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We used medical records from hospital\u2010based paediatric gastroenterology and general paediatric outpatient clinics, laboratory records, and questionnaires. Loss of follow up was defined no coeliac disease\u2010related follow up or tissue transglutaminase test over the past 2\u2009years of study enrolment.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>We included 162 children (58% girls) aged 7.8\u201318.2\u2009years (average 12.7). Most participants (76%) were followed at general paediatric outpatient clinics rather than hospital\u2010based clinics. After 2.3\u20138.8 (average 5.3) years since diagnosis, 23 patients (14%; 95% confidence interval, 9%\u201321%) had been lost to follow up. Patients with loss of follow up were more often boys (61% versus 39%, <jats:italic>p<\/jats:italic>\u00a0=\u00a00.08), with a somewhat longer average disease duration of 5.8 versus 5.2\u2009years (<jats:italic>p<\/jats:italic>\u00a0=\u00a00.11). There were no between\u2010group differences in socio\u2010economic characteristics and patient\u2010reported experience measures of coeliac disease care.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>One in seven coeliac patients may experience loss of follow up during childhood.<\/jats:p><\/jats:sec>","DOI":"10.1111\/apa.16633","type":"journal-article","created":{"date-parts":[[2022,12,16]],"date-time":"2022-12-16T08:04:06Z","timestamp":1671177846000},"page":"510-521","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Regional Swedish study found that one in seven coeliac patients experienced loss of follow up during childhood"],"prefix":"10.1111","volume":"112","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8807-2188","authenticated-orcid":false,"given":"Maria","family":"Ulnes","sequence":"first","affiliation":[{"name":"Department of Paediatrics Institute of Clinical Sciences, Sahlgrenska Academy  Gothenburg Sweden"},{"name":"Department of Paediatrics Queen Silvia Children's Hospital  Gothenburg Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Henrik","family":"Albrektsson","sequence":"additional","affiliation":[{"name":"Statistiska konsultgruppen  Gothenburg Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ketil","family":"St\u00f8rdal","sequence":"additional","affiliation":[{"name":"Department of Paediatric Research University of Oslo and Oslo University Hospital  Oslo Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Robert","family":"Saalman","sequence":"additional","affiliation":[{"name":"Department of Paediatrics Institute of Clinical Sciences, Sahlgrenska Academy  Gothenburg Sweden"},{"name":"Department of Paediatrics Queen Silvia Children's Hospital  Gothenburg Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1024-5602","authenticated-orcid":false,"given":"Jonas F.","family":"Ludvigsson","sequence":"additional","affiliation":[{"name":"Department of Medical Epidemiology and Biostatistics Karolinska Institutet  Stockholm Sweden"},{"name":"Department of Paediatrics \u00d6rebro University Hospital  \u00d6rebro Sweden"},{"name":"Department of Medicine Columbia University College of Physicians and Surgeons  New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karl","family":"M\u00e5rild","sequence":"additional","affiliation":[{"name":"Department of Paediatrics Institute of Clinical Sciences, Sahlgrenska Academy  Gothenburg Sweden"},{"name":"Department of Paediatrics Queen Silvia Children's Hospital  Gothenburg Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2022,12,26]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(17)31796-8"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2020.1943"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2017.9730"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-11-204"},{"key":"e_1_2_10_6_1","unstructured":"Sandstr\u00f6mOAD EkstavL GudjonsdottirAH H\u00f6gbergL MalmquistM.Nationellt V\u00e5rdprogram f\u00f6r Celiaki v 1.0.https:\/\/gastro.barnlakarforeningen.se\/wp\u2010content\/uploads\/sites\/10\/2020\/01\/SPGHN_Celiaki_v\u00e5rdprogram_20200114.pdf"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1136\/gutjnl-2013-306578"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.3945\/an.116.013292"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00431-021-04318-2"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1159\/000320714"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.cgh.2018.12.027"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1136\/gutjnl-2011-301346"},{"key":"e_1_2_10_13_1","unstructured":"Statistics SHomepage on the internet.https:\/\/www.statistikdatabasen.scb.seAccessed: February 24 2022"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPG.0b013e31821a23d0"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1136\/gut.31.1.111"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1177\/2050640619844125"},{"key":"e_1_2_10_17_1","unstructured":"(SALAR) TSAoLAaR. 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