{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T18:22:04Z","timestamp":1791397324391,"version":"4.3.3"},"reference-count":30,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2023,3,6]],"date-time":"2023-03-06T00:00:00Z","timestamp":1678060800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2023,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>We explored professionals' views on sharing decision\u2010making with parents before and after an extremely preterm birth and what healthcare professionals considered severe outcomes.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A nationwide, multi\u2010centre online survey was carried out among a wide range of perinatal healthcare professionals in the Netherlands from 4 November 2020 to 10 January 2021. The medical chairs of all nine Dutch Level III and IV perinatal centres helped to disseminate the survey link.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>We received 769 survey responses. Most respondents (53%) preferred to place equal emphasis on two treatment options during shared prenatal decision\u2010making: early intensive care or palliative comfort care. The majority (61%) wanted to include a conditional intensive care trial as a third treatment option, but 25% disagreed. Most (78%) felt that healthcare professionals were responsible for initiating postnatal conversations to justify continuing or withdrawing neonatal intensive care if complications were associated with poor outcomes. Finally, 43% were satisfied with the current definitions of severe long\u2010term outcomes, 41% were unsure and there were numerous for a broader definition.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Although Dutch professionals expressed diverse preferences on how to reach decisions about extremely premature infants, we observed a trend towards shared decision\u2010making with parents. These results could inform future guidelines.<\/jats:p><\/jats:sec>","DOI":"10.1111\/apa.16721","type":"journal-article","created":{"date-parts":[[2023,2,22]],"date-time":"2023-02-22T13:44:06Z","timestamp":1677073446000},"page":"1200-1208","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Dutch professionals' discussion preferences with the parents of extremely premature infants varied, but the trend was towards shared decision\u2010making"],"prefix":"10.1111","volume":"112","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5640-6160","authenticated-orcid":false,"given":"R.","family":"Geurtzen","sequence":"first","affiliation":[{"name":"Department of Neonatology Radboud University Medical Centre, Radboud Institute for Health Sciences, Amalia Children's Hospital  Nijmegen The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0983-8865","authenticated-orcid":false,"given":"L.","family":"De\u00a0Proost","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynaecology Erasmus MC  Rotterdam The Netherlands"},{"name":"Department of Neonatology Erasmus MC Sophia Children's Hospital  Rotterdam The Netherlands"},{"name":"Department of Medical Ethics, Philosophy and History of Medicine Erasmus MC  Rotterdam The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9555-6922","authenticated-orcid":false,"given":"A. A. E.","family":"Verhagen","sequence":"additional","affiliation":[{"name":"Department of Paediatrics University Medical Centre Groningen, University of Groningen  Groningen The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"I. K. M.","family":"Reiss","sequence":"additional","affiliation":[{"name":"Department of Neonatology Erasmus MC Sophia Children's Hospital  Rotterdam The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"Hogeveen","sequence":"additional","affiliation":[{"name":"Department of Neonatology Radboud University Medical Centre, Radboud Institute for Health Sciences, Amalia Children's Hospital  Nijmegen The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"E. J. 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