{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T00:44:33Z","timestamp":1787013873306,"version":"build-2736575974"},"reference-count":21,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2023,11,9]],"date-time":"2023-11-09T00:00:00Z","timestamp":1699488000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2024,3]]},"abstract":"Abstract<\/jats:title>\n \n Aim<\/jats:title>\n To explore how expectant mothers at risk for preterm birth would like to be involved in decision\u2010making at the margin of viability and what they would base their decisions on.<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n \n This cross\u2010sectional observational study included a mixed\u2010methods post\u2010hoc analysis alongside a previously reported randomised clinical trial. Expectant mothers between 28\n 0\/7<\/jats:sup>\n and 36\n 6\/7<\/jats:sup>\n weeks' gestation who were hospitalised for risk of preterm birth responded to written case vignettes of an impending preterm birth at the margin of viability. Participants responded to closed and open\u2010ended questions that were theoretically coded for attitudes and values towards shared decision\u2010making.\n <\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n Sixty\u2010four expectant mothers were included in the analysis, 36 provided written perspectives. Decision\u2010making was perceived as an enormous burden and a potential source of guilt and regret. Weighing personal values in terms of \u2018fighting for the baby\u2019 and \u2018quality of life\u2019 were used to inform the decision\u2010making process. Explicitly stating that any decision is a good decision, empowerment through co\u2010constructing shared decisions rather than simply presenting choices, sharing the clinicians' personal views, and honest, and empathetic counselling were perceived as supportive.<\/jats:p>\n <\/jats:sec>\n \n Conclusion<\/jats:title>\n Mothers at risk for preterm birth provided specific insights into their decision\u2010making patterns that may be helpful to clinicians.<\/jats:p>\n <\/jats:sec>","DOI":"10.1111\/apa.17033","type":"journal-article","created":{"date-parts":[[2023,11,9]],"date-time":"2023-11-09T05:24:10Z","timestamp":1699507450000},"page":"442-448","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Attitudes and values towards decisions at the margin of viability among expectant mothers at risk for preterm birth"],"prefix":"10.1111","volume":"113","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4201-1800","authenticated-orcid":false,"given":"Christine","family":"Arnold","sequence":"first","affiliation":[{"name":"Division of Neonatology, Department of Pediatrics, Inselspital Bern University Hospital, University of Bern Bern Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julia","family":"Inthorn","sequence":"additional","affiliation":[{"name":"Center for Health Care Ethics Hanover Germany"},{"name":"Institute for the History, Philosophy, and Ethics of Medicine, Medical Center of the Johannes Gutenberg University Mainz Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Benjamin","family":"Roth","sequence":"additional","affiliation":[{"name":"Center for Health Care Ethics Hanover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel","family":"Matheisl","sequence":"additional","affiliation":[{"name":"Division of Neonatology and Pediatric Intensive Care, Center for Pediatrics Medical Center of the University of Freiburg Freiburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susanne","family":"Tippmann","sequence":"additional","affiliation":[{"name":"Department of Neonatology Medical Center of the Johannes Gutenberg University Mainz Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eva","family":"Mildenberger","sequence":"additional","affiliation":[{"name":"Department of Neonatology Medical Center of the Johannes Gutenberg University Mainz Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andr\u00e9","family":"Kidszun","sequence":"additional","affiliation":[{"name":"Division of Neonatology, Department of Pediatrics, Inselspital Bern University Hospital, University of Bern Bern Switzerland"},{"name":"Department of Neonatology Medical Center of the Johannes Gutenberg University Mainz 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