year":"2018","journal-title":"J Matern Fetal Neonatal Med"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.srhc.2019.03.004"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.nedt.2017.06.002"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.nedt.2003.10.001"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/apa.12267"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.2012.02787.x"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.midw.2018.04.003"},{"key":"e_1_2_9_16_1","volume-title":"A Secure Base: Clinical Applications of the Attachment Theory","author":"Bowlby J","year":"1994"},{"key":"e_1_2_9_17_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjinnov-2016-000145"},{"key":"e_1_2_9_18_1","first-page":"215","article-title":"Parent bed spaces in the PICU: effect on parental stress","volume":"33","author":"Smith AB","year":"2007","journal-title":"Pediatr Nurs"},{"key":"e_1_2_9_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1523-536X.1992.tb00382.x"},{"key":"e_1_2_9_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/nur.4770180211"}],"container-title":["Acta Paediatrica"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fapa.15431","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/apa.15431","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/apa.15431","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/apa.15431","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,3]],"date-time":"2023-09-03T10:26:53Z","timestamp":1693736813000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/apa.15431"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,7,24]]},"references-count":19,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2021,2]]}},"alternative-id":["10.1111\/apa.15431"],"URL":"https:\/\/doi.org\/10.1111\/apa.15431","archive":["Portico"],"relation":{},"ISSN":["0803-5253","1651-2227"],"issn-type":[{"value":"0803-5253","type":"print"},{"value":"1651-2227","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,7,24]]},"assertion":[{"value":"2020-03-03","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-06-16","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-07-24","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}