{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,14]],"date-time":"2026-05-14T19:30:11Z","timestamp":1778787011602,"version":"3.51.4"},"reference-count":29,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2024,6,7]],"date-time":"2024-06-07T00:00:00Z","timestamp":1717718400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2024,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>To evaluate health\u2010 and vision\u2010related quality of life (HR\u2010 and VR\u2010QoL) and perceptual visual dysfunction (PVD) in adolescents with hydrocephalus surgically treated in infancy.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<jats:bold>s<\/jats:bold><\/jats:title><jats:p>In total, 23 adolescents (15 males and 8 females; median age 14.9\u2009years) with hydrocephalus and 31 controls were evaluated using validated instruments to measure HR\u2010QoL and VR\u2010QoL. PVDs were reported by history taking in five areas: recognition, orientation, depth, movement and simultaneous perception.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Adolescents with hydrocephalus and the parent proxy reports showed lower mean total Paediatric Quality of Life Inventory 4.0 scores (75.8 and 63.7, respectively) compared with controls (87.6 and 91.5), <jats:italic>p<\/jats:italic>\u2009=\u20090.016 and <jats:italic>p<\/jats:italic>\u2009&lt;\u20090.0001. Parent\u2010reported scores were lower than self\u2010reported scores (<jats:italic>p<\/jats:italic>\u2009=\u20090.001). Adolescents with myelomeningocele (<jats:italic>n<\/jats:italic>\u2009=\u200910) showed lower physical health scores (<jats:italic>p<\/jats:italic>\u2009=\u20090.001). No VR\u2010QoL difference was found between groups. PVDs were reported in \u22651 area by 14\/23 hydrocephalus participants and 2\/31 controls (<jats:italic>p<\/jats:italic>\u2009&lt;\u20090.0001). Associations were found in the hydrocephalus group between VR\u2010QoL and HR\u2010QoL (<jats:italic>r<\/jats:italic><jats:sub><jats:italic>s<\/jats:italic><\/jats:sub>\u2009=\u20090.47, <jats:italic>p<\/jats:italic>\u2009=\u20090.026) and number of PVD areas (<jats:italic>r<\/jats:italic><jats:sub><jats:italic>s<\/jats:italic><\/jats:sub>\u2009=\u2009\u22120.6, <jats:italic>p<\/jats:italic>\u2009=\u20090.003).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Adolescents with hydrocephalus and their parents reported lower HR\u2010QoL and more PVDs. These problems indicate the need for not only ophthalmological follow\u2010ups but also evaluation of QoL and PVDs in individuals with infantile hydrocephalus.<\/jats:p><\/jats:sec>","DOI":"10.1111\/apa.17315","type":"journal-article","created":{"date-parts":[[2024,6,7]],"date-time":"2024-06-07T08:18:40Z","timestamp":1717748320000},"page":"2061-2071","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Quality of life and functional vision in adolescents with surgically treated hydrocephalus in infancy"],"prefix":"10.1111","volume":"113","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6779-1885","authenticated-orcid":false,"given":"Rezhna Taha","family":"Najim","sequence":"first","affiliation":[{"name":"Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy University of Gothenburg  Gothenburg Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susann","family":"Andersson","sequence":"additional","affiliation":[{"name":"Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy University of Gothenburg  Gothenburg Sweden"},{"name":"Department of Ophthalmology Region V\u00e4stra G\u00f6taland, Sahlgrenska University Hospital  M\u00f6lndal Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mats","family":"Tullberg","sequence":"additional","affiliation":[{"name":"Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy University of Gothenburg  Gothenburg Sweden"},{"name":"Department of Neurology Region V\u00e4stra G\u00f6taland, Sahlgrenska University Hospital  Gothenburg Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marita","family":"Andersson\u00a0Gr\u00f6nlund","sequence":"additional","affiliation":[{"name":"Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy University of Gothenburg  Gothenburg Sweden"},{"name":"Department of Ophthalmology, Faculty of Medicine and Health \u00d6rebro University  \u00d6rebro Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,6,7]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40001-022-00798-6"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-013-2222-5"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2006.tb01232.x"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wneu.2017.01.107"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.3171\/2020.4.PEDS19660"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph182010756"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.3171\/2016.3.PEDS15641"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-5-43"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.20524"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.4103\/ijo.IJO_1996_20"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-007-0324-7"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1097\/00005650-200108000-00006"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105309103580"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.2009.01360.x"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaapos.2009.12.160"},{"key":"e_1_2_12_17_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.22627"},{"key":"e_1_2_12_18_1","doi-asserted-by":"publisher","DOI":"10.1038\/eye.1996.64"},{"key":"e_1_2_12_19_1","doi-asserted-by":"publisher","DOI":"10.1159\/000309402"},{"key":"e_1_2_12_20_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2008.03037.x"},{"key":"e_1_2_12_21_1","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-10-85"},{"key":"e_1_2_12_22_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1008801802877"},{"key":"e_1_2_12_23_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF00435394"},{"key":"e_1_2_12_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2008.04.068"},{"key":"e_1_2_12_25_1","first-page":"134","article-title":"An instrument to measure the health status in children with hydrocephalus: the hydrocephalus outcome questionnaire","volume":"101","author":"Kulkarni AV","year":"2004","journal-title":"J Neurosurg"},{"key":"e_1_2_12_26_1","doi-asserted-by":"publisher","DOI":"10.3171\/2017.8.PEDS16700"},{"key":"e_1_2_12_27_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-017-3691-8"},{"key":"e_1_2_12_28_1","first-page":"358","article-title":"Quality of life in children with hydrocephalus: results from the Hospital for Sick Children, Toronto","volume":"107","author":"Kulkarni AV","year":"2007","journal-title":"J Neurosurg"},{"key":"e_1_2_12_29_1","doi-asserted-by":"publisher","DOI":"10.1136\/bjo.2006.095349"},{"key":"e_1_2_12_30_1","doi-asserted-by":"publisher","DOI":"10.1111\/cxo.12155"}],"container-title":["Acta Paediatrica"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/apa.17315","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,9,26]],"date-time":"2024-09-26T08:13:23Z","timestamp":1727338403000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/apa.17315"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,6,7]]},"references-count":29,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2024,9]]}},"alternative-id":["10.1111\/apa.17315"],"URL":"https:\/\/doi.org\/10.1111\/apa.17315","archive":["Portico"],"relation":{},"ISSN":["0803-5253","1651-2227"],"issn-type":[{"value":"0803-5253","type":"print"},{"value":"1651-2227","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,6,7]]},"assertion":[{"value":"2024-03-06","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-05-28","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-06-07","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}