{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,3]],"date-time":"2026-11-03T17:30:26Z","timestamp":1793727026527,"version":"4.6.1"},"reference-count":60,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2022,6,5]],"date-time":"2022-06-05T00:00:00Z","timestamp":1654387200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/100010814","name":"Stiftelsen f\u00f6r Bist\u00e5nd \u00e5t R\u00f6relsehindrade i Sk\u00e5ne","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010814","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2022,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>The aim of this scoping review was to summarise findings concerning cognitive characteristics in people with spina bifida and explain how cognitive factors influence activities and participation in different areas and stages of life.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>PubMed, Psych INFO, ERIC, Scopus, CINAHL and the Cochrane Library were searched for English language papers published in 2000\u20132018. A total of 92 papers were selected and quality was assessed according to the McMaster criteria. The results were presented related to body functions, activity and participation from the International Classification of Function and Health, ICF.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>People with spina bifida tended to have a lower IQ than those without. The majority also had cognitive difficulties manifested in problems with language, perception, memory, executive and attentional functions. Those difficulties affected activity and participation in all life domains in ICF. This may affect medical adherence and responsibility and by extension the prevention of secondary complications.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>It is important for caregivers, professionals and especially individuals with spina bifida themselves to understand and handle both physical and cognitive consequences in all life circumstances. Having insight into one\u2019s own assets and difficulties paves the way to managing life challenges, which could enhance health, self\u2010management and participation in society.<\/jats:p><\/jats:sec>","DOI":"10.1111\/apa.16420","type":"journal-article","created":{"date-parts":[[2022,5,24]],"date-time":"2022-05-24T18:24:52Z","timestamp":1653416692000},"page":"1682-1694","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":43,"title":["A scoping review of cognition in spina bifida and its consequences for activity and participation throughout life"],"prefix":"10.1111","volume":"111","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7757-151X","authenticated-orcid":false,"given":"Barbro","family":"Lindquist","sequence":"first","affiliation":[{"name":"Department of Habilitation Halmstad County Hospital  Halmstad Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hel\u00e9n","family":"Jacobsson","sequence":"additional","affiliation":[{"name":"Department of Habilitation Falu Hospital  Falun Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Margareta","family":"Strinnholm","sequence":"additional","affiliation":[{"name":"Folke Bernadotte Regional Habilitation Center University Children\u00b4s Hospital  Uppsala Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6026-1136","authenticated-orcid":false,"given":"Marie","family":"Peny\u2010Dahlstrand","sequence":"additional","affiliation":[{"name":"Regional Rehabilitation Centre Queen Silvia Children\u00b4s Hospital Sahlgrenska University Hospital  Gothenburg Sweden"},{"name":"Sweden Institute of Neuroscience and Physiology at the Sahlgrenska Academy University of Gothenburg  Gothenburg Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,6,5]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF00334666"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.3233\/PRM-170481"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.2005.tb02005.x"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1207\/s15326942dn3101_1"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2003.tb00896.x"},{"key":"e_1_2_13_7_1","unstructured":"F\u00f6reningen Habilitering i Sverige. 2007\u20102022. [Internet]http:\/\/habiliteringisverige.se\/arkiv\/ebh_report\/kognition\u2010vid\u2010ryggmargsbrack\u2010en\u2010kunskapsoversikt\u20102015. Accessed November 1 2015."},{"key":"e_1_2_13_8_1","unstructured":"World Health Organization International Classification of Function and Health: ICF Geneva: World Health Org;2001."},{"key":"e_1_2_13_9_1","unstructured":"Law M StewartD PollockM LettsL BoschJ WestmorlandM.Critical Review Form Quantitative studies Critical Review Form Qualitative studies McMaster University 1998."},{"key":"e_1_2_13_10_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617716000680"},{"issue":"8","key":"e_1_2_13_11_1","first-page":"1","article-title":"Intelligence quotient in patients with myelomeningocele: a review","volume":"10","author":"Alimi Y","year":"2018","journal-title":"Cureus"},{"key":"e_1_2_13_12_1","doi-asserted-by":"publisher","DOI":"10.1159\/000072469"},{"key":"e_1_2_13_13_1","doi-asserted-by":"publisher","DOI":"10.1002\/ddrr.89"},{"key":"e_1_2_13_14_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617702811092"},{"key":"e_1_2_13_15_1","doi-asserted-by":"publisher","DOI":"10.1093\/brain\/awh154"},{"key":"e_1_2_13_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.neuropsychologia.2004.08.012"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.neuropsychologia.2004.10.014"},{"key":"e_1_2_13_18_1","doi-asserted-by":"publisher","DOI":"10.1037\/0894-4105.19.4.456"},{"key":"e_1_2_13_19_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617706060371"},{"key":"e_1_2_13_20_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617712001579"},{"key":"e_1_2_13_21_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617706060425"},{"key":"e_1_2_13_22_1","doi-asserted-by":"publisher","DOI":"10.1186\/1743-8454-2-10"},{"key":"e_1_2_13_23_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.2008.00747.x"},{"key":"e_1_2_13_24_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617712001117"},{"key":"e_1_2_13_25_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617704105055"},{"key":"e_1_2_13_26_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-010-1368-7"},{"key":"e_1_2_13_27_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617707070336"},{"key":"e_1_2_13_28_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-010-1140-z"},{"key":"e_1_2_13_29_1","doi-asserted-by":"publisher","DOI":"10.1037\/neu0000350"},{"key":"e_1_2_13_30_1","doi-asserted-by":"publisher","DOI":"10.1037\/neu0000111"},{"key":"e_1_2_13_31_1","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.2003.029058"},{"key":"e_1_2_13_32_1","doi-asserted-by":"publisher","DOI":"10.1037\/a0032500"},{"key":"e_1_2_13_33_1","doi-asserted-by":"publisher","DOI":"10.1080\/09297040601147605"},{"key":"e_1_2_13_34_1","doi-asserted-by":"publisher","DOI":"10.1080\/13854040701425940"},{"key":"e_1_2_13_35_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsm042"},{"key":"e_1_2_13_36_1","doi-asserted-by":"publisher","DOI":"10.1080\/09297049.2011.613814"},{"key":"e_1_2_13_37_1","doi-asserted-by":"publisher","DOI":"10.1080\/092970490911324"},{"key":"e_1_2_13_38_1","doi-asserted-by":"publisher","DOI":"10.1037\/neu0000266"},{"key":"e_1_2_13_39_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2004-0797"},{"key":"e_1_2_13_40_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00787-006-0525-8"},{"key":"e_1_2_13_41_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11682-015-9388-2"},{"key":"e_1_2_13_42_1","doi-asserted-by":"publisher","DOI":"10.1037\/a0013373"},{"key":"e_1_2_13_43_1","doi-asserted-by":"publisher","DOI":"10.1186\/1743-8454-6-6"},{"key":"e_1_2_13_44_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.nicl.2015.03.022"},{"key":"e_1_2_13_45_1","doi-asserted-by":"publisher","DOI":"10.1037\/a0019599"},{"key":"e_1_2_13_46_1","doi-asserted-by":"publisher","DOI":"10.1080\/13803395.2016.1249828"},{"key":"e_1_2_13_47_1","doi-asserted-by":"publisher","DOI":"10.1037\/0894-4105.15.2.185"},{"key":"e_1_2_13_48_1","doi-asserted-by":"publisher","DOI":"10.1111\/sjop.12390"},{"key":"e_1_2_13_49_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-009-0843-5"},{"key":"e_1_2_13_50_1","doi-asserted-by":"publisher","DOI":"10.3171\/2011.6.PEDS10584"},{"key":"e_1_2_13_51_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617710000123"},{"key":"e_1_2_13_52_1","doi-asserted-by":"publisher","DOI":"10.1006\/brln.2000.2389"},{"key":"e_1_2_13_53_1","doi-asserted-by":"publisher","DOI":"10.1080\/87565641.2012.697502"},{"key":"e_1_2_13_54_1","doi-asserted-by":"publisher","DOI":"10.1080\/13854046.2016.1259387"},{"key":"e_1_2_13_55_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jecp.2013.09.006"},{"key":"e_1_2_13_56_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617702811079"},{"key":"e_1_2_13_57_1","doi-asserted-by":"publisher","DOI":"10.1002\/ddrr.48"},{"key":"e_1_2_13_58_1","doi-asserted-by":"publisher","DOI":"10.1037\/neu0000196"},{"key":"e_1_2_13_59_1","doi-asserted-by":"publisher","DOI":"10.1177\/00222194060390020601"},{"key":"e_1_2_13_60_1","doi-asserted-by":"publisher","DOI":"10.1207\/S15326942DN2102_2"},{"key":"e_1_2_13_61_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-005-1231-4"}],"container-title":["Acta Paediatrica"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/apa.16420","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/apa.16420","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/apa.16420","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,21]],"date-time":"2023-08-21T16:54:26Z","timestamp":1692636866000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/apa.16420"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,6,5]]},"references-count":60,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2022,9]]}},"alternative-id":["10.1111\/apa.16420"],"URL":"https:\/\/doi.org\/10.1111\/apa.16420","archive":["Portico"],"relation":{},"ISSN":["0803-5253","1651-2227"],"issn-type":[{"value":"0803-5253","type":"print"},{"value":"1651-2227","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,6,5]]},"assertion":[{"value":"2022-02-03","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-05-23","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-06-05","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}